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#espku — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #espku, aggregated by home.social.

  1. I'm going to be sharing some photo album of the slides at the ESPKU event. This will be a thread! 🧵

    These slides are all on Google Photos, but if you want the photos on another service (like Outlook or iCloud), let me know and I can try and get them shared.

    #ESPKU2023 #ESPKU #NSPKU #NSPKU2023

  2. A new contender - Prekulab - have two new products:

    LNAA series - you can have *up to* 80% normal food, and the rest is tablets/powder.
    AA series - up to 20% normal food, 80% tablets powder.

    I believe the person said the LNAA total tablets amount is body weight in kg/2. For example, for me I’m 80kg, so I’d have 40 tablets a day.

    Spread that across the day, it would probably be 10 tablets in the morning, 20 in the afternoon, and 10 in the evening. Interesting!

    #espku2023 #espku #nspku

  3. IT’S COMING HOME!!

    IT’S COMING!!

    BLOOD TESTS COMING HOME, IT’S COMING!!

    Now, these are prototypes, BUT!

    * Result in 2 mins
    * Records in app
    * Results get sent automatically to doctors

    Your move, post box 📮♟️

    #espku2023 #espku #nspku

  4. Professor Anne Green did a talk on Sheila (and Mary Jones’) life story of PKU. The talk was great, but the book is phenomenal and I strongly encourage folks to buy it and read it.

    Sheila: Unlocking the Treatment for PKU amzn.eu/d/3gLpZ1z

    #espku2023 #espku #nspku