#ata188 — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ata188, aggregated by home.social.
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Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis
“ECTRIMS2022 – ATA188 Still Easing Disability in Progressive MS Patients
Up to 4 years of EMBOLD trial findings also show potential for remyelination”(I missed this write up previously).
This is the trial I am in. They are expanding recruitment to RRMS soon.
I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.
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Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis
“ECTRIMS2022 – ATA188 Still Easing Disability in Progressive MS Patients
Up to 4 years of EMBOLD trial findings also show potential for remyelination”(I missed this write up previously).
This is the trial I am in. They are expanding recruitment to RRMS soon.
I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.
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Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis
“ECTRIMS2022 – ATA188 Still Easing Disability in Progressive MS Patients
Up to 4 years of EMBOLD trial findings also show potential for remyelination”(I missed this write up previously).
This is the trial I am in. They are expanding recruitment to RRMS soon.
I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.
-
Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis
“ECTRIMS2022 – ATA188 Still Easing Disability in Progressive MS Patients
Up to 4 years of EMBOLD trial findings also show potential for remyelination”(I missed this write up previously).
This is the trial I am in. They are expanding recruitment to RRMS soon.
I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.
-
Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis
“ECTRIMS2022 – ATA188 Still Easing Disability in Progressive MS Patients
Up to 4 years of EMBOLD trial findings also show potential for remyelination”(I missed this write up previously).
This is the trial I am in. They are expanding recruitment to RRMS soon.
I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.
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6 months since 1st transfusion.
At my visit 11/18 the EDSS rater said I was much improved from last rating.
I’ve noticed less fatigue, less spasticity, walking distance and pace better // from 1/4 mile to 1 mile. Average total of 2 miles per day.
Cognitively sharper. Reading graduate level monographs and reteaching myself Latin (I took 3 years in high school).
For me it’s a win. But I am blinded to whether I have active drug.
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6 months since 1st transfusion.
At my visit 11/18 the EDSS rater said I was much improved from last rating.
I’ve noticed less fatigue, less spasticity, walking distance and pace better // from 1/4 mile to 1 mile. Average total of 2 miles per day.
Cognitively sharper. Reading graduate level monographs and reteaching myself Latin (I took 3 years in high school).
For me it’s a win. But I am blinded to whether I have active drug.
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The study
is to find the first ever medication for nonactive Ptogressive MS.The drug trial Is by Atara Biotherapeutics anti EBV T cell transfusions. #ATA188
They are starting a trial for relapsing #MS. See. Link. https://multiplesclerosisnewstoday.com/ata188/
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The study
is to find the first ever medication for nonactive Ptogressive MS.The drug trial Is by Atara Biotherapeutics anti EBV T cell transfusions. #ATA188
They are starting a trial for relapsing #MS. See. Link. https://multiplesclerosisnewstoday.com/ata188/
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I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.
I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.
Retrained as a counseling psych but left for good in 2016 after bad relapse.
Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.
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I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.
I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.
Retrained as a counseling psych but left for good in 2016 after bad relapse.
Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.
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I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.
I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.
Retrained as a counseling psych but left for good in 2016 after bad relapse.
Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.
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#MultipleSclerosis #MSChat #ATA188 trial update.
Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.
I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.
The sidewalks are covered with 3” snow and there’s a severe weather alert!
Both my Neuro + Study Manager took off early for T-day.
I need to find out if the substitutes + MRI tech will make it in for EDSS.
AAGH! Bit of a whinge.
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#MultipleSclerosis #MSChat #ATA188 trial update.
Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.
I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.
The sidewalks are covered with 3” snow and there’s a severe weather alert!
Both my Neuro + Study Manager took off early for T-day.
I need to find out if the substitutes + MRI tech will make it in for EDSS.
AAGH! Bit of a whinge.
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#MultipleSclerosis #MSChat #ATA188 trial update.
Day 185 since 1st infusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.
I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.
The sidewalks are covered with 3” snow and there’s a severe weather alert!
Both my Neuro + Study Manager took off early for T-day.
I need to find out if the substitutes + MRI tech will make it to the hospital.
AAGH! Bit of a whinge.
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No worries.
You can always use #MSChat plus more specialized hashtags so folks can find your post in the larger #MSCommunity and in the subtopic group that interests you.
I’ve had #MS since 1984 and am just recently getting into creating #MSArt.
The picture is a card I made for my #Neuro for “target practice” on where the LP goes. 🤣
I’ve had 3 LPs this year as part of the #ATA188 trial for nonactive #SPMS.
Thank you for your insight!
❤️Anne
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No worries.
You can always use #MSChat plus more specialized hashtags so folks can find your post in the larger #MSCommunity and in the subtopic group that interests you.
I’ve had #MS since 1984 and am just recently getting into creating #MSArt.
The picture is a card I made for my #Neuro for “target practice” on where the LP goes. 🤣
I’ve had 3 LPs this year as part of the #ATA188 trial for nonactive #SPMS.
Thank you for your insight!
❤️Anne
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Hello!
Thank you much for looking in.
I am particularly interested in #ArmChairTravelling and #StreetPhotography due to my #Disability with #MultipleSclerosis and my participation in the drug trial for #ATA188 #EBV #TCells and #Neurology. #ATARABIO.
Please boost the #MultipleSclerosis hashtag so we can come together as PwMS, medical personnel and researchers to share info and expertise.
You are welcome to check my #ATAUpdates on my #SPMS progress and my #StreetPhotography on my profile page.
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Hello!
Thank you much for looking in.
I am particularly interested in #ArmChairTravelling and #StreetPhotography due to my #Disability with #MultipleSclerosis and my participation in the drug trial for #ATA188 #EBV #TCells and #Neurology. #ATARABIO.
Please boost the #MultipleSclerosis hashtag so we can come together as PwMS, medical personnel and researchers to share info and expertise.
You are welcome to check my #ATAUpdates on my #SPMS progress and my #StreetPhotography on my profile page.
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@jsabatino37 Hi Joe, I have non active SPMS and an in the AtaraBio drug trial of #ATA188 t-cell transfusions.
Happy to have your experience here and I’ll answer any questions you have. If you search #ATA188 my update posts should appear.
Best wishes
Anne
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@jsabatino37 Hi Joe, I have non active SPMS and an in the AtaraBio drug trial of #ATA188 t-cell transfusions.
Happy to have your experience here and I’ll answer any questions you have. If you search #ATA188 my update posts should appear.
Best wishes
Anne
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Looking for #neurologists, #neuroscience, #journals, people with interest in #MultipleSclerosis, #MS #MRI #ClinicalTrials, #research, #ATA188 to follow and connect.
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Looking for #neurologists, #neuroscience, #journals, people with interest in #MultipleSclerosis, #MS #MRI #ClinicalTrials, #research, #ATA188 to follow and connect.
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#ATA188 update #MultipleSclerosis Day 175 since 1st #EBV Tcell transfusion.
Walked entire front and backside of hill from my house 15 minutes, 0.65 miles and 11 vertical “floors” per fitbit (110 feet elevation total there and back).
Have not walked this since early Spring 2021 due to pain and fatigue upon completion. 🍾 Celebrate!
My Walking and cognitive skills are better.
Other weird #MS things still here e.g. debilitating joint pain when temp drops below freezing etc.
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#ATA188 update #MultipleSclerosis Day 175 since 1st #EBV Tcell transfusion.
Walked entire front and backside of hill from my house 15 minutes, 0.65 miles and 11 vertical “floors” per fitbit (110 feet elevation total there and back).
Have not walked this since early Spring 2021 due to pain and fatigue upon completion. 🍾 Celebrate!
My Walking and cognitive skills are better.
Other weird #MS things still here e.g. debilitating joint pain when temp drops below freezing etc.
-
#ATA188 update #MultipleSclerosis Day 175 since 1st #EBV Tcell transfusion.
Walked entire front and backside of hill from my house 15 minutes, 0.65 miles and 11 vertical “floors” per fitbit (110 feet elevation total there and back).
Have not walked this since early Spring 2021 due to pain and fatigue upon completion. 🍾 Celebrate!
My Walking and cognitive skills are better.
Other weird #MS things still here e.g. debilitating joint pain when temp drops below freezing etc.