#pcnslymphoma — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pcnslymphoma, aggregated by home.social.
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Today is Rare Disease Day.
I've got two of those. :catjam:
First is familial hypercholesterolemia. This is not your run--of-the-mill hypercholesterolemia. No. This cannot be just treated with diet and exercise. Even the statins aren't great at treating it. The state of the art is a PCSK9 inhibitor. This, this does wonders.
Then, there's the PCNS lymphoma. Lymphomas are already considered rare. The PCNS form is even rarer. I'm over 5 years in remission and doing fine.
May we eradicate all diseases, from the commonest to the rarest.
#RareDiseaseDay2026 #RareDiseaseDay #hypercholesterolemia #FamilialHypercholesterolemia #PCSK9Inhibitor #lymphoma #cancer #PCNSLymphoma #CancerSurvivor #HeartAttackSurvivor
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Today is Rare Disease Day.
I've got two of those. :catjam:
First is familial hypercholesterolemia. This is not your run--of-the-mill hypercholesterolemia. No. This cannot be just treated with diet and exercise. Even the statins aren't great at treating it. The state of the art is a PCSK9 inhibitor. This, this does wonders.
Then, there's the PCNS lymphoma. Lymphomas are already considered rare. The PCNS form is even rarer. I'm over 5 years in remission and doing fine.
May we eradicate all diseases, from the commonest to the rarest.
#RareDiseaseDay2026 #RareDiseaseDay #hypercholesterolemia #FamilialHypercholesterolemia #PCSK9Inhibitor #lymphoma #cancer #PCNSLymphoma #CancerSurvivor #HeartAttackSurvivor
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Today is Rare Disease Day.
I've got two of those. :catjam:
First is familial hypercholesterolemia. This is not your run--of-the-mill hypercholesterolemia. No. This cannot be just treated with diet and exercise. Even the statins aren't great at treating it. The state of the art is a PCSK9 inhibitor. This, this does wonders.
Then, there's the PCNS lymphoma. Lymphomas are already considered rare. The PCNS form is even rarer. I'm over 5 years in remission and doing fine.
May we eradicate all diseases, from the commonest to the rarest.
#RareDiseaseDay2026 #RareDiseaseDay #hypercholesterolemia #FamilialHypercholesterolemia #PCSK9Inhibitor #lymphoma #cancer #PCNSLymphoma #CancerSurvivor #HeartAttackSurvivor
-
Today is Rare Disease Day.
I've got two of those. :catjam:
First is familial hypercholesterolemia. This is not your run--of-the-mill hypercholesterolemia. No. This cannot be just treated with diet and exercise. Even the statins aren't great at treating it. The state of the art is a PCSK9 inhibitor. This, this does wonders.
Then, there's the PCNS lymphoma. Lymphomas are already considered rare. The PCNS form is even rarer. I'm over 5 years in remission and doing fine.
May we eradicate all diseases, from the commonest to the rarest.
#RareDiseaseDay2026 #RareDiseaseDay #hypercholesterolemia #FamilialHypercholesterolemia #PCSK9Inhibitor #lymphoma #cancer #PCNSLymphoma #CancerSurvivor #HeartAttackSurvivor
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I just saw the report from the brain MRI I got last Sunday. It opens with:
"Stable examination. No evidence of residual or recurrent lymphoma."
That's what I wanna read. :catjam:
I have a virtual appointment with my oncologist this afternoon.
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I just saw the report from the brain MRI I got last Sunday. It opens with:
"Stable examination. No evidence of residual or recurrent lymphoma."
That's what I wanna read. :catjam:
I have a virtual appointment with my oncologist this afternoon.
-
I just saw the report from the brain MRI I got last Sunday. It opens with:
"Stable examination. No evidence of residual or recurrent lymphoma."
That's what I wanna read. :catjam:
I have a virtual appointment with my oncologist this afternoon.
-
I just saw the report from the brain MRI I got last Sunday. It opens with:
"Stable examination. No evidence of residual or recurrent lymphoma."
That's what I wanna read. :catjam:
I have a virtual appointment with my oncologist this afternoon.