#mecfs2025 — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #mecfs2025, aggregated by home.social.
-
Liebe Follower*Innen,
Ich lege Euch folgende Petition ans Herz, denn es braucht dringend mehr Forschung für die von ME/CFS betroffenen Menschen: https://www.openpetition.de/petition/me-cfs-kirchen-bitte-unterstuetzt-uns-im-kampf-um-aufklaerung-versorgung-und-forschung/teilen/78a0183406982a89e8c2197ee31ac63f#
Bitte lest Euch die Petition durch und macht mit!
Danke!
#mecfs #mecfs2025 #lebenmitmecfs #mecfsimbundestag -
Bettina Grande just shared this info from the International #MECFS Conference, which is taking place today and tomorrow:
Prof. Kristian Sommerfelt (Norway) shared devastating data:
50% of severe #MECFS patients worsened over time.
0% of very severe ME patients improved.
This is disease progression.
#PEM must be recognized, understood – and avoided.
#MEAwarenessDay
#MECFS2025
#PEMisnotNegotiable