#ivig — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ivig, aggregated by home.social.
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New #LongCovid case report:
“This patient provides exploratory evidence that high-dose intravenous immunoglobulin was associated with sustained clinical recovery from long COVID over 1 year of follow-up, accompanied by immunological changes…”
https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(26)00063-0/abstract
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Manitoba weighs ban on for-profit plasma donations after 2 deaths | CBC News: The National
12 March 2026
https://youtu.be/3-E4KmaQ3Mo -
🧵 ME/CFS & Long COVID: What Actually Helps 🚨 3,900+ patient reports ranked treatments by real-world impact. Here’s what worked 👇
✅ Pacing (Top-rated) ✅ IV fluids/electrolytes ✅ IVIG & lymphatic drainage ✅ Low-dose Naltrexone, NK/LK ✅ Compression stockings, antihistamines ✅ ADHD meds (brain fog) ✅ Melatonin (sleep)
❌ Graded Exercise Therapy (GET) – most harmful
🎯 Tailored treatment by symptom cluster = 🔑 #LongCOVID #MECFS #PatientExperience #LDN #IVIG #POTS
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California: New bill could require insurance to cover medication for rare autoimmune disease
California AB2105 would require insurance to cover IVIG treatment for PANS/PANDAS
bill tracker:
https://trackbill.com/bill/california-assembly-bill-2105-coverage-for-pandas-and-pans/2508395/#California #NEISvoid #PansPandas #PANS #PANDAS #IVIG #autoimmune #AutoimmuneDiseases
#AB2105 #HealthCare -
New US research:
Case-Control Study of Individuals With Small Fiber Neuropathy After COVID-19
https://www.neurology.org/doi/10.1212/NXI.0000000000200244
"92% of patients reported postexertional malaise characteristic of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)"
@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
#PwLC #SFN #IVIG @mecfs
#MEcfs #CFS #PwME -
#SmallFiberNeuropathy after #COVID19: A Key to #LongCOVID
https://www.medrxiv.org/content/10.1101/2023.11.07.23297764v1
"92% of [the #PostCovid] patients reported post-exertional malaise characteristic of ME/ #CFS and six patients underwent invasive cardiopulmonary exercise testing (iCPET), which demonstrated neurovascular dysregulation & dysautonomia consistent with #mecfs "
"#SFN is responsive to treatment with #IVIG"
@longcovid
#PwLC #postcovid19 #LC #Covidlonghaulers @mecfs
#PwME @covid19 #Coronavirus
#COVIDー19 #COVID -
A very interesting pilot study looking at small fiber neuropathy in #LongCovid.
Small fiber nerves are unmyelinated and/or thinly myelinated sensory and autonomic nerves. They are more prone to environmental damage, but can also repair themselves.Patients who received #IVIG showed >50% improvement.
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#IVIg for acute exacerbations of #ILD
https://www.atsjournals.org/doi/full/10.1513/AnnalsATS.201603-179PS
My sense is the #AEILD #ILDflare therapy is wildly site-specific, altho perhaps less so than it once was
Do you use IVIg for acute exacerbations of ILD, and if so, which and when?