#pkuday — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pkuday, aggregated by home.social.
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Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.
#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU
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Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.
#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU
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Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.
#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU
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Tomorrow my guest post goes live on @RareBeacon for #PKUDay. I talk about Navigating Adulthood with PKU, and why community voices matter.
#PKU, #PKUDay, #RareDisease, #Phenylketonuria #LivingWithPKU
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One Man. 10 Days. An epic challenge.
At 7am on 28 July, PKU dad Ian Spriggs will jog out of the car park at Southmead Hospital, Bristol and point his battered trainers north.
Ten days, 110-ish hours of foot‑time, and roughly 370 miles later, he hopes to trot through the doors of the Royal Victoria Infirmary, Newcastle, the hospital that has supported his daughter Molly since birth.
Please support Ian’s quest!
https://www.pigpen.page/bristol-to-newcastle-2025/ -
International PKU Day today and the start of the summer holidays for our youngest child and PKUer. So she’s double celebrating with a pack of Wotsits and 6 Rowntree’s Randoms while bingeing Star Versus the Forces of Evil. #PKU #PKUday #PKUday2024
#PKUlife #PKUdiet
https://www.espku.org/projects/pku-day/ -
International PKU Day today and the start of the summer holidays for our youngest child and PKUer. So she’s double celebrating with a pack of Wotsits and 6 Rowntree’s Randoms while bingeing Star Versus the Forces of Evil. #PKU #PKUday #PKUday2024
#PKUlife #PKUdiet
https://www.espku.org/projects/pku-day/