#mitodisease — Public Fediverse posts

Do you think you have Mitochondrial Disease or Dysfunction, via Covid or other means? Trying to find out if it was congenital or morphic? Don’t know what these words mean or where to start?

Check out this Mito Action lecture from my biogeneticist https://www.mitoaction.org/resources/is-it-really-mito/

#Mito #MitoDisease #MitoDysfunction

There are four categories for #MECFS. The ones who’ve had it the longest with multiple immune events (including but not limited to infections) are the ones who get/stay worse.

MEAction says 95 percent never recover from MECFS.

I hovered between mild and moderate for decades. Immune events and #MitoDisease (seen in #LongCovid too) kicked me between moderate and severe for the last 4-5 years.

Supplements and meds keep me from being very severe. I’m sure MECFS #microclots made it worse too.

Guanfacine and Clonidine are tried true meds used for #hyperPOTS, and NAC is critical to #MitoDisease — both #POTS and Mito are present in #LongCovid so I’m not surprised it’s helping some LC patients.

I was on both for a while and it helped but only so much. I swapped Guanfacine for Clonidine and it’s much the same, a better level but not enough to say my brain fog is gone. Guessing those of us with spinal issues amping neuroinflammation struggle more here.

https://medicine.yale.edu/news-article/potential-new-treatment-for-brain-fog-in-long-covid-patients/