#ata188 — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ata188, aggregated by home.social.
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Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis
“ECTRIMS2022 – ATA188 Still Easing Disability in Progressive MS Patients
Up to 4 years of EMBOLD trial findings also show potential for remyelination”(I missed this write up previously).
This is the trial I am in. They are expanding recruitment to RRMS soon.
I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.
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I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.
I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.
Retrained as a counseling psych but left for good in 2016 after bad relapse.
Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.
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#ATA188 update #MultipleSclerosis Day 175 since 1st #EBV Tcell transfusion.
Walked entire front and backside of hill from my house 15 minutes, 0.65 miles and 11 vertical “floors” per fitbit (110 feet elevation total there and back).
Have not walked this since early Spring 2021 due to pain and fatigue upon completion. 🍾 Celebrate!
My Walking and cognitive skills are better.
Other weird #MS things still here e.g. debilitating joint pain when temp drops below freezing etc.