#unitetofight2024 — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #unitetofight2024, aggregated by home.social.
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Summary of the #UniteToFight2024 conference [first international conference on Long Covid and ME/CFS] by @katha1970
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC -
From X:
@U2Fight_World
New Video!Prof. Dr. Georg Schomerus delves into the stigma of #LongCOVID & #MECFS, exploring the effects of psychologization & the need for better support & awareness.
Watch his insightful talk from #UniteToFight2024 now!
📽️ https://youtu.be/xx8rV2YeIj8
Tom: have seen praised but haven't watched myself so far
Hashtags:
@longcovid
#PwLC #postcovid #postcovid19 #Covidlonghaulers #PostCovidSyndrome #PASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME -
Only found this just now: The first batch of videos from #UniteToFight2024 are now online. Can be found here:
https://yewtu.be/channel/UCkBXIS4yxRvztQ0U-uRDbSA
Finally i can watch the sessions i missed or was too tired to watch ;)
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Nach der #UniteToFight2024 Konferenz berichte ich @NZZ über das kaum thematisierte erhöhte Suizidrisiko bei #LongCovid #MECFS, über den Stand der Therapieforschung und über heutige Behandlungsoptionen: https://www.nzz.ch/wissenschaft/erhoehtes-suizidrisiko-bei-long-covid-und-mecfs-ld.1832563
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Amy Proal, lead author of last year's Nature Immunology review on #SARSCoV2 persistence/reservoir, gave an awesome talk at the #UniteToFight2024 conference summarizing evidence and research considerations
A highlight: she emphasized that enterovirus infection of the vagus nerve has been hypothesized as a possibility in #MECFS for several years, and remains a possibility with SARSCoV2 & long covid
https://www.youtube.com/watch?v=FcEHGIrKsQ8
#covid #covid19 #LongCovid #pandemic #PublicHealth #CovidIsNotOver
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🔥Fantastic DaniBeckman!🙏
On the term “Brain Fog” in #LongCovid“We are seeing neurons dying.
We are seeing brains shrinking.
We don’t say people with dementia have “brain fog”.
You have the virus inside your neurons!
We need to be using the right terms.” -
#UniteToFight2024
Internationale #MECFS- und #LongCOVID-Konferenz„Wir müssen uns endlich eingestehen, wie gewaltig dieses Problem ist“
Auf der Online-Konferenz „Unite To Fight“ haben Patienten und Mediziner erstmals gemeinsam über ME/CFS und Long COVID gesprochen.
Gravierende Folgen auch für den Arbeitsmarkt:
„Bis zum Jahr 2033 werden voraussichtlich eine Milliarde Menschen an Long COVID leiden – die meisten davon in den ökonomisch aktiven Altersgruppen.“
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#LongCovid- und #MECFS-Erkrankte haben eine internationale Großkonferenz organisiert, um ihre Situation zu verdeutlichen. Anlass ist eine Reihe von Suiziden.
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#UnitetoFight2024 war echt eine sehr spannende Konferenz. Viele Insights mitgenommen, an so mancher Stelle endlich mal "the bigger picture" verstanden, das hinter dieser schweren und komplexen Krankheit steckt. Die Vorträge werden in den kommenden Wochen übersetzt und veröffentlicht. Checkt also regelmäßig die Seite:
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Putrino-Time: "We have much more to unite us than we have to divide us." He speaks about PAIS (post-acute infection syndromes) here, but this goes so far beyond that.
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I was busy with the #UniteToFight2024 #LongCovid and #MECFS conference today
and
COMPLETELY forgot about 🍊 TRUMP and the threat he is to democracy.
I CAN'T WAIT FOR HIM TO LOSE AGAIN SO WE CAN FORGET ABOUT HIM AND NEVER EVER HAVE TO WORRY ABOUT HIM BECOMING PRESIDENT EVER AGAIN. 🤞🏼🤞🏼🤞🏼
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LongCovid and MECFS research is going on - this is a request to share as we need a more diverse pool of study participants.
Please share with those you know.
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Hat jemand meiner Follower die #UniteToFight2024 verfolgt? Ich war heute leider nicht in der Nähe eines Rechners und habe nichts mitbekommen.
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Some pretty great talks at #UniteToFight2024 Day 1, but literally ALL the people giving talks are only active on #Twix and most of the discussion happens there?!
I could not go back to that platform for a million moniz, but we do miss out on a lot here.
Switching to Mastodon has been a very isolating experience for me. Almost the entire #LongCOVID community is still active on that horrible fascist website. I do find most information here eventually, but second hand.
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#Time100 - Akiko Iwasaki
On this #MEAwarenessDay , I am preparing my talk for the #UniteToFight2024 to share our research and insights on #LongCovid and #PAIS. #MECFS is a serious health crisis that requires urgent attention and action on a global scale. Help us raise awareness today.
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Wenn sich #MECFS- oder #LongCovid-Erkrankte das Leben nehmen, ist das bisher ein Tabuthema. Doch Studien zeigen eine erhöhte Suizidrate unter #postviral Erkrankten. Ein Grund ist ihre Stigmatisierung. Die Konferenz #UniteToFight2024 soll Hoffnung machen: @martinruecker https://www.riffreporter.de/de/wissen/suizidrisiko-sterbehilfe-long-covid-mecfs-stigmatisierung
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UniteToFight is organizing an online ME/CFS & #LongCovid conference on 15-16 May.
https://unitetofight2024.world/
UniteToFight was inspired by the loss of Dutch ME/CFS patient Lauren who passed away earlier this year.
#UniteToFight2024 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs @mecfs_de @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid -
Demnächst findet eine #Konferenz zu #LongCOVID und #MECFS statt, die #UniteToFight2024.
Am 15. und 16.5. gibt ein Vortragsprogramm mit recht hochrangiger Besetzung. Die Teilnahme ist kostenlos und die Veranstaltung findet remote statt.
https://unitetofight2024.world/news/pressemitteilung-14-04-24/
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15.05. bis 16.05.2024
Unite to fight - ME/CFS und Long COVID KonferenzWeiterleiten! Spreaden! Teilnehmen! Supporten!
Online. Independent.
Community-driven. Crowd-funded.
The biggest community-driven ME/CFS and Long COVID conference ever!https://unitetofight2024.world/
#LongCovid #mecfs #unitetofight2024 #CovidIsNotOver #solidarity #Wirsindnichtalle #Gesundheit #Inklusion #LongCovidResearch #UNBRK #beHinderung #Gesundheitssystem
