#invisibledisabilitiesweek — Public Fediverse posts

For #InvisibleDisabilitiesWeek: One of my more debilitating symptoms is hyperacusis—a sensitivity to sound & vibration—that causes pain & extreme fatigue. This #embroidery, sensorium (2018), depicts that hypersensitivity. I also wrote a piece of music about this. Listen here: https://ko-fi.com/s/872acbb154

For #InvisibleDisabilitiesWeek: The paresthesia/tingling in my hands doesn't usually interfere with my day to day but it worsens during my migraines. This #symptomatology #embroidery maps one of those days: push, pull, & tingle (2018)

For #InvisibleDisabilitiesWeek: One of my more disconcerting #MECFS symptoms is the paresthesia/tingling on my tongue. It worsens whenever I overextend myself. This #symptomatology #embroidery maps how my tongue usually feels: paresthesia (tongue 2) 2018

For #InvisibleDisabilitiesWeek: May Thurner Syndrome (#IliacVein compression syndrome) seems to be a common comorbidity with #MECFS. This #symptomatology #embroidery is based off a venogram of my stent: deep dilation (2025)

For #InvisibleDisabilitiesWeek: One of my main #MECFS symptoms is multiple paresthesias (tingling). This #symptomatology #embroidery maps the paresthesias in my face: paresthesia (face) 2016

For #InvisibleDisabilitiesWeek: This #symptomatology #embroidery, neuraesthenia (2017) explores the sensation of post-exertional malaise (PEM), the hallmark symptom of #MECFS. When I overextend myself physically, cognitively, or emotionally, I am too fatigued to even wash myself.

This week is #InvisibleDisabilitiesWeek. My chronic illnesses are an invisible disability, especially #MECFS. ME/CFS is a neuroimmune disease that has a worse quality of life measurement than any other. This #Sciart #symptomatology #embroidery, body map, maps out my symptoms as they were in 2016.

For #InvisibleDisabilitiesWeek: The heaviness of the stitching on this #SciArt #symptomatology #embroidery represents how heavy and tingly my feet become during #MECFS flares and migraines.

For #InvisibleDisabilitiesWeek: The paresthesia/tingling in my hands doesn't usually interfere with my day to day but it worsens during my migraines. This #SciArt #symptomatology #embroidery maps one of those days.

For #InvisibleDisabilitiesWeek: One of my more disconcerting #MECFS symptoms is the paresthesia/tingling on my tongue. It worsens whenever I overextend myself. This #SciArt #symptomatology #embroidery maps how my tongue usually feels.

For #InvisibleDisabilitiesWeek & #WIPwednesday: May Thurner Syndrome (#IliacVein compression syndrome) seems to be a common comorbidity with #MECFS. This #symptomatology #embroidery in progress is based off a venogram of my stent. 🧶🩺🧪🐡

For #InvisibleDisabilitiesWeek: One of my main #MECFS symptoms is multiple paresthesias (tingling). This #SciArt #symptomatology #embroidery maps the paresthesias in my face.

For #InvisibleDisabilitiesWeek: This #SciArt #symptomatology #embroidery explores the sensation of post-exertional malaise (PEM), the hallmark symptom of #MECFS. When I overextend myself physically, cognitively, or emotionally, I am too fatigued to even wash myself.

This week is #InvisibleDisabilitiesWeek. I suffer from migraines, scintillating scotoma, asthma, several digestive disorders, Long COVID, chronic inflammation in my foot, tendonopathy, anxiety disorder, and a congenital hip defect. I'm also dealing with deteriorating bone mass. It especially affects my teeth, which fall apart with disturbing frequency.

At my absolute fittest, I was also at my most disabled. I looked like a fitness model yet could barely walk. No one wants to give their seat up on the bus for someone who looks young and healthy. Just because someone looks fit and healthy doesn't mean they aren't disabled. #InvisibleDisability #ChronicPain

This week is #InvisibleDisabilitiesWeek. My chronic illnesses are an invisible disability, especially #MECFS: a neuroimmune disease that has a worse quality of life measurement than any other. This #SciArt #symptomatology #embroidery maps out my symptoms as they were in 2016.

#InvisibleDisabilitiesWeek Hey all, I'm bipolar. For me this mostly means that I go through cycles where I am unable to organize my thoughts and feel like I can't do anything, then get too obsessed with different ideas letting go of all rationality, followed by long (months) bouts of depression.