#infrafrontier — Public Fediverse posts

We at #INFRAFRONTIER ERIC are deeply saddened by the sudden and unexpected news announcing the loss our scientific managing director Prof. Dr. Johannes Beckers, who passed yesterday. He was fully committed to his work leading this European infrastructure. May he rest in peace.

Finally, this work would not have been possible without the input and work from all my co-authors from UK, France, Italy and USA. I am grateful that I could be part of this journee and want to thank also the #FoundationForPraderWilliResearch (#FPWR) for their generous funding! I hope that this research may at some day contribute to improve the life of patients with #PraderWilliSyndrome (#PWS) or other #RareDiseases.

#TranslationalResearch #INFRAFRONTIER #IMPC

At @cnb_csic #csic we are glad to eventually have joined #INFRAFRONTIER ERIC as an observer country, representing Spain. This long-standing aspiration builds on nearly two decades of active collaboration with the European Mouse Mutant Archive (EMMA) 🐭🐭
https://www.infrafrontier.eu/news/spain-joins-infrafrontier-eric-as-observer/

“No child should suffer or die just because his or her disease is so rare that nobody cares. The dignity of each and every child must be respected regardless of his or her ethnic, national or social origin!” Christoph Klein at #INFRAFRONTIER meeting on #rarediseases in Munich.

Vídeo de la Jornada 2024 de presentación de infraestructuras europeas de investigación en ciencias biomédicas con participación española en el ISCIII: #EATRIS #ECRIN #ELIXIR #INSTRUCT #INFRAFRONTIER #BBMRI #EUOPENSCREEN #MIRRI #EUROBIOIMAGING #ERINHA
https://www.youtube.com/live/yLBcc0Kgrmg?si=IBmAgbQzP6vZImCn