#espku — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #espku, aggregated by home.social.
-
The registration for the E.S.PKU conference 2025 in Hamburg is open! Who else is planning to go? (@soheb or @poconnor maybe?)
-
The registration for the E.S.PKU conference 2025 in Hamburg is open! Who else is planning to go? (@soheb or @poconnor maybe?)
-
Here is some of the posters at the ESPKU conference by dietitians:
-
Here is some of the posters at the ESPKU conference by dietitians:
-
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
-
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
-
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
-
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
-
I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵
These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.
-
And that’s the ESPKU done! I had such a great time!
Many thanks to @Chloeormerod @poconnor @skat plus others for chatting with me and making the event that much more better!
I also have pictures of the slides of the latest drugs that, once I’m back home, I’ll make some online album and share the album for folks who couldn’t attend to see 👍 ( @ClairTheGinger )
-
And that’s the ESPKU done! I had such a great time!
Many thanks to @Chloeormerod @poconnor @skat plus others for chatting with me and making the event that much more better!
I also have pictures of the slides of the latest drugs that, once I’m back home, I’ll make some online album and share the album for folks who couldn’t attend to see 👍 ( @ClairTheGinger )
-
The ESPKU cake has been lit!!!
-
The ESPKU cake has been lit!!!
-
The ESPKU dinner was delicious!!
-
The ESPKU dinner was delicious!!
-
Heads up for anyone attending the second meeting “Starting the conversation” - it is in the Meeting Room Tactic in the East Side Rooms Hotel
-
Heads up for anyone attending the second meeting “Starting the conversation” - it is in the Meeting Room Tactic in the East Side Rooms Hotel
-
Pick up a copy at ESPKU - 30% off today!
The lovely @nspku ladies at registration can help you out. Or I am roaming the conference in my dinosaur shirt and can take card payments.
-
-
-
This dinner has won ESPKU by far. Everything by I tried is an absolute smash hit.
The chef has really outdone themselves.
Also, stealing @skat’s idea to take a picture of the menu
-
This dinner has won ESPKU by far. Everything by I tried is an absolute smash hit.
The chef has really outdone themselves.
Also, stealing @skat’s idea to take a picture of the menu
-
Last slide sums it up
-
Last slide sums it up
-
Some interesting notes about the future of pku:
Thanks to COVID vaccine innovations, the technology used to kill of Covid is going to be used to generate working PAH enzymes in the body. It’s currently in very early days, but it seems very promising given it’s based off the COVID foundations…!
-
Some interesting notes about the future of pku:
Thanks to COVID vaccine innovations, the technology used to kill of Covid is going to be used to generate working PAH enzymes in the body. It’s currently in very early days, but it seems very promising given it’s based off the COVID foundations…!
-
ESPKU lunch:
* low protein chicken burger (I was late to this)
* low protein pizza (delicious)
* low protein soup (ok)
* spaghetti (ok) with meatballs (nice)
* chips (good)
* cakes (very filling, I feel sleepy 🥱 😴💤) -
ESPKU lunch:
* low protein chicken burger (I was late to this)
* low protein pizza (delicious)
* low protein soup (ok)
* spaghetti (ok) with meatballs (nice)
* chips (good)
* cakes (very filling, I feel sleepy 🥱 😴💤) -
Me: remember, you are leading a workshop at the #PKU conference tomorrow so need to look professional.
Also me: Or… Dinosaurs 🦕!
#ESPKU #ESPKU2023 #espku #espku2023 #NSPKU2023 #nspku #NSPKU #livingWithPKU #LivingWithPKU #livingwithpku
-
Me: remember, you are leading a workshop at the #PKU conference tomorrow so need to look professional.
Also me: Or… Dinosaurs 🦕!
#ESPKU #ESPKU2023 #espku #espku2023 #NSPKU2023 #nspku #NSPKU #livingWithPKU #LivingWithPKU #livingwithpku
-
Got to meet Lisa from Galen pharma, it was a nice catchup!
Very lovely person, and the Galen Microtabs are definitely worth checking out!
-
Got to meet Lisa from Galen pharma, it was a nice catchup!
Very lovely person, and the Galen Microtabs are definitely worth checking out!
-
Some new GMP sachets from @Nutricia - these are the lowest calorie GMP mixes on the market (the mix-in one has no taste whatsoever - they gave me a spot test to tell the difference and I failed it).
Would absolutely love to try these in the future!
-
Some new GMP sachets from @Nutricia - these are the lowest calorie GMP mixes on the market (the mix-in one has no taste whatsoever - they gave me a spot test to tell the difference and I failed it).
Would absolutely love to try these in the future!
-
A new contender - Prekulab - have two new products:
LNAA series - you can have *up to* 80% normal food, and the rest is tablets/powder.
AA series - up to 20% normal food, 80% tablets powder.I believe the person said the LNAA total tablets amount is body weight in kg/2. For example, for me I’m 80kg, so I’d have 40 tablets a day.
Spread that across the day, it would probably be 10 tablets in the morning, 20 in the afternoon, and 10 in the evening. Interesting!
-
A new contender - Prekulab - have two new products:
LNAA series - you can have *up to* 80% normal food, and the rest is tablets/powder.
AA series - up to 20% normal food, 80% tablets powder.I believe the person said the LNAA total tablets amount is body weight in kg/2. For example, for me I’m 80kg, so I’d have 40 tablets a day.
Spread that across the day, it would probably be 10 tablets in the morning, 20 in the afternoon, and 10 in the evening. Interesting!
-
A new contender - Prekulab - have two new products:
LNAA series - you can have *up to* 80% normal food, and the rest is tablets/powder.
AA series - up to 20% normal food, 80% tablets powder.I believe the person said the LNAA total tablets amount is body weight in kg/2. For example, for me I’m 80kg, so I’d have 40 tablets a day.
Spread that across the day, it would probably be 10 tablets in the morning, 20 in the afternoon, and 10 in the evening. Interesting!
-
IT’S COMING HOME!!
IT’S COMING!!
BLOOD TESTS COMING HOME, IT’S COMING!!
Now, these are prototypes, BUT!
* Result in 2 mins
* Records in app
* Results get sent automatically to doctorsYour move, post box 📮♟️
-
IT’S COMING HOME!!
IT’S COMING!!
BLOOD TESTS COMING HOME, IT’S COMING!!
Now, these are prototypes, BUT!
* Result in 2 mins
* Records in app
* Results get sent automatically to doctorsYour move, post box 📮♟️
-
IT’S COMING HOME!!
IT’S COMING!!
BLOOD TESTS COMING HOME, IT’S COMING!!
Now, these are prototypes, BUT!
* Result in 2 mins
* Records in app
* Results get sent automatically to doctorsYour move, post box 📮♟️
-
IT’S COMING HOME!!
IT’S COMING!!
BLOOD TESTS COMING HOME, IT’S COMING!!
Now, these are prototypes, BUT!
* Result in 2 mins
* Records in app
* Results get sent automatically to doctorsYour move, post box 📮♟️
-
Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.
Sheila: Unlocking the Treatment for PKU https://amzn.eu/d/3gLpZ1z
-
Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.
Sheila: Unlocking the Treatment for PKU https://amzn.eu/d/3gLpZ1z
-
Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.
Sheila: Unlocking the Treatment for PKU https://amzn.eu/d/3gLpZ1z
-
Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.
Sheila: Unlocking the Treatment for PKU https://amzn.eu/d/3gLpZ1z
-
Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.
Sheila: Unlocking the Treatment for PKU https://amzn.eu/d/3gLpZ1z
-
I can say all those points rings true. I’m not sure if some of the proposed ideas are good or not as I’m not an health expert, but I’m glad this is being addressed.
I’ve heard lots of stories from pku women about how *awful* their clinical appointments are as they get asked *very* personal questions in the name of being educated about unplanned pregnancies and urgent strict diets. It can be much, much better.
-
I can say all those points rings true. I’m not sure if some of the proposed ideas are good or not as I’m not an health expert, but I’m glad this is being addressed.
I’ve heard lots of stories from pku women about how *awful* their clinical appointments are as they get asked *very* personal questions in the name of being educated about unplanned pregnancies and urgent strict diets. It can be much, much better.