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#respectforpersons — Public Fediverse posts

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  1. CW: crisis lines - respect for persons

    I believe there is going to be (and already is) intense pressure for access to crisis conversations as data. Rationalized by de-identifying. This will be justified as helping people in crisis. Driving force will be monetizing & training models for #Bioinformatics, so-called #AI, #HealthBots #MentalHealth screening #Suicide #Depression screening, #Surveillance.

    My advocacy is for #Consent and #RespectForPersons. These conversations should be off-limits except for human quality control. Then delete them after say 6 months.

    Even research on such sensitive conversations should have consent, including from volunteers. Not possible in crisis moments.

    Non-profit corporations in US already have access to the data in-house. Largely unregulated. #CrisisTextLine #TheTrevorProject #VibrantEmotionalHealth (administrator of #988Lifeline).

    To overcome the powerful attraction for the data, will require organizing & resistance. On the horizon. Thanks for listening.