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#severememonth — Public Fediverse posts

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  1. August 8th is already observed as Severe ME Day, commemorating the first recognised UK death from ME.

    Expanding August to #SevereMEMonth would:

    - Allow patients and caregivers to pace their involvement, in keeping with medical guidelines on energy management

    - Preserve 8 August as the anchor day of remembrance and advocacy

    - Enable sustained, coordinated outreach, research advocacy, and community support

    #Petition by #SevereME patient Nevra:

    change.org/p/declare-august-as

    @IrishMECFSAssociation