#rareaware — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #rareaware, aggregated by home.social.
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Your Story Matters!
For Rare disease day, people with PKU are sharing their story.
👧 Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.
🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.
📦️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.