#terminallyill — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #terminallyill, aggregated by home.social.
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Bart De Strooper presented at the Copenhagen AD/PD-conference an excellent sketch of the three main inflection points in the pathophysiological evolution of Alzheimer's disease, https://www.alzforum.org/news/conference-coverage/big-picture-three-inflection-points-mark-amyloid-cascade
My own transition from amyloid plagues to p-tau and tangles was retarded by a four years' anti-amyloid therapy in a clinical reaearch project during 2017-22 (aducanumab). Sadly, the most probable explanation for my rapidly worsening cognitive problems may indeed be the tau-tangles, which I somehow avoided earlier. I know there are experimental therapies around somewhere for those gremlins too, but sadly not within my own reach. With respect to my AD, I'm afraid, it's "too late, my friend".
I encourage anybody with a slowly lethal disease to keep mentally in touch with it as long as you can. That's what we human beings were made for. 🤗
#alzheimer #ad #at #disease #medical #amyloid #tau #lethal #sairaus #alzForum #realism #humanity #reflection #thinking #dying #terminallyill #metacognition #tietoisuus #consciousness
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Bart De Strooper presented at the Copenhagen AD/PD-conference an excellent sketch of the three main inflection points in the pathophysiological evolution of Alzheimer's disease, https://www.alzforum.org/news/conference-coverage/big-picture-three-inflection-points-mark-amyloid-cascade
My own transition from amyloid plagues to p-tau and tangles was retarded by a four years' anti-amyloid therapy in a clinical reaearch project during 2017-22 (aducanumab). Sadly, the most probable explanation for my rapidly worsening cognitive problems may indeed be the tau-tangles, which I somehow avoided earlier. I know there are experimental therapies around somewhere for those gremlins too, but sadly not within my own reach. With respect to my AD, I'm afraid, it's "too late, my friend".
I encourage anybody with a slowly lethal disease to keep mentally in touch with it as long as you can. That's what we human beings were made for. 🤗
#alzheimer #ad #at #disease #medical #amyloid #tau #lethal #sairaus #alzForum #realism #humanity #reflection #thinking #dying #terminallyill #metacognition #tietoisuus #consciousness
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Goa Govt offers one year paid medical leave for teachers with terminal illnesses like cancer, organ failure, ALS. Details & eligibility. https://english.mathrubhumi.com/news/india/goa-one-year-paid-medical-leave-terminally-ill-teachers-fbxgr2mu?utm_source=dlvr.it&utm_medium=mastodon #TerminallyIll #SchoolTeacher #Goa #LatestNews
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Buddhist temple aids #terminallyill
"Monks help last-stage patients restore spiritual #peace thru #palliative care while also deliv'g #Buddhist teachings so they can live e final part of their lives in peace.. aligns w #WHO's mission to promote various approaches to improv'g patients #qualityoflife & relieving their physical & mental suffering. It's also in line w Section 12 of National #Health Act.. a #gooddeath is what they try to achieve & main channel is #mindfulness"
https://www.bangkokpost.com/thailand/general/2865348/buddhist-temple-aids-terminally-ill -
A #hospice in #BradfordOnAvon is working with #ForestryEngland to bring the sounds and sights of #nature to #TerminallyIll patients.
#DorothyHouseHospice Care is offering a series of #VirtualReality videos to those who are unable to go outdoors.
#UsefulTech #VRforHealth #Medical #Health #EndOfLifeCare #DyingWithDignity #HospiceCare #HospicePatients #CompassionateCare #NatureSoothes #NatureTherapy #England
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A #Pride #protester took a #selfie with a #terminallyill #patient and faces #criminal #harassment charges, say #police.
#Authorities claim #BubbaChristopherMichaelPollock "harassed" #BrittLeroux on #socialmedia, then traveled from #London, #Ontario, to a #palliativecareunit in #Windsor, taking a #selfie with Leroux's #terminallyill #father—a clear "intimidation tactic."
#Women #Transgender #LGBTQ #LGBTQIA #Canada #Conservatives #Extremism #Harassment #Intimidation
https://www.insider.com/pride-protester-charged-after-selfie-terminally-ill-patient-police-2023-6
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A #Pride #protester took a #selfie with a #terminallyill #patient and faces #criminal #harassment charges, say #police.
#Authorities claim #BubbaChristopherMichaelPollock "harassed" #BrittLeroux on #socialmedia, then traveled from #London, #Ontario, to a #palliativecareunit in #Windsor, taking a #selfie with Leroux's #terminallyill #father—a clear "intimidation tactic."
#Women #Transgender #LGBTQ #LGBTQIA #Canada #Conservatives #Extremism #Harassment #Intimidation
https://www.insider.com/pride-protester-charged-after-selfie-terminally-ill-patient-police-2023-6
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Fighting for the #RighttoDie
https://www.stitcher.com/show/what-next/episode/fighting-for-the-right-to-die-302558132
A self-described activist had late-stage, fallopian tube #cancer. She didn’t live in one of the 11 jurisdictions that allows #terminallyill patients the choice to medically end their own lives. But rather than relocating, she argued Vermont’s residency restrictions were #unconstitutional. -
DWP rules leave terminally ill people still not getting benefits like PIP quickly enough
#DWP
#TerminallyIll
#PIP
#BenefitsForTerminallyIll
#UniversalCreditThe DWP leaves some terminally ill people struggling to access benefits like PIP, so a petition is calling for change
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Fast track benefits for all people diagnosed with a terminal illness - Petitions
#Benefits
#DWP
#TerminallyIll
#FastTrackBenefitsForTerninallyIll
#FastTrackBenefitsWe ask the Government to give anyone with a terminal illness fast-track access to financial support. This would stop people worrying about money and it would help them to focus on spending time with their family. This only happens if you have 12 months or less which penalises those who live longer
