#long_qt_syndrome — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #long_qt_syndrome, aggregated by home.social.
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Well, I just sent the message.
I don't *want* an ICD, or an S-ICD. Honestly, the surgical implications of this and the change that it could make to my life are *massive*. However, I also don't want to land in a place where I can be potentially treated sub-par because of my being trans.
I don't like this timeline, but I'm going to still fight for my future.
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I am so frustrated. In the last few days I’ve had multiple dizzy spells and low blood pressure events. I’ve had my heart rate drop into the mid 40s, and I’ve cut my hands up outside because I couldn’t feel them.
My body hates me, and the feeling is mutual. I’m also very very tired. I’m going to blame my #betablockers, my #long_qt_syndrome and general #health
This is particularly frustrating because last week, I felt invincible.