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#raredisordersmonth — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #raredisordersmonth, aggregated by home.social.

  1. Of course, none of this is really about me, it's about the way we support and care (or not) for some of the most vulnerable in our society.

    Thursday the 29th of February was International #RareDiseaseDay, but here in NZ we've gone ahead and claimed the entire month of March as #RareDisordersMonth

    Rare is everywhere. 300,000 people in NZ alone are affected. More than diabetes, more than the population of Wellington. It's time for rare people to be seen.