#terminalillness — Public Fediverse posts

First it was a walking stick.
Then crutches.

Now I've ordered myself a wheelchair.

I suppose I should now consider myself un-abled, and should start thinking about selling my MX-5 😪

#TerminalIllness #Mobility

First it was a walking stick.
Then crutches.

Now I've ordered myself a wheelchair.

I suppose I should now consider myself un-abled, and should start thinking about selling my MX-5 😪

#TerminalIllness #Mobility

For me, a road to death, that you're aware of, includes having personal dignity & being able to live out your last days/weeks/months/years with as much joy & comfort as possible. I don't believe that terminally ill people deserve lesser than humane, compassionate care. I believe in protecting their fragile conditions, supporting them(and some of their loved ones) on difficult days & helping them to plan their own end of life journey.

#DeathDoula #Dignity #Respect #BeHumane #BeKind #BeCompassionate #TerminalIllness #HealthCare #Hospice

For me, a road to death, that you're aware of, includes having personal dignity & being able to live out your last days/weeks/months/years with as much joy & comfort as possible. I don't believe that terminally ill people deserve lesser than humane, compassionate care. I believe in protecting their fragile conditions, supporting them(and some of their loved ones) on difficult days & helping them to plan their own end of life journey.

#DeathDoula #Dignity #Respect #BeHumane #BeKind #BeCompassionate #TerminalIllness #HealthCare #Hospice

We Live In The Shadowlands

Several years ago, I watched Shadowlands and was deeply touched. The movie tells the true story of the author C.S. Lewis (Jack), who though an award-winning author, leads a relatively passionless life until he meets an American divorcee, Joy Gresham. It is the beginning of a deep love, a love that changes both of them in a powerful way, and deepens their faith in God. But their time together is short as Joy becomes terminally ill with cancer.

Sometimes I wake up in the middle of the night afraid that something horrible has happened to someone that I love. So I pray for everyone I can think of. I reach my hand over and draw comfort from the warmth and breath of my wife who still sleeps beside me. Slowly my fear ebbs away because for another night the Angel of Death has passed over the doors of those who are closest to me. (Though I do not think it has very much to do with my prayers).

I want to pray as hard for everyone in the world as I pray for my family and friends. The Angel of Death does not always pass over. I do not want to live my life in fear. I do not want to be afraid of the pain that comes with being close to people and thereby miss the happiness that comes from their presence.

In the movie, Joy, in pushing Jack to be present to ALL of life, states: “We can’t have the happiness of yesterday without the pain of today. That’s the deal.”

We live in the Shadowlands, between the sunrise and sunset. But the sun is always present and as long as I cast a shadow, it means that I am alive. Alive to live and love and care and hurt to the fullest of my being.

That’s the deal.

(November 2007)

We Live In The Shadowlands

Several years ago, I watched Shadowlands and was deeply touched. The movie tells the true story of the author C.S. Lewis (Jack), who though an award-winning author, leads a relatively passionless life until he meets an American divorcee, Joy Gresham. It is the beginning of a deep love, a love that changes both of them in a powerful way, and deepens their faith in God. But their time together is short as Joy becomes terminally ill with cancer.

Sometimes I wake up in the middle of the night afraid that something horrible has happened to someone that I love. So I pray for everyone I can think of. I reach my hand over and draw comfort from the warmth and breath of my wife who still sleeps beside me. Slowly my fear ebbs away because for another night the Angel of Death has passed over the doors of those who are closest to me. (Though I do not think it has very much to do with my prayers).

I want to pray as hard for everyone in the world as I pray for my family and friends. The Angel of Death does not always pass over. I do not want to live my life in fear. I do not want to be afraid of the pain that comes with being close to people and thereby miss the happiness that comes from their presence.

In the movie, Joy, in pushing Jack to be present to ALL of life, states: “We can’t have the happiness of yesterday without the pain of today. That’s the deal.”

We live in the Shadowlands, between the sunrise and sunset. But the sun is always present and as long as I cast a shadow, it means that I am alive. Alive to live and love and care and hurt to the fullest of my being.

That’s the deal.

(November 2007)

https://www.youtube.com/shorts/HJ9XiDYQ5d8?is=Y35OgiM0NqVqnXV9

#EliLily #Drug #tRump #USA #America #Politics #Congress #Healthcare #LifeSaving #TerminalIllness

https://www.youtube.com/shorts/HJ9XiDYQ5d8?is=Y35OgiM0NqVqnXV9

#EliLily #Drug #tRump #USA #America #Politics #Congress #Healthcare #LifeSaving #TerminalIllness

Wife of "Mrs Brown's Boys" Star Dermot O'Neill Faces Terminal Cancer Diagnosis

Patricia 'Chickie' Maguire, wife of Mrs Brown's Boys actor Dermot O'Neill, has terminal stage four cancer. Doctors found tumors in Spain.

#MrsBownsBoys, #DermotONeill, #CancerDiagnosis, #PatriciaMaguire, #TerminalIllness

https://newsletter.tf/mrs-browns-boys-actor-wife-cancer-diagnosis/

Patricia Maguire, wife of Mrs Brown's Boys actor Dermot O'Neill, has been diagnosed with terminal stage four cancer, given only months to live.

#MrsBownsBoys, #DermotONeill, #CancerDiagnosis, #PatriciaMaguire, #TerminalIllness
https://newsletter.tf/mrs-browns-boys-actor-wife-cancer-diagnosis/

@lifespannv @dhhs_nevada #ADSDFail #APSUnsubstantiatedLie #NameAndShame #NevadaAPS #CoerciveControl #VulnerableAdultAbuse #TerminalIllness #RefusalNoticeFraud #DisabilityRights #GovCHA

(kind of a sub-toot, but in the context of my family drama rather than my mastodon drama)

If you have a someone who is about to die, there's no such thing as "too early" when it comes to planning for their death.

Invite the people who want to say goodbye early rather than late. If the person lives longer than you expected, all good, and they might get a chance to say goodbye twice. Don't wait till the person who is leaving has drifted so far away that you've lost that chance for connection.

Don't prevent people from talking about death and dying if that's what they need. People have the right to opt out but it's disrespectful to shut down that conversation for other people.

There is nothing wrong or weird about planning the funeral and memorial service while the person is still alive. The shock of grief does weird things to families and friends, and ideally you shouldn't be wrestling with funeral logistics while in that state.

#dying #TerminalIllness

(kind of a sub-toot, but in the context of my family drama rather than my mastodon drama)

If you have a someone who is about to die, there's no such thing as "too early" when it comes to planning for their death.

Invite the people who want to say goodbye early rather than late. If the person lives longer than you expected, all good, and they might get a chance to say goodbye twice. Don't wait till the person who is leaving has drifted so far away that you've lost that chance for connection.

Don't prevent people from talking about death and dying if that's what they need. People have the right to opt out but it's disrespectful to shut down that conversation for other people.

There is nothing wrong or weird about planning the funeral and memorial service while the person is still alive. The shock of grief does weird things to families and friends, and ideally you shouldn't be wrestling with funeral logistics while in that state.

#dying #TerminalIllness

I did not have "wake up, cough, puke, be dizzy for hours" on my bingo card for today.

#ChronicIllness #TerminalIllness

I did not have "wake up, cough, puke, be dizzy for hours" on my bingo card for today.

#ChronicIllness #TerminalIllness

Critically urgent PF & Aspergillosis care.

Terminally ill patient with complex pulmonary/genetic conditions faces systemic barriers. Any physician able to provide life-saving evaluation, please respond. #LifeSavingCare #PulmonaryFibrosis #Bronchiectasis #CFTRRD #TerminalIllness

https://celestiaquixs.com/urgent-pulmonary-fibrosis-care/?utm_source=mastodon&utm_medium=jetpack_social

Cinema loves dying girls who never get sick, never get ugly, and never disrupt the romance. Three films, one lie: terminal illness as a decorative subplot.
#FilmCriticism #MovieReview #TerminalIllness #PlotDevice #Cancer #Movies #Narrative #GenderPolitics #Romance #BucketListMovies #IndieFilm
https://pablohoneyfish.wordpress.com/2026/01/07/the-aestheticization-of-mortality-a-comparative-analysis-of-terminal-illness-narratives-in-boardwalk-winter-life-in-a-year-and-me-and-earl-and-the-dying-girl/

Cinema loves dying girls who never get sick, never get ugly, and never disrupt the romance. Three films, one lie: terminal illness as a decorative subplot.
#FilmCriticism #MovieReview #TerminalIllness #PlotDevice #Cancer #Movies #Narrative #GenderPolitics #Romance #BucketListMovies #IndieFilm
https://pablohoneyfish.wordpress.com/2026/01/07/the-aestheticization-of-mortality-a-comparative-analysis-of-terminal-illness-narratives-in-boardwalk-winter-life-in-a-year-and-me-and-earl-and-the-dying-girl/

Protect the terminally ill from poverty (Petition)

https://campaigns.mariecurie.org.uk/page/159107/petition/1?ea.tracking.id=meta-feed-5BNEW&utm_medium=paid&utm_id=120235040317340531&utm_content=120236433093540531&utm_term=120236433093520531&utm_campaign=120235040317340531&fbclid=PAdGRzdgOLKypleHRuA2FlbQEwAGFkaWQBqyrGgyil83NydGMGYXBwX2lkDzU2NzA2NzM0MzM1MjQyNwABpwlcC0Bq6w4bLtZZ5_iJXX0yYDDevqhQ_JJj9m2LPVbsdyvTK4SIRQ8L_VQo_aem_ZQnuJFKyYMnfz54Yv89HNw&utm_source=facebook&campaign_id=120235040317340531&ad_id=120236433093540531

#terminalillness

#MultipleSclerosis #MS #MSSucks #TerminalIllness #TerminalDisease

https://multiplesclerosisnewstoday.com/columns/chairborne-a-column-by-ben-hofmeister/2025/04/10/you-cant-instant-professional-living-ms/

#RebeccaCarlton

Season 5 Episode 15 "Seize The Day"

#RandomBaywatch #lvdlpx #Baywatch #Cancer #Battle #BattlingCancer #Terminal #TerminalIllness #Dying #SeizeTheDay

Now that the Assisted Dying Bill here in the UK has passed the first hurdle in the line to becoming legal, I have to say I think the it's being rushed, and there needs to be a firm legal and medical framework put in place before assisted dying becomes law. Certainly our National Health Service as of now, is not equipped for a change as big as this. There also needs to be 100% watertight legal protection for vulnerable people who could be coerced into euthanasia. It needs more thought, though I absolutely do agree with the principle.
#AssistedDying #AssistedSuicide #TerminalIllness
https://www.independent.co.uk/news/uk/home-news/assisted-dying-bill-vote-result-mps-b2656018.html

Now that the Assisted Dying Bill here in the UK has passed the first hurdle in the line to becoming legal, I have to say I think it's being rushed, and there needs to be a firm legal and medical framework put in place before assisted dying becomes law. Certainly our National Health Service as of now, is not equipped for a change as big as this. There also needs to be 100% watertight legal protection for vulnerable people who could be coerced into euthanasia. It needs more thought, though I absolutely do agree with the principle.

#AssistedDying #AssistedSuicide #TerminalIllness

https://www.independent.co.uk/news/uk/home-news/assisted-dying-bill-vote-result-mps-b2656018.html

Friends when you need them

Cancer talk about death

https://venera.social/display/85a863ed-4365-be83-3bb8-c34387589966

Friends when you need them

Cancer talk about death

https://venera.social/display/85a863ed-4365-be83-3bb8-c34387589966

An important perspective on hospices. My sister was diagnosed with stage 4 incurable cancer about 18 months ago, she was initially horrified to receive a letter about palliative care, but her local hospice offers her so much more than just end of life care. This includes therapy, massages and any number of other outpatient services for her and her family.

https://www.npr.org/2023/12/28/1221648271/hospice-care-myths-jimmy-carter-end-of-life

#TerminalIllness #cancer #hospice

An important perspective on hospices. My sister was diagnosed with stage 4 incurable cancer about 18 months ago, she was initially horrified to receive a letter about palliative care, but her local hospice offers her so much more than just end of life care. This includes therapy, massages and any number of other outpatient services for her and her family.

https://www.npr.org/2023/12/28/1221648271/hospice-care-myths-jimmy-carter-end-of-life

#TerminalIllness #cancer #hospice

I've been quiet and patchy on social media for a while now - partly because of ongoing long COVID - which I've been transparent about - but also because my mother's dementia is worsening. Which I haven't chosen to talk openly about until now.

Dementia is a horrible terminal disease, and although my mother's has been kind to us as she still recognises the people closest to her and that is somewhat comforting as her world gets smaller and smaller, it is still devestating.

I am my mother's responsible person for everything - do your advance planning everyone! - and although we are well-organised this is still incredibly difficult and exhausting. For anyone who has waited for me to return emails or phone calls this is the primary reason, and again I thank you for your patience with my erratic schedule.

I will be travelling back to the mainland this weekend, returning next week, to help settle my mum into full-time care. The admin alone is astonishing, as those of you who have undertaken this process understand, but the details of moving a life from a home into a care facility is wrenching and fraught.

Have a good weekend and I'll see you soon,

Annetta

#GDEP #EndOfLife #Alzheimers #dementia #TerminalIllness #AdvancePlanning #care #PersonalTime #TimeOut #admin #forms #emotion #love

I've been quiet and patchy on social media for a while now - partly because of ongoing long COVID - which I've been transparent about - but also because my mother's dementia is worsening. Which I haven't chosen to talk openly about until now.

Dementia is a horrible terminal disease, and although my mother's has been kind to us as she still recognises the people closest to her and that is somewhat comforting as her world gets smaller and smaller, it is still devestating.

I am my mother's responsible person for everything - do your advance planning everyone! - and although we are well-organised this is still incredibly difficult and exhausting. For anyone who has waited for me to return emails or phone calls this is the primary reason, and again I thank you for your patience with my erratic schedule.

I will be travelling back to the mainland this weekend, returning next week, to help settle my mum into full-time care. The admin alone is astonishing, as those of you who have undertaken this process understand, but the details of moving a life from a home into a care facility is wrenching and fraught.

Have a good weekend and I'll see you soon,

Annetta

#GDEP #EndOfLife #Alzheimers #dementia #TerminalIllness #AdvancePlanning #care #PersonalTime #TimeOut #admin #forms #emotion #love

Florida Woman Fatally Shoots Dying Husband in an Apparent Murder/Suicide Pact that Did Not Workout as Intended
Daytona Beach Police Chief Jakari E. Young said at a 4 p.m. news conference that an elderly couple, Ellen Gilland, and her husband, Jerry Gilland, who was 77 a
https://newsviews.online/2023/01/21/florida-woman-fatally-shoots-dying-husband-in-an-apparent-murder-suicide-pact-that-did-not-workout-as-intended/
#News #criminaljustice #Florida #hospital #murdersuicide #terminalillness

A terminally-ill Kansas man’s hospital room was raided by cops because he used a weed vape and THC paste to ease the symptoms of the cancer that will kill him within weeks.
#medicalmarijuana #weed #cannabis #terminalillness #cancer #THC

https://www.msn.com/en-us/health/other/police-raid-hospital-room-of-terminally-ill-kansas-patient/ar-AA15Gv03

A terminally-ill Kansas man’s hospital room was raided by cops because he used a weed vape and THC paste to ease the symptoms of the cancer that will kill him within weeks.
#medicalmarijuana #weed #cannabis #terminalillness #cancer #THC

https://www.msn.com/en-us/health/other/police-raid-hospital-room-of-terminally-ill-kansas-patient/ar-AA15Gv03