home.social

#pemisnotnegotiable — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pemisnotnegotiable, aggregated by home.social.

fetched live
  1. Bettina Grande just shared this info from the International #MECFS Conference, which is taking place today and tomorrow:

    Prof. Kristian Sommerfelt (Norway) shared devastating data:
    50% of severe #MECFS patients worsened over time.
    0% of very severe ME patients improved.
    This is disease progression.
    #PEM must be recognized, understood – and avoided.
    #MEAwarenessDay
    #MECFS2025
    #PEMisnotNegotiable