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#ild — Public Fediverse posts

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  1. CW: Chronic &, terminal illness - well-written news article

    Beautifully written, and deeply resonating.
    The long middle of a chronically terminal illness is a rough one to endure, traverse, witness, accept, and talk about.

    theguardian.com/society/2026/m

    #SystemicSclerosis #ILD and #KidneyDisease is my long middle, on top of #BreastCancer survivor-ness, with scanxiety every few months - blood & kidney tests, CT scans, digestion tract monitoring. I'm not yet at dialysis, but know it's not too far away.

  2. CW: Chronic &, terminal illness - well-written news article

    Beautifully written, and deeply resonating.
    The long middle of a chronically terminal illness is a rough one to endure, traverse, witness, accept, and talk about.

    theguardian.com/society/2026/m

    #SystemicSclerosis #ILD and #KidneyDisease is my long middle, on top of #BreastCancer survivor-ness, with scanxiety every few months - blood & kidney tests, CT scans, digestion tract monitoring. I'm not yet at dialysis, but know it's not too far away.

  3. Living with Sarcoidosis is sitting in your car at the store and watching the incline thinking is it even worth it to go make a purchase?

    #Sarcoidosis #ChronicIllness #ILD

  4. Living with Sarcoidosis is sitting in your car at the store and watching the incline thinking is it even worth it to go make a purchase?

    #Sarcoidosis #ChronicIllness #ILD

  5. Wort der Woche 37: Digitalisierung

    Am 8. Sept. ist der Weltalphabetisierungstag. In diesem Jahr steht der Internationale Tag der Alphabetisierung unter dem Motto „Förderung der Alphabetisierung im digitalen Zeitalter“. Über das Lesen und Schreiben auf Papier hinaus ermöglicht Alphabetisierung im digitalen Zeitalter den Menschen, sicher und angemessen auf digitale Inhalte zuzugreifen, diese zu verstehen, zu bewerten, zu erstellen, zu kommunizieren und sich damit auseinanderzusetzen. Alphabetisierung ist auch von zentraler Bedeutung für die Förderung des kritischen Denkens, die Unterscheidung glaubwürdiger Informationen und die Navigation in komplexen Informationsumgebungen.

    politik-lexikon.at/digitalisie

    Linktipp Nr. 1: politik-lernen.at/dce_2025 Europäisches Jahr der Digital Citizenship Education 2025
    Linktipp Nr. 2: politik-lernen.at/folge26_rich Richtig & Falsch Folge 26: Handyverbot oder Medienkompetenz?

    #politiklexikon #wortderwoche #PolitischeBildung #dcey2025 #digitalisierung #alphabeth #ild #ild25

  6. Wort der Woche 37: Digitalisierung

    Am 8. Sept. ist der Weltalphabetisierungstag. In diesem Jahr steht der Internationale Tag der Alphabetisierung unter dem Motto „Förderung der Alphabetisierung im digitalen Zeitalter“. Über das Lesen und Schreiben auf Papier hinaus ermöglicht Alphabetisierung im digitalen Zeitalter den Menschen, sicher und angemessen auf digitale Inhalte zuzugreifen, diese zu verstehen, zu bewerten, zu erstellen, zu kommunizieren und sich damit auseinanderzusetzen. Alphabetisierung ist auch von zentraler Bedeutung für die Förderung des kritischen Denkens, die Unterscheidung glaubwürdiger Informationen und die Navigation in komplexen Informationsumgebungen.

    politik-lexikon.at/digitalisie

    Linktipp Nr. 1: politik-lernen.at/dce_2025 Europäisches Jahr der Digital Citizenship Education 2025
    Linktipp Nr. 2: politik-lernen.at/folge26_rich Richtig & Falsch Folge 26: Handyverbot oder Medienkompetenz?

    #politiklexikon #wortderwoche #PolitischeBildung #dcey2025 #digitalisierung #alphabeth #ild #ild25

  7. Happy International lolita day (it's always on the first Saturday in June and December). We went out for breakfast and scones and then got caught in a storm.
    #ild #internationalLolitaDay #lolitaFashion #eglcommunity

  8. Happy International lolita day (it's always on the first Saturday in June and December). We went out for breakfast and scones and then got caught in a storm.
    #ild #internationalLolitaDay #lolitaFashion #eglcommunity

  9. I am... not entirely sure what an 8 back would feel like but I suspect that I am going to need to heap the cushions on.

    ... hm. okay. The #Sabai rep said that the seat cushions on the 86" are 1.8 lbs/cubic inch density and 28 firmness. If I'm understanding this correctly, the 28 is the foam's #ILD rating. The foam I bought from Joann for replacement cushioning has an ILD score of 36, so it's somewhat firmer.

    *drums fingers on table*
    6/7

  10. I am... not entirely sure what an 8 back would feel like but I suspect that I am going to need to heap the cushions on.

    ... hm. okay. The #Sabai rep said that the seat cushions on the 86" are 1.8 lbs/cubic inch density and 28 firmness. If I'm understanding this correctly, the 28 is the foam's #ILD rating. The foam I bought from Joann for replacement cushioning has an ILD score of 36, so it's somewhat firmer.

    *drums fingers on table*
    6/7

  11. I’m a beginner navigating the #ILD #LongCovid world.

    Tips and resources (and virtual hugs) welcome/needed.

    💜

  12. Dear ILD Community,

    I am pleased to share with you our recently published article:

    🚨Genetics and environmental factors in interstitial lung diseases: current and future perspectives on early diagnosis of high-risk cohorts 🚨

    Great teamwork! Many thanks Stefan Stanel and Jack Callum 👏👏 #ManchesterILDteam

    #Genetics #ILD #FPF #telomere 🫁🧬

    frontiersin.org/articles/10.33

  13. Dear ILD Community,

    I am pleased to share with you our recently published article:

    🚨Genetics and environmental factors in interstitial lung diseases: current and future perspectives on early diagnosis of high-risk cohorts 🚨

    Great teamwork! Many thanks Stefan Stanel and Jack Callum 👏👏 #ManchesterILDteam

    #Genetics #ILD #FPF #telomere 🫁🧬

    frontiersin.org/articles/10.33

  14. I would like to share our recently published article:

    Present and future perspectives in early diagnosis and monitoring for progressive fibrosing interstitial lung diseases

    #ILD #PFILD #PPF #earlydiagnosis #monitoring #perspectives 🫁 🧬

    frontiersin.org/articles/10.33

  15. I would like to share our recently published article:

    Present and future perspectives in early diagnosis and monitoring for progressive fibrosing interstitial lung diseases

    #ILD #PFILD #PPF #earlydiagnosis #monitoring #perspectives 🫁 🧬

    frontiersin.org/articles/10.33

  16. My coord for December ILD this past weekend ~
    JSK: AP
    Bolero: Little Dipper
    Bag: AP
    Socks: The Black Ribbon
    Shoes: Angelic Imprint
    Headdress: Bodyline
    Jewelry: off brand and hand made

    #lolitafashion #jfashion #egl #ild

  17. My coord for December ILD this past weekend ~
    JSK: AP
    Bolero: Little Dipper
    Bag: AP
    Socks: The Black Ribbon
    Shoes: Angelic Imprint
    Headdress: Bodyline
    Jewelry: off brand and hand made

    #lolitafashion #jfashion #egl #ild

  18. Are people's retrospective assessments different from the mean of their intensive longitudinal data of the same period?

    IJsbrand Leertouwer investigated this in this pre-print, forthcoming in the Journal for Person-Oriented Research:

    psyarxiv.com/nc5uq/

    #ESM #EMA #Psychometrics #Measurement #ILD #Dynamics #JPOR

  19. #ICUreadings

    #IVIg for acute exacerbations of #ILD

    atsjournals.org/doi/full/10.15

    My sense is the #AEILD #ILDflare therapy is wildly site-specific, altho perhaps less so than it once was

    Do you use IVIg for acute exacerbations of ILD, and if so, which and when?

  20. #ICUreadings

    #IVIg for acute exacerbations of #ILD

    atsjournals.org/doi/full/10.15

    My sense is the #AEILD #ILDflare therapy is wildly site-specific, altho perhaps less so than it once was

    Do you use IVIg for acute exacerbations of ILD, and if so, which and when?

  21. Dear #ILD community,

    I would really appreciate it if you could help us spread this global survey. Thanks in advance 🫁🌎

    #ILDMastodon #FollowList

    On behalf of the IPF/ILD Respiratory Effectiveness Working Group, I invite you to participate in this global survey to identify characteristics of ILD diagnostic practice (virtual MDTs) in the #PostCOVID era. Project info and survey link below 👇

    regresearchnetwork.org/researc

  22. Dear #ILD community 🫁🧬

    I have created the #FollowList #ILDMastodon

    By the way, I saw a good tip yesterday: If you’re using an iPhone for Mastodon, you can download an app called Metatext. I am using it and so far so good 🤞🏻

    Have a good weekend! 🌎🌍

  23. Dear #ILD community 🫁🧬

    I have created the #FollowList #ILDMastodon

    By the way, I saw a good tip yesterday: If you’re using an iPhone for Mastodon, you can download an app called Metatext. I am using it and so far so good 🤞🏻

    Have a good weekend! 🌎🌍

  24. Hi everyone. I am new on mastodon. I am looking forward to find my colleagues and friends to discuss #ILD #IPF #PFILD #PostCOVID #FPF #telomere #genetics among other topics 🫁 🧬 🌎 #ILDMastodon #FollowList

  25. Hi everyone. I am new on mastodon. I am looking forward to find my colleagues and friends to discuss #ILD #IPF #PFILD #PostCOVID #FPF #telomere #genetics among other topics 🫁 🧬 🌎 #ILDMastodon #FollowList