#blindness โ Public Fediverse posts
Live and recent posts from across the Fediverse tagged #blindness, aggregated by home.social.
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CW: My lived experience with ophthalmologists while legally blind. Medical details.
RE: https://disabled.social/@tomkindlon/117134288892873004
When my contract was not renewed and I needed #ObamaCare, I looked at the list of in-network #ophthalmologists with my new #insurance. Some of the listings had the dates that doctors graduated. I found the earliest date listed and scheduled my appointment.
She went to school with my former #ophthalmologist, and actually listened to me about my #eyes.
There are two specific things that doctors need to understand about my eyes in order to appropriately advise me, and they are due to my medical history.
Below is a brief #history of my eyes and vision, including all of the everything.
There are two tests for #legal #blindness.
1) Having a best-corrected #visual acuity of 20/200 or less in the better eye. If, with the best eyeglasses on contact lenses, you can only read the E at the top of the eye chart, you are legally blind in the #US.
2) Having a visual field of 20ยฐ or less. This means you can only see straight ahead, and you have to track movement by turning your head. I am here.
Now for my deets:
I'm bilaterally aphakic, meaning neither eye has a lens. This is a post-surgical condition, as outlined below. At the time of the surgery, there was no idea that implantable lenses would exist. This was not a bad outcome or medical malpractice.
I was born with #cataracts in both eyes. My body has no clue how to grow clear lenses. Because I'm old, I didn't have my first eye surgeries until I was three. Doctors were afraid to operate on infants in the early 1960s, and one of my classmates in kindergarten had a heart issue.
I also had surgeries when I was eight, and eleven or twelve. I don't know what the actual goal was for these operations, but they weren't really helpful.
When I was sixteen, I had a new kind of #laser #surgery in #Minneapolis. In separate surgeries, doctors basically zapped the lenses and their structures in each eye.
There is currently nowhere to attach a lens implant in either eye. My corneas are so thick from all my surgeries that Lasik is not an option, either. My vision is the best it will ever be, and most of the time, I'm okay with it.
When an ophthalmologist measures intraocular pressure (this is the test for #glaucoma), there is a chart that shows how to adjust the reading to account for corneal thickness. Many ophthalmologists don't realize that corneas can be thicker than what is shown on the chart, and assume my pressure is higher than it actually is. They then #misdiagnose me with glaucoma and prescribe #eyedrops that I do not need, and #schedule additional appointments that require me to pay a #copay because they're specialists.
My corrected acuity is 20/50, but with caveats. I can legally drive in #Texas, so long as I don't exceed 45 mph and avoid #expressways.
I have a "good" eye and a "helper" eye. The helper eye can only be corrected to 20/200, but if it isn't receiving light, my brain freaks out and thinks my good eye is on its own. I have such intense nystagmus (my eye involuntarally jostles around to try to see better), that it severely reduces my acuity.
So, instead of using the regular device for covering one eye, I need to use a translucent device for the "cover one eye" part of the exam. If they don't honor this when determining the prescription for my eyeglasses, the glasses won't function correctively or correctly.
When doctors and their assistants do not listen to me about my thick corneas and need for a blurrer rather than a blocker, they also add inaccurate information to my medical records. This directly interferes with my life.
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(YouTube) No Priors podcast: From restoring sight to reimagining the brain, with Max Hodak, CEO of Science Corporation https://www.youtube.com/watch?v=7HXqMepjvy8 #BCI #NeuroTech #blindness
Max Hodak: The brain is a computer, and that changes everything about medicine https://finance.biggo.com/news/cc89f1dff1c0a91e "Brain keyboards are overrated because the bottleneck is cognitive, not mechanical. Sensory restoration is where the real opportunity sits."
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๐ช๐ฎ๐๐๐ผ๐ฟ๐ฑ๐ ๐ฅ๐ฒ๐ฎ๐ฑ๐ถ๐ป๐ด ๐๐ฒ๐ฑ๐ด๐ฒ๐ฟ: "๐ง๐ต๐ฒ ๐๐ฒ๐น๐น๐๐ณ๐ถ๐๐ต" ๐ฏ๐ ๐ฆ๐ฎ๐บ๐ฎ๐ป๐๐ต๐ฎ ๐๐ฒ๐ฟ๐ถ๐ฐ๐ต๐ฒ-๐๐ถ๐ผ๐ป๐ฒ๐ (๐๐ผ๐๐บ) -
3-Word Review:
- Experiential
- Demonstrative
- MemoirFrictional Posture:
- What does the graphic novel format accomplish that words absolutely could not?
#bookreview #bookrecommendations #readinglist #literature #books #book #reading #bookstagram #frictionalreading #3words #boum #thejellyfish #samanthalerichegionet #graphicnovel #disability #blindness
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Microsoft Copilot summary https://copilot.microsoft.com/shares/hAxSXwNStfDXs7Qxihz5T and a shorter executive summary https://copilot.microsoft.com/shares/hrzq2xW88DauML1JMJkDV and critical analysis of the document's claims https://copilot.microsoft.com/shares/WQxoSdioYHvPvb1owFCdM #BCI #blindness
Microsoft Copilot: "The document is highly informative, technically rich, and valuable, but it should be read as a position paper, not a neutral scientific review. Its strongest arguments concern safety, scalability, and current evidence. Its weakest points are predictions about future implant capabilities and the downplaying of The vOICeโs learning curve and cognitive demands."
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Version v3 of the white paper and living document on The vOICe vision BCI and brain implants for restoring vision is now on Zenodo https://doi.org/10.5281/zenodo.18243828 #BCI #blindness
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RE: https://mas.to/@seeingwithsound/117106875365471958
Help show that the emperor has no clothes? #BCI #blindness
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I am just stupidly excited to share that the No Sight Required brand has now launched some pretty sweet swag! I'm bias, so, you decide if it's worth wearing for yourself! T-shirts, stickers, and a cool coffee mug! The ability was never missing. Access was. https://shop.nosightrequired.com #merch #shirts #coffee #Accessibility #AssistiveTechnology #Blindness #NoSightRequired
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Afflicted by loveโs madness all are blind.
[Scilicet insano nemo in amore videt.]Propertius (50โ16 BC) Roman elegiac poet [Sextus Propertius]
Elegies, Book 2, Elegy 14, l. 18ff (2.14.18) [ed. Harbottle (1906)]More about (and translations of) this quote: wist.info/propertius/85483/
#quote #quotes #quotation #qotd #propertius #awareness #blindness #love #madness #passion #sight
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(LinkedIn) The PhD student machine is more easily kept spinning with a never-ending series of technical and biological challenges related to implants, giving an academic research incentive bias that may not favor the best approaches https://www.linkedin.com/posts/petermeijer_bci-neurotech-blindness-share-7494350342118137856-2bDS/ #BCI #blindness
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Meta is handing 15,000 camera glasses to Ireland's blind adults, and the camera is the whole product https://vr.org/articles/meta-vision-ireland-15000-ray-ban-glasses-accessibility-2026 Unfortunately Ray-Ban Meta glasses cannot run The vOICe vision BCI due to Meta's locked ecosystem and camera access restrictions. #smartglasses #blindness
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(LinkedIn) I'd like to set the bar for Elon Musk's upcoming Neuralink Blindsight brain implant ahead of time. What benchmarking videos of a blind user of The vOICe vision BCI would challenge Neuralink Blindsight? https://www.linkedin.com/posts/petermeijer_bci-neurotech-blindness-share-7495008096017256448-LeQc/ #BCI #blindness
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I'd like to set the bar for Elon Musk's upcoming Neuralink Blindsight brain implant ahead of time. What benchmarking videos of a blind user of The vOICe vision BCI would challenge Neuralink Blindsight? https://www.youtube.com/watch?v=PewuFviiSsQ&list=PLmrvukzbS44R0FvwgQIQ7nt8S-_Jiai8E&index=1 #BCI #NeuroTech #blindness
To ChatGPT: "I'd like to set the bar for Elon Musk's upcoming Neuralink Blindsight brain implant ahead of time. What benchmarking videos of a blind user of The vOICe vision BCI would challenge Neuralink Blindsight?" https://chatgpt.com/share/6a820cc1-0c84-83eb-8767-3414063f614d
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Yesterday, I attended the Assoc of Blind Citizens Summer Lunch at a dive called the Mt. Vernon, in Somerville MA. Following lunch, was a trivia program, hosted by Morgan White Jr. He runs a weekly show on WBZ Radio, Boston. I won a bunch of merch, some of it, shown here. Alt text generated by Tiger Text, an #IOS app, made by @furball thanks! #SocialLife #blind #blindness #selfie #selfies #trivia
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RE: https://mas.to/@seeingwithsound/116941845327362066
It's now well over 3 months after the third blind person received an ICVP brain implant for restoring vision. How is she doing? #BCI #NeuroTech #blindness
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Judging from comments, blind people on Facebook seem by and large interested in getting a Neuralink Blindsight brain implant for restoring vision https://www.facebook.com/groups/1006104764242457/posts/1600860634766864/ and https://www.facebook.com/groups/1006104764242457/posts/1601249254728002/ #BCI #blindness
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#today I did a bit of #DayDrinking and won some stuff in #trivia at an annual lunch held by Assoc of Blind Citizens. #blindness I feel a nap coming on. Maybe I should hydrate, first; got some Vitamin Water; should do nicely. #SocialLife My table did very well.
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RE: https://mas.to/@seeingwithsound/117072253291492855
Is one of the most promising and mature vision technologies for the totally blind getting systematically ignored? https://www.artificialvision.com/BCI.html #BCI #blindness
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For a long time we (in Europe) have viewed the โglobal southโ as a problem to be contained, and for some a recipient of aid intended to help reduce or even reverse issues of infrastructure and climate change. But most in Europe hae always stuck to the โcanโt happen hereโ mantra.
News for everyone. It can and it will. The environment is connected - border controls will not help. Nor will feckin fossil fuels.
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The following hashtags are trending across South African Mastodon instances:
#knp
#road
#weather
#blindness
#visuallyimpaired
#pertussis
#whoopingcough
#ghanahealth
#accessiweather
#historyBased on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.
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The following hashtags are trending across South African Mastodon instances:
#southafrica
#gauteng
#blindness
#visuallyimpaired
#Wordle
#wordle1879
#dreamed
#crosswords
#puzzles
#pertussisBased on recent posts made by non-automated accounts. Posts with more boosts, favourites, and replies are weighted higher.
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Here's the full newsletter, which contains those links, but also other info: https://mailchi.mp/retinasa/enews?e=40bf85b496
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Manny Moodley gave an update on the Visions Conference.
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Ferdie Danzfuss introduced the exciting Umsizi reading App, that converts text to speech in all 11 South African languages, that he has developed.
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Claudette Medefindt gave an update on current promising clinical trials: https://www.youtube.com/watch?v=_KQDVv2dUYU
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The keynote speaker was Professor John Marshall, MBE, who gave a perfect overview of retinal research. Prof Marshall is a global leader in vision and was a pioneer in the development in the use of laser technology in vision: https://www.youtube.com/watch?v=KcW0-Yxl1CE
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Watch/listen to recordings of these amazing talks from the recent Retina South Africa annual general meeting. ๐งต
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Review of brain-computer interface technology in ophthalmology: Current status, challenges and future directions https://www.sciencedirect.com/science/article/pii/S2667376226000314 Discussing noninvasive BCIs yet not mentioning sensory substitution for vision? Review by authors from the Department of Ophthalmology, The First Affiliated Hospital of Jinan University, Guangzhou, China.
So... Opt for a brain implant or opt for visual-to-auditory sensory substitution? https://www.artificialvision.com/BCI.html