#trudiechalder — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #trudiechalder, aggregated by home.social.
-
News Bits–“Frail & Furious” for #Millions Missing; Usual Suspects at Psych Confab; Long COVID Advocates Channel ACT UP
By David Tuller, DrPH *This is a crowdfunding month at UC Berkeley. If you’d like to support my work, the link is here. ********** “Frail and Furious” on May 12th Each year on May 12th, an international day of ME awareness, #MillionsMissing protests are held in cities across the world and draw significant media attention. This month’s #MillionsMissing campaign has the tagline “Frail & Furious,” according to the page for the event on #MEAction’s site. The organization launched the campaign ten years ago. Why specifically “frail”? (“Furious” is easy to understand.) Here’s why, per #MEAction: “In the U.S., new Medicaid rules will force people with ME and Long COVID to work 80 hours per month or lose their government health insurance, unless they can prove they have a “serious or complex medical condition” in order to get a “medically frail” exemption. “We know that both are true for the majority of our community but, once again, we are having to fight to prove this to our health leaders. When ME is overlooked, people are denied the protections, services, and support that medically frail patients are supposed to receive.” Here’s some more information from the site: “Government and healthcare systems around the world fail to classify myalgic encephalomyelitis (ME) as a serious, complex medical condition, leading to significant neglect in medical care and social services. Diagnoses are often delayed for years, disability qualifications are complicated, and our health care is at risk. ME receives far less funding for research relative to disease burden (only 3-7% of comparable illnesses), despite massive economic costs. Over and over again, people with ME and Long COVID are asked to prove their medical frailty – how sick we really are. “This #MillionsMissing, we are Frail and Furious! This May, we will come together to show the world how devastating this …