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  1. @actuallyadhd @autistics

    Well, around 02:10, after opening NewPipe, downloading an ambient noise video & the app not giving the option of playback I tried Podcast Addict, the only viable option out of the 3 possible apps it offered for playback.
    Okay, let's try for sleep, kill screen as any light just keeps me awake (my eyelids are like tissue paper). Problem, killing screen kills playback 🫩😡.
    I'm too tired, will look into what options to tweak in the morning or whenever.

    I doze till about 04:30 as I need to roll over to relieve my bones & whatever else is aching. Try getting back to dozing... 30 odd minutes later, my body is deep frying me from the inside 😩.

    Okay, I'm awake but I don't like it.
    Can't believe how quickly I went thorough my notifications on here, replied to a few & back scrolled Home feed to see what I missed.
    ...

    So now, what do I do?

    #AuDHD #Autistic #ADHD #ActuallyADHD #ActuallyAutistic
    #Life #Sleep #Insomnia #SleepProblems #TissuePaperEyelids #WaferThinEyelids
    #TooWarm

  2. @vger @sofasophia spannend, wie unterschiedlich das ist! bei mir hat nix gegen adhs geholfen, erst MIT bupropion habe ich eine wirkung von MPH gemerkt - und nehme mittlerweile B plus kinecteen, das eine bessere retardierung liefert. hatte gelesen, dass adhs-autistische menschen häufig/manchmal besser auf adhs-meds ansprechen, wenn B dazukommt. von dem verlängerungsaspekt hatte ich noch gar nx gelesen, danke!

    #actuallyAutistic #actuallyADHD

  3. Yay, getting a bit of creative mojo back after a couple of horrible weeks dealing with the fallout of the ADHD assessment. I'm making slow progress with a music project which is key to what I want to do but a complete millstone around my neck. Slow progress is still progress.

    Also worked out a way to make an additional pdf booklet of various creative bits that I'll be able to offer as a download.

    #ActuallyAutistic #ActuallyADHD #Music #Creative

  4. Ich bastele mir gerade eine Mental Health-Toolbox mit Dingen, die mir helfen, mich zu regulieren, wenn es emotional schwierig ist. Die Anregung dazu habe ich von How To ADHD: youtube.com/watch?v=49mVKsYPbO4

    Eine der Sachen, die mir oft hilft, aus Gefühls- und Gedankenspiralen auszusteigen, ist Programmieren. Jetzt die Frage: Kennt jemand Sammlungen von (eher einfachen) kleinen Programmier-Aufgaben, vorzugsweise in Python?

    #adhs #actuallyADHD #ADHD #DuckDuckFedi

  5. So as I mentioned in a previous post, today will be my first appointment with a psychiatrist, and I'm a bit nervous about that. But today is also my weekly ttrpg game day. I usually don't get much sleep the night before a game day, although I don't know why exactly. Too excited? 🤷

    But as if that wasn't enough, this will be our first game in about a month, so there's more reason to be excited. And we are starting a new game, CthulhuTech, so that's exciting too. And then there's the fact that the character I will be playing will be yet another version of a character I have already rebooted about a half a dozen times already (in various games) because I like him so much, but haven't got to play in years, and he works very well in this setting. I've been hyperfocused on him for weeks now, from his background, to his appearance, the music he plays (because he's a musician on the side), everything.

    My point being that with all of this happening today, I guess I shouldn't be surprised that I only got maybe 2 hours of sleep. Technically I don't have to be awake for another hour, but my mind won't stop thinking about things, some related to the game, some not. I guess it's going to be a high-caffeine day.

    #ActuallyAutistic #ActuallyADHD #AuDHD

  6. So tomorrow is the big day that I've been... anticipating... for months now: my first appointment with a psychiatrist. And yeah, I'm a bit nervous. First of all, what kind will they be: a nice, caring person who actually listens and is well informed about and supportive of neurodiversity? Or an old-school, manipulative elitist who likes having control over people and may have more control over my life than I want them to? How much self advocacy am I going to have to do? (Of course I've been madly scripting since I got the appointment.) And how much of that will do any good?

    And then there is the possibility that, thanks to a misunderstanding with another doctor, that this one will likely think that I am there to get a diagnosis for autism and adhd. But really what I want is someone to talk to about my situation, goals, and options, like how to navigate the system and whether a diagnosis would benefit me more than any potential drawbacks. I worry that when told this that they will get angry and tell me that I just wasted their time (typical RSD). (sigh) I guess we'll just have to wait and see. 😬

    #ActuallyAutistic @autistics #ActuallyADHD #AuDHD

  7. Finally! After a horrible DIVA-5 interview a couple of weeks ago and two weeks of pushing and trying to be heard, I got my ADHD diagnosis.

    #ActuallyADHD

  8. @actuallyadhd @autistics

    Sleepy yay 🫩! Been awake since around 05:30. Less than 4 hours sleep as I didn't roll over without my phone in hand till 02;01.
    Been looking for byline times RSS & severely disappointed that they don't have one.

    Anywhose, it's 6:50-ish & I'm actually thinking of getting up before my brain realises it's supposed to be in sleep mode.
    Today is going to be interesting but good or bad interesting?

    #AuDHD #Autistic #ADHD #ActuallyADHD #ActuallyAutistic
    #Life #Sleep #Insomnia #SleepProblems

  9. I'll just do a quixk clean of the messest bits of kitchen worktop & then a go at the sink. It'll only take 20 minutes 😃 & then I can have lunch 😎 ...

    1 hour later: That's the entire worktop cleaned & disinfected. What be the time my good microwave?... 🤯.
    The sink'll just have to wait as I'm knackered, thirsty & hungry 🥵 & a bit too toasty.

    Feels good to have done it properly though 😀.

    #ActuallyAutistic #Autistic #ActuallyADHD #AuDHD
    #HyperFocus #RunningWithSpoon

  10. "His 2nd pediatrician was keen to put R "on the spectrum". I wanted to tell the man that everyone alive on this fluke little planet was on the spectrum.That's what a spectrum IS. I wanted to tell the man that life itself is a spectrum disorder, where each of us vibrated at some unique frequency in the continuous rainbow. Then I wanted to punch him. I suppose there's a name for that, too."
    -- Richard Powers, Bewilderment [2021]

    🌈🌱☀️💫

    #actuallyAutistic #actuallyADHD #bookstodon #rebcommendations