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#latediagnosed — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #latediagnosed, aggregated by home.social.

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  1. Even trying to come up with analogies for it is hard.

    It's not like I have medicine for a sickness and I don't think it'll work. It's more like "I know this will help but this burnout is making me feel even less safe than usual and now I'm terrified of mostly just perceived humiliation so I shan't take the medicine". Which is, at the very least, illogical.

    I can actually appreciate my mind a lot of the time, too. But not at moments like this.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  2. Even trying to come up with analogies for it is hard.

    It's not like I have medicine for a sickness and I don't think it'll work. It's more like "I know this will help but this burnout is making me feel even less safe than usual and now I'm terrified of mostly just perceived humiliation so I shan't take the medicine". Which is, at the very least, illogical.

    I can actually appreciate my mind a lot of the time, too. But not at moments like this.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  3. Currently dealing with something super cool and awesome. Late diagnosed autistic, and currently going through what is quite severe autistic burnout.

    The cool thing is that I just remembered a couple times I went non-verbal rather than fighting tooth and nail to mask and fawn, and how good it was for my body/senses/nerves to allow myself to go non-verbal instead... And yet, it feels so extremely humiliating in retrospect, that I can't or won't let myself do it this time.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  4. Currently dealing with something super cool and awesome. Late diagnosed autistic, and currently going through what is quite severe autistic burnout.

    The cool thing is that I just remembered a couple times I went non-verbal rather than fighting tooth and nail to mask and fawn, and how good it was for my body/senses/nerves to allow myself to go non-verbal instead... And yet, it feels so extremely humiliating in retrospect, that I can't or won't let myself do it this time.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  5. Currently dealing with something super cool and awesome. Late diagnosed autistic, and currently going through what is quite severe autistic burnout.

    The cool thing is that I just remembered a couple times I went non-verbal rather than fighting tooth and nail to mask and fawn, and how good it was for my body/senses/nerves to allow myself to go non-verbal instead... And yet, it feels so extremely humiliating in retrospect, that I can't or won't let myself do it this time.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  6. Currently dealing with something super cool and awesome. Late diagnosed autistic, and currently going through what is quite severe autistic burnout.

    The cool thing is that I just remembered a couple times I went non-verbal rather than fighting tooth and nail to mask and fawn, and how good it was for my body/senses/nerves to allow myself to go non-verbal instead... And yet, it feels so extremely humiliating in retrospect, that I can't or won't let myself do it this time.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  7. Currently dealing with something super cool and awesome. Late diagnosed autistic, and currently going through what is quite severe autistic burnout.

    The cool thing is that I just remembered a couple times I went non-verbal rather than fighting tooth and nail to mask and fawn, and how good it was for my body/senses/nerves to allow myself to go non-verbal instead... And yet, it feels so extremely humiliating in retrospect, that I can't or won't let myself do it this time.

    #autistic #actuallyautistic #latediagnosed #autisticburnout #fawnresponse

  8. For decades, I chased in-person belonging through choirs, church groups, and community events. I performed the expected roles while drowning in sensory overload, masking, and accessibility barriers. I have finally stopped forcing it. I am accepting that my true home has always been online.

    In the mid-90s, it was the early web and BBS systems where I first found disabled peers. Then came IRC, where hours of text chat kept depression and burnout at bay. Facebook followed in 2006, though I only kept it for family. Twitter became a lifeline later on. A group of us who are blind shared our days in real time. When accessibility was dismantled and third-party apps died, I moved here to Mastodon. Finding this autistic and neurodivergent community has been a revelation.

    Online spaces give me information, rhythm, and connection without the unbearable cost of physical navigation and social performance. Realising this brings grief for the years I spent striving to fit a mould that was never built for me. It also brings immense relief. This is not a retreat. It is a return to where I fit.

    I am curious if anyone else has reached this same acceptance. I would love to hear how you manage the physical realities of a predominantly online life. I am figuring out how to handle exercise alongside managing meals and daily health routines. I am also very interested to hear if anyone uses body doubling to get these physical tasks done.

    Please share your experiences and strategies in the replies.

    #AuDHD #ActuallyAutistic #Blind #Disability #Neurodivergent #Monotropism #BodyDoubling #Accessibility #LateDiagnosed

  9. For decades, I chased in-person belonging through choirs, church groups, and community events. I performed the expected roles while drowning in sensory overload, masking, and accessibility barriers. I have finally stopped forcing it. I am accepting that my true home has always been online.

    In the mid-90s, it was the early web and BBS systems where I first found disabled peers. Then came IRC, where hours of text chat kept depression and burnout at bay. Facebook followed in 2006, though I only kept it for family. Twitter became a lifeline later on. A group of us who are blind shared our days in real time. When accessibility was dismantled and third-party apps died, I moved here to Mastodon. Finding this autistic and neurodivergent community has been a revelation.

    Online spaces give me information, rhythm, and connection without the unbearable cost of physical navigation and social performance. Realising this brings grief for the years I spent striving to fit a mould that was never built for me. It also brings immense relief. This is not a retreat. It is a return to where I fit.

    I am curious if anyone else has reached this same acceptance. I would love to hear how you manage the physical realities of a predominantly online life. I am figuring out how to handle exercise alongside managing meals and daily health routines. I am also very interested to hear if anyone uses body doubling to get these physical tasks done.

    Please share your experiences and strategies in the replies.

    #AuDHD #ActuallyAutistic #Blind #Disability #Neurodivergent #Monotropism #BodyDoubling #Accessibility #LateDiagnosed

  10. For decades, I chased in-person belonging through choirs, church groups, and community events. I performed the expected roles while drowning in sensory overload, masking, and accessibility barriers. I have finally stopped forcing it. I am accepting that my true home has always been online.

    In the mid-90s, it was the early web and BBS systems where I first found disabled peers. Then came IRC, where hours of text chat kept depression and burnout at bay. Facebook followed in 2006, though I only kept it for family. Twitter became a lifeline later on. A group of us who are blind shared our days in real time. When accessibility was dismantled and third-party apps died, I moved here to Mastodon. Finding this autistic and neurodivergent community has been a revelation.

    Online spaces give me information, rhythm, and connection without the unbearable cost of physical navigation and social performance. Realising this brings grief for the years I spent striving to fit a mould that was never built for me. It also brings immense relief. This is not a retreat. It is a return to where I fit.

    I am curious if anyone else has reached this same acceptance. I would love to hear how you manage the physical realities of a predominantly online life. I am figuring out how to handle exercise alongside managing meals and daily health routines. I am also very interested to hear if anyone uses body doubling to get these physical tasks done.

    Please share your experiences and strategies in the replies.

    #AuDHD #ActuallyAutistic #Blind #Disability #Neurodivergent #Monotropism #BodyDoubling #Accessibility #LateDiagnosed

  11. For decades, I chased in-person belonging through choirs, church groups, and community events. I performed the expected roles while drowning in sensory overload, masking, and accessibility barriers. I have finally stopped forcing it. I am accepting that my true home has always been online.

    In the mid-90s, it was the early web and BBS systems where I first found disabled peers. Then came IRC, where hours of text chat kept depression and burnout at bay. Facebook followed in 2006, though I only kept it for family. Twitter became a lifeline later on. A group of us who are blind shared our days in real time. When accessibility was dismantled and third-party apps died, I moved here to Mastodon. Finding this autistic and neurodivergent community has been a revelation.

    Online spaces give me information, rhythm, and connection without the unbearable cost of physical navigation and social performance. Realising this brings grief for the years I spent striving to fit a mould that was never built for me. It also brings immense relief. This is not a retreat. It is a return to where I fit.

    I am curious if anyone else has reached this same acceptance. I would love to hear how you manage the physical realities of a predominantly online life. I am figuring out how to handle exercise alongside managing meals and daily health routines. I am also very interested to hear if anyone uses body doubling to get these physical tasks done.

    Please share your experiences and strategies in the replies.

    #AuDHD #ActuallyAutistic #Blind #Disability #Neurodivergent #Monotropism #BodyDoubling #Accessibility #LateDiagnosed

  12. For decades, I chased in-person belonging through choirs, church groups, and community events. I performed the expected roles while drowning in sensory overload, masking, and accessibility barriers. I have finally stopped forcing it. I am accepting that my true home has always been online.

    In the mid-90s, it was the early web and BBS systems where I first found disabled peers. Then came IRC, where hours of text chat kept depression and burnout at bay. Facebook followed in 2006, though I only kept it for family. Twitter became a lifeline later on. A group of us who are blind shared our days in real time. When accessibility was dismantled and third-party apps died, I moved here to Mastodon. Finding this autistic and neurodivergent community has been a revelation.

    Online spaces give me information, rhythm, and connection without the unbearable cost of physical navigation and social performance. Realising this brings grief for the years I spent striving to fit a mould that was never built for me. It also brings immense relief. This is not a retreat. It is a return to where I fit.

    I am curious if anyone else has reached this same acceptance. I would love to hear how you manage the physical realities of a predominantly online life. I am figuring out how to handle exercise alongside managing meals and daily health routines. I am also very interested to hear if anyone uses body doubling to get these physical tasks done.

    Please share your experiences and strategies in the replies.

    #AuDHD #ActuallyAutistic #Blind #Disability #Neurodivergent #Monotropism #BodyDoubling #Accessibility #LateDiagnosed

  13. CW: therapy, mental health

    One of the things I've come to realise is that despite my ability to highly mask, is just how much of my life has been lived in what I referred to (for the first time today) as "inside myself and my inner world" and realising how that's made it incredibly hard to form lasting friendships and relationships.

    #AuDHD #LateDiagnosed

  14. CW: therapy, mental health

    One of the things I've come to realise is that despite my ability to highly mask, is just how much of my life has been lived in what I referred to (for the first time today) as "inside myself and my inner world" and realising how that's made it incredibly hard to form lasting friendships and relationships.

    #AuDHD #LateDiagnosed

  15. CW: therapy, mental health

    One of the things I've come to realise is that despite my ability to highly mask, is just how much of my life has been lived in what I referred to (for the first time today) as "inside myself and my inner world" and realising how that's made it incredibly hard to form lasting friendships and relationships.

    #AuDHD #LateDiagnosed

  16. CW: therapy, mental health

    One of the things I've come to realise is that despite my ability to highly mask, is just how much of my life has been lived in what I referred to (for the first time today) as "inside myself and my inner world" and realising how that's made it incredibly hard to form lasting friendships and relationships.

    #AuDHD #LateDiagnosed

  17. CW: therapy, mental health

    One of the things I've come to realise is that despite my ability to highly mask, is just how much of my life has been lived in what I referred to (for the first time today) as "inside myself and my inner world" and realising how that's made it incredibly hard to form lasting friendships and relationships.

    #AuDHD #LateDiagnosed

  18. For years, authorities and others in positions of power have made it very clear that autistic people’s experiences wouldn’t be taken seriously without a diagnosis.

    And now, in some quarters at least, we're the ones being blamed for overloading the system 🤷‍♀️

    #ClinicalPsychology #ActuallyAutistic #LateDiagnosed #Diagnosis #Autism #UtaFrith

  19. For years, authorities and others in positions of power have made it very clear that autistic people’s experiences wouldn’t be taken seriously without a diagnosis.

    And now, in some quarters at least, we're the ones being blamed for overloading the system 🤷‍♀️

    #ClinicalPsychology #ActuallyAutistic #LateDiagnosed #Diagnosis #Autism #UtaFrith

  20. For years, authorities and others in positions of power have made it very clear that autistic people’s experiences wouldn’t be taken seriously without a diagnosis.

    And now, in some quarters at least, we're the ones being blamed for overloading the system 🤷‍♀️

    #ClinicalPsychology #ActuallyAutistic #LateDiagnosed #Diagnosis #Autism #UtaFrith

  21. For years, authorities and others in positions of power have made it very clear that autistic people’s experiences wouldn’t be taken seriously without a diagnosis.

    And now, in some quarters at least, we're the ones being blamed for overloading the system 🤷‍♀️

  22. For years, authorities and others in positions of power have made it very clear that autistic people’s experiences wouldn’t be taken seriously without a diagnosis.

    And now, in some quarters at least, we're the ones being blamed for overloading the system 🤷‍♀️

    #ClinicalPsychology #ActuallyAutistic #LateDiagnosed #Diagnosis #Autism #UtaFrith

  23. Dear Fediverse, connect me with fellow neurodivergent people. 🎲

    #LateDiagnosed #ADHD #AuDHD #Autism

  24. Dear Fediverse, connect me with fellow neurodivergent people. 🎲

    #LateDiagnosed #ADHD #AuDHD #Autism

  25. I almost cried when I discovered this book in the library yesterday and I had only just read the list of chapters. I told at least 8 of those lies to myself constantly for the last 20 years. I still believe versions of most of them. I'm still at the beginning of unlearning these. At least this provides some structure for my negative self talk.

    The book is Small Talk by Richard & Roxanne Pink

    @actuallyadhd #adhd #latediagnosed #shame #neurodivergent

  26. I almost cried when I discovered this book in the library yesterday and I had only just read the list of chapters. I told at least 8 of those lies to myself constantly for the last 20 years. I still believe versions of most of them. I'm still at the beginning of unlearning these. At least this provides some structure for my negative self talk.

    The book is Small Talk by Richard & Roxanne Pink

    @actuallyadhd #adhd #latediagnosed #shame #neurodivergent

  27. I almost cried when I discovered this book in the library yesterday and I had only just read the list of chapters. I told at least 8 of those lies to myself constantly for the last 20 years. I still believe versions of most of them. I'm still at the beginning of unlearning these. At least this provides some structure for my negative self talk.

    The book is Small Talk by Richard & Roxanne Pink

    @actuallyadhd #adhd #latediagnosed #shame #neurodivergent

  28. I almost cried when I discovered this book in the library yesterday and I had only just read the list of chapters. I told at least 8 of those lies to myself constantly for the last 20 years. I still believe versions of most of them. I'm still at the beginning of unlearning these. At least this provides some structure for my negative self talk.

    The book is Small Talk by Richard & Roxanne Pink

    @actuallyadhd #adhd #latediagnosed #shame #neurodivergent

  29. I almost cried when I discovered this book in the library yesterday and I had only just read the list of chapters. I told at least 8 of those lies to myself constantly for the last 20 years. I still believe versions of most of them. I'm still at the beginning of unlearning these. At least this provides some structure for my negative self talk.

    The book is Small Talk by Richard & Roxanne Pink

    @actuallyadhd #adhd #latediagnosed #shame #neurodivergent

  30. "It is often said that autistics can sense other people's energy, and the slightest shifts and changes in them can throw us off balance and leave us feeling confused and frustrated."

    #Autism #Autistic #LateDiagnosed #Neurodivergent

    From 'Lost & Now Found: a guide to understanding and accepting yourself for late-discovered autistic adults' by Kate Laine-Toner and Suzi Payton

  31. "It is often said that autistics can sense other people's energy, and the slightest shifts and changes in them can throw us off balance and leave us feeling confused and frustrated."

    #Autism #Autistic #LateDiagnosed #Neurodivergent

    From 'Lost & Now Found: a guide to understanding and accepting yourself for late-discovered autistic adults' by Kate Laine-Toner and Suzi Payton

  32. "It is often said that autistics can sense other people's energy, and the slightest shifts and changes in them can throw us off balance and leave us feeling confused and frustrated."

    #Autism #Autistic #LateDiagnosed #Neurodivergent

    From 'Lost & Now Found: a guide to understanding and accepting yourself for late-discovered autistic adults' by Kate Laine-Toner and Suzi Payton

  33. "It is often said that autistics can sense other people's energy, and the slightest shifts and changes in them can throw us off balance and leave us feeling confused and frustrated."

    From 'Lost & Now Found: a guide to understanding and accepting yourself for late-discovered autistic adults' by Kate Laine-Toner and Suzi Payton

  34. "It is often said that autistics can sense other people's energy, and the slightest shifts and changes in them can throw us off balance and leave us feeling confused and frustrated."

    #Autism #Autistic #LateDiagnosed #Neurodivergent

    From 'Lost & Now Found: a guide to understanding and accepting yourself for late-discovered autistic adults' by Kate Laine-Toner and Suzi Payton

  35. @hmm_cook
    "why am I....? I should at least be able to.... Everyone else is...... How come I can't....?"

    Voice in my head. Every. Single. Day.

    #latediagnosed #adultautist #ND #actualautism #internalisedableism

  36. I hate this time of year. The Dread starts around August when I 1st think abt the calls & making my excuses to avoid flying & all the end of the year stuff.

    The Obligatory Thanksgiving calls are done so that's out of the way, but even though it's just me & my SO who I absolutely love not doing anything holiday-related, I'm still full-on in The Awful Time. The Holidays still happen & what is a well-needed break for most people is agonizing, life-draining hell for me.

    My routines are destroyed for over a month. I'm always perceived. There's always noise. I'm locked in a masked freeze state. My time alone is completely stripped & I'm hiding in the bathroom just to get 5 minutes of solitude for a mini-meltdown so I can keep it together for another few hours. I am anxiously counting down until the holidays are over & I finally get a break from the chaos & intrusion. All while hating myself & feeling shame and guilt for every second of it because what an awful way to feel about spending time with someone you love. At least now I know I'm #Autistic & that's why.

    35 days to go.

    #Autism #actuallyautistic #holidays #MentalHealth #AutisticBurnout #AutisticAdult #AutisticWoman #Stress #stillMasking #InvisibleDisability #LateDiagnosed

  37. I hate this time of year. The Dread starts around August when I 1st think abt the calls & making my excuses to avoid flying & all the end of the year stuff.

    The Obligatory Thanksgiving calls are done so that's out of the way, but even though it's just me & my SO who I absolutely love not doing anything holiday-related, I'm still full-on in The Awful Time. The Holidays still happen & what is a well-needed break for most people is agonizing, life-draining hell for me.

    My routines are destroyed for over a month. I'm always perceived. There's always noise. I'm locked in a masked freeze state. My time alone is completely stripped & I'm hiding in the bathroom just to get 5 minutes of solitude for a mini-meltdown so I can keep it together for another few hours. I am anxiously counting down until the holidays are over & I finally get a break from the chaos & intrusion. All while hating myself & feeling shame and guilt for every second of it because what an awful way to feel about spending time with someone you love. At least now I know I'm #Autistic & that's why.

    35 days to go.

    #Autism #actuallyautistic #holidays #MentalHealth #AutisticBurnout #AutisticAdult #AutisticWoman #Stress #stillMasking #InvisibleDisability #LateDiagnosed

  38. I hate this time of year. The Dread starts around August when I 1st think abt the calls & making my excuses to avoid flying & all the end of the year stuff.

    The Obligatory Thanksgiving calls are done so that's out of the way, but even though it's just me & my SO who I absolutely love not doing anything holiday-related, I'm still full-on in The Awful Time. The Holidays still happen & what is a well-needed break for most people is agonizing, life-draining hell for me.

    My routines are destroyed for over a month. I'm always perceived. There's always noise. I'm locked in a masked freeze state. My time alone is completely stripped & I'm hiding in the bathroom just to get 5 minutes of solitude for a mini-meltdown so I can keep it together for another few hours. I am anxiously counting down until the holidays are over & I finally get a break from the chaos & intrusion. All while hating myself & feeling shame and guilt for every second of it because what an awful way to feel about spending time with someone you love. At least now I know I'm #Autistic & that's why.

    35 days to go.

    #Autism #actuallyautistic #holidays #MentalHealth #AutisticBurnout #AutisticAdult #AutisticWoman #Stress #stillMasking #InvisibleDisability #LateDiagnosed

  39. I hate this time of year. The Dread starts around August when I 1st think abt the calls & making my excuses to avoid flying & all the end of the year stuff.

    The Obligatory Thanksgiving calls are done so that's out of the way, but even though it's just me & my SO who I absolutely love not doing anything holiday-related, I'm still full-on in The Awful Time. The Holidays still happen & what is a well-needed break for most people is agonizing, life-draining hell for me.

    My routines are destroyed for over a month. I'm always perceived. There's always noise. I'm locked in a masked freeze state. My time alone is completely stripped & I'm hiding in the bathroom just to get 5 minutes of solitude for a mini-meltdown so I can keep it together for another few hours. I am anxiously counting down until the holidays are over & I finally get a break from the chaos & intrusion. All while hating myself & feeling shame and guilt for every second of it because what an awful way to feel about spending time with someone you love. At least now I know I'm #Autistic & that's why.

    35 days to go.

    #Autism #actuallyautistic #holidays #MentalHealth #AutisticBurnout #AutisticAdult #AutisticWoman #Stress #stillMasking #InvisibleDisability #LateDiagnosed

  40. I hate this time of year. The Dread starts around August when I 1st think abt the calls & making my excuses to avoid flying & all the end of the year stuff.

    The Obligatory Thanksgiving calls are done so that's out of the way, but even though it's just me & my SO who I absolutely love not doing anything holiday-related, I'm still full-on in The Awful Time. The Holidays still happen & what is a well-needed break for most people is agonizing, life-draining hell for me.

    My routines are destroyed for over a month. I'm always perceived. There's always noise. I'm locked in a masked freeze state. My time alone is completely stripped & I'm hiding in the bathroom just to get 5 minutes of solitude for a mini-meltdown so I can keep it together for another few hours. I am anxiously counting down until the holidays are over & I finally get a break from the chaos & intrusion. All while hating myself & feeling shame and guilt for every second of it because what an awful way to feel about spending time with someone you love. At least now I know I'm #Autistic & that's why.

    35 days to go.

    #Autism #actuallyautistic #holidays #MentalHealth #AutisticBurnout #AutisticAdult #AutisticWoman #Stress #stillMasking #InvisibleDisability #LateDiagnosed

  41. This show on YouTube

    Adhd chatter

    Made by Alex Paltridge

    I'm loving it so much

    #adhd
    #LateDiagnosed
    #latediagnosedadhd

  42. This show on YouTube

    Adhd chatter

    Made by Alex Paltridge

    I'm loving it so much

    #adhd
    #LateDiagnosed
    #latediagnosedadhd

  43. This show on YouTube

    Adhd chatter

    Made by Alex Paltridge

    I'm loving it so much

    #adhd
    #LateDiagnosed
    #latediagnosedadhd

  44. This show on YouTube

    Adhd chatter

    Made by Alex Paltridge

    I'm loving it so much

    #adhd
    #LateDiagnosed
    #latediagnosedadhd