#veds — Public Fediverse posts

One of the nice things about Mastodon is being able to filter things out from specific areas.

Things like GoFundMe are allowed in many instances; however, I don't really care to see them, so I filtered them out. The reality is I have enough problems with my family and #veds, and me with #longcovid. My financial resources are with my family first and foremost, as we have no idea where tomorrow will go with our health and lives.

One of the nice things about Mastodon is being able to filter things out from specific areas.

Things like GoFundMe are allowed in many instances; however, I don't really care to see them, so I filtered them out. The reality is I have enough problems with my family and #veds, and me with #longcovid. My financial resources are with my family first and foremost, as we have no idea where tomorrow will go with our health and lives.

One of the nice things about Mastodon is being able to filter things out from specific areas.

Things like GoFundMe are allowed in many instances; however, I don't really care to see them, so I filtered them out. The reality is I have enough problems with my family and #veds, and me with #longcovid. My financial resources are with my family first and foremost, as we have no idea where tomorrow will go with our health and lives.

One of the nice things about Mastodon is being able to filter things out from specific areas.

Things like GoFundMe are allowed in many instances; however, I don't really care to see them, so I filtered them out. The reality is I have enough problems with my family and #veds, and me with #longcovid. My financial resources are with my family first and foremost, as we have no idea where tomorrow will go with our health and lives.

One of the nice things about Mastodon is being able to filter things out from specific areas.

Things like GoFundMe are allowed in many instances; however, I don't really care to see them, so I filtered them out. The reality is I have enough problems with my family and #veds, and me with #longcovid. My financial resources are with my family first and foremost, as we have no idea where tomorrow will go with our health and lives.

https://marfan.org/conference/

I am not there this year, as I am at home with the kids instead of us all going to this year's #Marfan conference in Atlanta. It's been a busy summer!

Probably a long shot here, but is anyone out in the Fediverse in Atlanta, GA (US) for it? #veds #marfan #lds #marfanconf #vedsmovement

Please don't hesitate to private message me. My spouse is there, and they do an astonishing job sharing their skills in #mentalhealth and supporting the community. I am happy to help connect people with support there on the virtual front.

Likewise, if you're not there but need someone to talk to, I am open myself as well. Also happy to help connect you with this growing and mighty community for support!

https://marfan.org/conference/

I am not there this year, as I am at home with the kids instead of us all going to this year's #Marfan conference in Atlanta. It's been a busy summer!

Probably a long shot here, but is anyone out in the Fediverse in Atlanta, GA (US) for it? #veds #marfan #lds #marfanconf #vedsmovement

Please don't hesitate to private message me. My spouse is there, and they do an astonishing job sharing their skills in #mentalhealth and supporting the community. I am happy to help connect people with support there on the virtual front.

Likewise, if you're not there but need someone to talk to, I am open myself as well. Also happy to help connect you with this growing and mighty community for support!

https://marfan.org/conference/

I am not there this year, as I am at home with the kids instead of us all going to this year's #Marfan conference in Atlanta. It's been a busy summer!

Probably a long shot here, but is anyone out in the Fediverse in Atlanta, GA (US) for it? #veds #marfan #lds #marfanconf #vedsmovement

Please don't hesitate to private message me. My spouse is there, and they do an astonishing job sharing their skills in #mentalhealth and supporting the community. I am happy to help connect people with support there on the virtual front.

Likewise, if you're not there but need someone to talk to, I am open myself as well. Also happy to help connect you with this growing and mighty community for support!

https://marfan.org/conference/

I am not there this year, as I am at home with the kids instead of us all going to this year's #Marfan conference in Atlanta. It's been a busy summer!

Probably a long shot here, but is anyone out in the Fediverse in Atlanta, GA (US) for it? #veds #marfan #lds #marfanconf #vedsmovement

Please don't hesitate to private message me. My spouse is there, and they do an astonishing job sharing their skills in #mentalhealth and supporting the community. I am happy to help connect people with support there on the virtual front.

Likewise, if you're not there but need someone to talk to, I am open myself as well. Also happy to help connect you with this growing and mighty community for support!

https://marfan.org/conference/

I am not there this year, as I am at home with the kids instead of us all going to this year's #Marfan conference in Atlanta. It's been a busy summer!

Probably a long shot here, but is anyone out in the Fediverse in Atlanta, GA (US) for it? #veds #marfan #lds #marfanconf #vedsmovement

Please don't hesitate to private message me. My spouse is there, and they do an astonishing job sharing their skills in #mentalhealth and supporting the community. I am happy to help connect people with support there on the virtual front.

Likewise, if you're not there but need someone to talk to, I am open myself as well. Also happy to help connect you with this growing and mighty community for support!

Please check out myaorticjourney.org - my story plus a growing list of resources for aortic disease education, awareness, management, research, and support. #aortaed #aorticdissection #tad #htad #marfan #loeysdietz #veds #bav #cardiogen #cardiology

#HealthNews #vEDS #EhlersDanlos #Genetics — Research: Risk of aorta damage Vascular EDS tied to aging. Read: https://ehlersdanlosnews.com/news/risk-aorta-damage-vascular-eds-tied-aging/

#HealthNews #vEDS #EhlersDanlos #Genetics — Research: Risk of aorta damage Vascular EDS tied to aging. Read: https://ehlersdanlosnews.com/news/risk-aorta-damage-vascular-eds-tied-aging/