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#rareaware β€” Public Fediverse posts

Live and recent posts from across the Fediverse tagged #rareaware, aggregated by home.social.

  1. Your Story Matters!

    For Rare disease day, people with PKU are sharing their story.

    πŸ‘§ Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.

    🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.

    πŸ“¦οΈ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.

    pigpen.page/share-your-story-2/

    #ShareYourStory #PKU #RareDiseaseDay #RareAware

  2. Your Story Matters!

    For Rare disease day, people with PKU are sharing their story.

    πŸ‘§ Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.

    🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.

    πŸ“¦οΈ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.

    pigpen.page/share-your-story-2/

    #ShareYourStory #PKU #RareDiseaseDay #RareAware

  3. Your Story Matters!

    For Rare disease day, people with PKU are sharing their story.

    πŸ‘§ Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.

    🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.

    πŸ“¦οΈ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.

    pigpen.page/share-your-story-2/

    #ShareYourStory #PKU #RareDiseaseDay #RareAware

  4. Your Story Matters!

    For Rare disease day, people with PKU are sharing their story.

    πŸ‘§ Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.

    🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.

    πŸ“¦οΈ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.

    pigpen.page/share-your-story-2/

    #ShareYourStory #PKU #RareDiseaseDay #RareAware