#accesstocare — Public Fediverse posts

Pour parler d'un papier qui est bien, j'ai trouvé cet éditorial[1] très bien pour parler des problématiques d'équité (et pas d'inclusion) dans l'accès aux soins, spécifiquement à l'échelle des centres de soin communautaire, pour les personnes trans racisé·es (et dans une perspective intersectionnelle en général).

Il mentionne quelques points intéressant, comme la nécessité que les efforts d'inclusion ne soient pas des efforts individuels, optionnels, souvent venant de personnes concernées (non compensées pour ce taff et à qui on ne donne pas les ressources nécessaires), mais soient appuyés institutionnellement.

Un point qui est rarement (jamais ?) implémenté c'est le dépassement de la prise en compte des avis des personnes concernées pour à la place donner un pouvoir décisionnaire et dans un but d'accountability.
(Un truc qu'on voit encore et encore dans divers cadres progressistes qui, pour parler de ce que je connais, veulent faire des trucs pour les trans mais on est juste consulté·es, souvent à la fin/trop tard et généralement sans aucun pouvoir décisionnaire, et bon c'est sympa de nous demander notre avis mais c'est pas exactement suffisant).

Peut-être un peu plus concrètement ça mentionne des modalités de soin indispensables mais rarement implémentées (horaires large, visio, aller-vers, consultations sans rdv, recours à des pair-aidant·es, regroupement des services d'aide social/accès aux droits avec les services médicaux, etc...).

[1] : Affirming care at the margins: Community health clinics and health equity for transgender people of color. Bryant-Ross E, 2026. https://doi.org/10.1080/26895269.2025.2541986

#healthcare #equity #accesstocare

Pour parler d'un papier qui est bien, j'ai trouvé cet éditorial[1] très bien pour parler des problématiques d'équité (et pas d'inclusion) dans l'accès aux soins, spécifiquement à l'échelle des centres de soin communautaire, pour les personnes trans racisé·es (et dans une perspective intersectionnelle en général).

Il mentionne quelques points intéressant, comme la nécessité que les efforts d'inclusion ne soient pas des efforts individuels, optionnels, souvent venant de personnes concernées (non compensées pour ce taff et à qui on ne donne pas les ressources nécessaires), mais soient appuyés institutionnellement.

Un point qui est rarement (jamais ?) implémenté c'est le dépassement de la prise en compte des avis des personnes concernées pour à la place donner un pouvoir décisionnaire et dans un but d'accountability.
(Un truc qu'on voit encore et encore dans divers cadres progressistes qui, pour parler de ce que je connais, veulent faire des trucs pour les trans mais on est juste consulté·es, souvent à la fin/trop tard et généralement sans aucun pouvoir décisionnaire, et bon c'est sympa de nous demander notre avis mais c'est pas exactement suffisant).

Peut-être un peu plus concrètement ça mentionne des modalités de soin indispensables mais rarement implémentées (horaires large, visio, aller-vers, consultations sans rdv, recours à des pair-aidant·es, regroupement des services d'aide social/accès aux droits avec les services médicaux, etc...).

[1] : Affirming care at the margins: Community health clinics and health equity for transgender people of color. Bryant-Ross E, 2026. https://doi.org/10.1080/26895269.2025.2541986

#healthcare #equity #accesstocare

Treating previously untreatable cancers: How CAR‑T cell therapy could be made accessible to more patients
#Canada #Health #CancerTreatment #CARTCellTherapy #MedicalInnovation #Biotech #CancerResearch #Medicine #AccessToCare #ClinicalTrials #Science
https://the-14.com/treating-previously-untreatable-cancers-how-car-t-cell-therapy-could-be-made-accessible-to-more-patients/

Treating previously untreatable cancers: How CAR‑T cell therapy could be made accessible to more patients
#Canada #Health #CancerTreatment #CARTCellTherapy #MedicalInnovation #Biotech #CancerResearch #Medicine #AccessToCare #ClinicalTrials #Science
https://the-14.com/treating-previously-untreatable-cancers-how-car-t-cell-therapy-could-be-made-accessible-to-more-patients/

Primary Clinic: This is what primary care should’ve been all along.
#AffordableHealthcare
#HealthcareSimplified
#PatientFirst
#AccessToCare
#BetterHealthcare
https://primary.clinic

Take your seats: We share the latest on which MEPs will be working on health https://www.euractiv.com/section/health-consumers/news/take-your-seats-we-share-the-latest-on-which-meps-will-be-working-on-health/?utm_source=dlvr.it&utm_medium=mastodon #accesstocare #brief #Health #HealthBrief #olympics

Take your seats: We share the latest on which MEPs will be working on health https://www.euractiv.com/section/health-consumers/news/take-your-seats-we-share-the-latest-on-which-meps-will-be-working-on-health/?utm_source=dlvr.it&utm_medium=mastodon #accesstocare #brief #Health #HealthBrief #olympics

If I’d been given palliative care when I had an eating disorder, I would not be here today | Dorothy Dunn | The Guardian
https://www.theguardian.com/commentisfree/2023/sep/16/palliative-care-nhs-patients-eating-disorders-recovery

#EatingDisorder
#SEEDTreatment
#PalliativeCare
#Hospitalisation
#AccessToCare
#UnderFunding
#UnderStaffing
#NHS

If I’d been given palliative care when I had an eating disorder, I would not be here today | Dorothy Dunn | The Guardian
https://www.theguardian.com/commentisfree/2023/sep/16/palliative-care-nhs-patients-eating-disorders-recovery

#EatingDisorder
#SEEDTreatment
#PalliativeCare
#Hospitalisation
#AccessToCare
#UnderFunding
#UnderStaffing
#NHS

Abortion bans drain red states of doctors

https://www.msnbc.com/american-voices/watch/abortion-bans-drain-red-states-of-doctors-192622661736

#AbortionBans #RedStates #Doctors #Healthcare #AccessToCare #ReproductiveRights #Politics #News

Abortion bans drain red states of doctors

https://www.msnbc.com/american-voices/watch/abortion-bans-drain-red-states-of-doctors-192622661736

#AbortionBans #RedStates #Doctors #Healthcare #AccessToCare #ReproductiveRights #Politics #News

#TheMetalDogArticleList
#MetalSucks
David Draiman’s Struggle to Find Mental Health Care Further Highlights a Broken System
"It shouldn't be that hard. It shouldn't be as much of a business as it is." The post David Draiman’s Struggle to Find Mental Health Care Further Highlights a Broken System appeared first on MetalSucks.

https://www.metalsucks.net/2023/07/12/david-draimans-struggle-to-find-mental-health-care-further-highlights-a-broken-system/

#MentalHealthCrisis #BrokenHealthCareSystem #DavidDraiman #StruggleForHelp #AccessToCare

#TheMetalDogArticleList
#MetalSucks
David Draiman’s Struggle to Find Mental Health Care Further Highlights a Broken System
"It shouldn't be that hard. It shouldn't be as much of a business as it is." The post David Draiman’s Struggle to Find Mental Health Care Further Highlights a Broken System appeared first on MetalSucks.

https://www.metalsucks.net/2023/07/12/david-draimans-struggle-to-find-mental-health-care-further-highlights-a-broken-system/

#MentalHealthCrisis #BrokenHealthCareSystem #DavidDraiman #StruggleForHelp #AccessToCare

Mass Coalition for Health Equity Open Letter to Massachusetts DPH and Healthcare Organizations to Keep Masks in Healthcare

https://docs.google.com/document/u/0/d/1ox5ZUs7XcTuUtnsSod7_aNCxLKRWHbWOtILyl9kzYS0/mobilebasic

Petition to sign re masks in healthcare settings (thanks @rey)
https://actionnetwork.org/petitions/open-letter-to-massachusetts-dph-and-healthcare-organizations-for-continued-masking-in-healthcare-settings

#Massachusetts #Boston #Disability #COVIDisAirborne #COVIDisNotOver #Inclusion #AccessToCare

Breaking down barriers: the fight for access to care for rare diseases

#RareDiseaseAdvocacy #HopeForTheAffected #AccessToCare #FightingForFamilies

James Geraghty is a health care executive.

https://youtube.com/shorts/cP-lG-aCHX4?feature=share

Listen here: https://kevinmd.com/podcast

Former head of NIMH Thomas Insel on the problem of access to care. #accesstocare #mentalhealth @thomasinselmd

https://www.seattletimes.com/seattle-news/mental-health/mental-health-research-is-making-undeniable-progress-why-are-we-still-in-crisis/

Happy new year and hi to the Mastodon peeps!
I see #introductions are a thing, so here I go 🤓:
I'm Maja, an #econ postdoc working on #GlobalHealth at the Brigham & Women's Hospital and Harvard Medical School.
Just got back from my email hiatus over the holidays. Now that I'm mostly off twitter, I'm trying to my way around here. Interested in: #AccessToCare #HIV #LMIC #NCDs #Aging #DevEcon #development #Gender #Equity #ResearchEthics #ImpactEval. Excel trashing also welcome.

#HSR as field – and as
@VAhsrd@twitter
– have spent 40 years obsessing about barriers to #accessTOcare

I would think “what are the tasks a patient needs to accomplish to access care” would have been a foundational question somebody identified and answered

But I can't find it. Everything seems to be #ProcessMaps from a health system perspective, or #Aday/Anderson too high abstraction

help?

@Janekohara, can I consult you? If that is rude, please ignore me?

#HSR as field – and as
@VAhsrd@twitter
– have spent 40 years obsessing about barriers to #accessTOcare

I would think “what are the tasks a patient needs to accomplish to access care” would have been a foundational question somebody identified and answered

But I can't find it. Everything seems to be #ProcessMaps from a health system perspective, or #Aday/Anderson too high abstraction

help?

@Janekohara, can I consult you? If that is rude, please ignore me?