home.social

#connectivetissuedisorder — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #connectivetissuedisorder, aggregated by home.social.

  1. CW: CW - medical fears; blood test to screen for screen for a possible connective tissue disease

    We've got a blood test in about 9 hours.

    They're going to check levels of 2 proteins within our complement system -- specifically C3 and C4 -- and check our levels of antinuclear antibodies via an ANA test, which the notes on our NHS record describe as a "Connective Tissue Disease Screen".

    Our notes also state that there may be a "referral to [a chronic fatigue] service, [depending] on results".

    NGL: feeling like we're kinda screwed whatever happens.

    A null result won't suddenly make us better or less in pain, especially our hand joints.

    A positive result could mean who knows how long in terms of a referral with the NHS.

    A borderline or unclear result might make things even more difficult.

    Please don't wish us good luck or tell us that it'll all be okay: we cannot abide toxic positivity.

    Just be there and feel free to reach out if you want. You won't offend us. Equally appreciate you've got your own shit going on.

    #BloodTest #ConnectiveTissueDisorder #disability #JointPain #FuckLifeInGeneral #FuckTheNHS

  2. CW: CW - medical fears; blood test to screen for screen for a possible connective tissue disease

    We've got a blood test in about 9 hours.

    They're going to check levels of 2 proteins within our complement system -- specifically C3 and C4 -- and check our levels of antinuclear antibodies via an ANA test, which the notes on our NHS record describe as a "Connective Tissue Disease Screen".

    Our notes also state that there may be a "referral to [a chronic fatigue] service, [depending] on results".

    NGL: feeling like we're kinda screwed whatever happens.

    A null result won't suddenly make us better or less in pain, especially our hand joints.

    A positive result could mean who knows how long in terms of a referral with the NHS.

    A borderline or unclear result might make things even more difficult.

    Please don't wish us good luck or tell us that it'll all be okay: we cannot abide toxic positivity.

    Just be there and feel free to reach out if you want. You won't offend us. Equally appreciate you've got your own shit going on.

    #BloodTest #ConnectiveTissueDisorder #disability #JointPain #FuckLifeInGeneral #FuckTheNHS

  3. CW: CW - medical fears; blood test to screen for screen for a possible connective tissue disease

    We've got a blood test in about 9 hours.

    They're going to check levels of 2 proteins within our complement system -- specifically C3 and C4 -- and check our levels of antinuclear antibodies via an ANA test, which the notes on our NHS record describe as a "Connective Tissue Disease Screen".

    Our notes also state that there may be a "referral to [a chronic fatigue] service, [depending] on results".

    NGL: feeling like we're kinda screwed whatever happens.

    A null result won't suddenly make us better or less in pain, especially our hand joints.

    A positive result could mean who knows how long in terms of a referral with the NHS.

    A borderline or unclear result might make things even more difficult.

    Please don't wish us good luck or tell us that it'll all be okay: we cannot abide toxic positivity.

    Just be there and feel free to reach out if you want. You won't offend us. Equally appreciate you've got your own shit going on.

    #BloodTest #ConnectiveTissueDisorder #disability #JointPain #FuckLifeInGeneral #FuckTheNHS

  4. CW: CW - medical fears; blood test to screen for screen for a possible connective tissue disease

    We've got a blood test in about 9 hours.

    They're going to check levels of 2 proteins within our complement system -- specifically C3 and C4 -- and check our levels of antinuclear antibodies via an ANA test, which the notes on our NHS record describe as a "Connective Tissue Disease Screen".

    Our notes also state that there may be a "referral to [a chronic fatigue] service, [depending] on results".

    NGL: feeling like we're kinda screwed whatever happens.

    A null result won't suddenly make us better or less in pain, especially our hand joints.

    A positive result could mean who knows how long in terms of a referral with the NHS.

    A borderline or unclear result might make things even more difficult.

    Please don't wish us good luck or tell us that it'll all be okay: we cannot abide toxic positivity.

    Just be there and feel free to reach out if you want. You won't offend us. Equally appreciate you've got your own shit going on.

    #BloodTest #ConnectiveTissueDisorder #disability #JointPain #FuckLifeInGeneral #FuckTheNHS

  5. CW: CW - medical fears; blood test to screen for screen for a possible connective tissue disease

    We've got a blood test in about 9 hours.

    They're going to check levels of 2 proteins within our complement system -- specifically C3 and C4 -- and check our levels of antinuclear antibodies via an ANA test, which the notes on our NHS record describe as a "Connective Tissue Disease Screen".

    Our notes also state that there may be a "referral to [a chronic fatigue] service, [depending] on results".

    NGL: feeling like we're kinda screwed whatever happens.

    A null result won't suddenly make us better or less in pain, especially our hand joints.

    A positive result could mean who knows how long in terms of a referral with the NHS.

    A borderline or unclear result might make things even more difficult.

    Please don't wish us good luck or tell us that it'll all be okay: we cannot abide toxic positivity.

    Just be there and feel free to reach out if you want. You won't offend us. Equally appreciate you've got your own shit going on.

    #BloodTest #ConnectiveTissueDisorder #disability #JointPain #FuckLifeInGeneral #FuckTheNHS