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#mecfs2025 — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #mecfs2025, aggregated by home.social.

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  1. dzwoelfer @[email protected] ·

    Liebe Follower*Innen,
    Ich lege Euch folgende Petition ans Herz, denn es braucht dringend mehr Forschung für die von ME/CFS betroffenen Menschen: openpetition.de/petition/me-cf
    Bitte lest Euch die Petition durch und macht mit!
    Danke!
    #mecfs #mecfs2025 #lebenmitmecfs #mecfsimbundestag

    #mecfsimbundestag #lebenmitmecfs #mecfs2025 #mecfs
  2. dzwoelfer @[email protected] ·

    Liebe Follower*Innen,
    Ich lege Euch folgende Petition ans Herz, denn es braucht dringend mehr Forschung für die von ME/CFS betroffenen Menschen: openpetition.de/petition/me-cf
    Bitte lest Euch die Petition durch und macht mit!
    Danke!
    #mecfs #mecfs2025 #lebenmitmecfs #mecfsimbundestag

    #mecfsimbundestag #lebenmitmecfs #mecfs2025 #mecfs
  3. Immortal Wombat @[email protected] ·

    ME/CFS-Liege-Demo Köln 2025 youtube.com/watch?v=z980qVhUHx
    (Ab etwa minute 26 ist Marc Benecke auf der Bühne)
    #mecfs2025 #meCfs

    #mecfs2025 #mecfs
  4. Immortal Wombat @[email protected] ·

    ME/CFS-Liege-Demo Köln 2025 youtube.com/watch?v=z980qVhUHx
    (Ab etwa minute 26 ist Marc Benecke auf der Bühne)
    #mecfs2025 #meCfs

    #mecfs2025 #mecfs
  5. Immortal Wombat @[email protected] ·

    ME/CFS-Liege-Demo Köln 2025 youtube.com/watch?v=z980qVhUHx
    (Ab etwa minute 26 ist Marc Benecke auf der Bühne)
    #mecfs2025 #meCfs

    #mecfs #mecfs2025
  6. Immortal Wombat @[email protected] ·

    ME/CFS-Liege-Demo Köln 2025 youtube.com/watch?v=z980qVhUHx
    (Ab etwa minute 26 ist Marc Benecke auf der Bühne)
    #mecfs2025 #meCfs

    #mecfs2025 #mecfs
  7. Christina Koch @[email protected] ·

    Bettina Grande just shared this info from the International #MECFS Conference, which is taking place today and tomorrow:

    Prof. Kristian Sommerfelt (Norway) shared devastating data:
    50% of severe #MECFS patients worsened over time.
    0% of very severe ME patients improved.
    This is disease progression.
    #PEM must be recognized, understood – and avoided.
    #MEAwarenessDay
    #MECFS2025
    #PEMisnotNegotiable

    #mecfs #pem #meawarenessday #mecfs2025 #pemisnotnegotiable
  8. Christina Koch @[email protected] ·

    Bettina Grande just shared this info from the International #MECFS Conference, which is taking place today and tomorrow:

    Prof. Kristian Sommerfelt (Norway) shared devastating data:
    50% of severe #MECFS patients worsened over time.
    0% of very severe ME patients improved.
    This is disease progression.
    #PEM must be recognized, understood – and avoided.
    #MEAwarenessDay
    #MECFS2025
    #PEMisnotNegotiable

    #mecfs #pem #meawarenessday #mecfs2025 #pemisnotnegotiable
  9. Christina Koch @[email protected] ·

    Bettina Grande just shared this info from the International #MECFS Conference, which is taking place today and tomorrow:

    Prof. Kristian Sommerfelt (Norway) shared devastating data:
    50% of severe #MECFS patients worsened over time.
    0% of very severe ME patients improved.
    This is disease progression.
    #PEM must be recognized, understood – and avoided.
    #MEAwarenessDay
    #MECFS2025
    #PEMisnotNegotiable

    #mecfs #pem #meawarenessday #mecfs2025 #pemisnotnegotiable
  10. Christina Koch @[email protected] ·

    Bettina Grande just shared this info from the International #MECFS Conference, which is taking place today and tomorrow:

    Prof. Kristian Sommerfelt (Norway) shared devastating data:
    50% of severe #MECFS patients worsened over time.
    0% of very severe ME patients improved.
    This is disease progression.
    #PEM must be recognized, understood – and avoided.
    #MEAwarenessDay
    #MECFS2025
    #PEMisnotNegotiable

    #pemisnotnegotiable #mecfs2025 #meawarenessday #pem #mecfs