#teachmetreatme — Public Fediverse posts

"The Year Ahead" - An update from #MEAction

https://www.meaction.net/2025/01/23/the-year-ahead/

Includes info on advocacy and medical education projects planned for 2025, and how you can get involved!

Did you know that a set of flash cards on IACCs (Infection-Associated Chronic Illnesses) was created for medical students as part of their #TeachMeTreatMe project?

The CDC now lists these flashcards as a resource on their website:

https://www.cdc.gov/me-cfs/hcp/toolkit/resources-for-medical-students.html

@mecfs

#MEcfs #PwME #MedEd #CDC #Education #Advocacy #Volunteer

#MEAction Network @MEActNet
“Dear Doctors” written by Jes Gordon and performed by
@meactionga
.
#MEAction Georgia created this powerful video and they also have a #TeachMETreatME event coming up Sept.18 at 4 pm ET. The target is nursing students and medical professionals but all are welcome! Spread the word!

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

The 'Teach ME, Treat ME' campaign is an ongoing fixture of #MEAction

"You can still email your doctor in the U.S. and ask them to take the Mayo Clinic CME ... or share a flier with them in person."

Template for contacting doctors by email:

https://docs.google.com/document/d/15jJZ3-eHQq0pVsshfK-E0so2ucvrBWAzK8en82Xfnfo/edit

Flyer with QR code:

https://drive.google.com/file/d/1a9FELbU6Lsk5Wlx3hNh9NM26kryW8CDl/view

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #CME #MayoClinic #HealthCare #TeachMeTreatME

This campaign also expanded #MEAction's reach on social media:

"One of the most exciting aspects of our #TeachMETreatME campaign was our reach to non-followers – people who are new to #MEAction.

These may be people who have never heard of ME but are ready to learn, researchers, politicians, clinicians, med students, journalists…you never know who you might reach on social media!"

https://www.meaction.net/2024/09/04/teachme-treatme-we-cant-believe-these-numbers/

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #SocialMedia

Update on the "Teach ME, Treat ME" medical education campaign from #MEAction :

https://www.meaction.net/2024/09/04/teachme-treatme-we-cant-believe-these-numbers/

"We tallied up some numbers from our 'Teach ME, Treat ME' campaign to educate clinicians and medical students about ME, and the results are fantastic!

The campaign has been a herculean effort by #MEAction staff and our 16 incredible teams across the U.S and U.K., and we are beyond proud!"

@mecfs @longcovid

#MEcfs #LongCovid #MedEd #CME #HealthCare #MayoClinic #TeachMeTreatME

A 3-minute video where numerous #MEcfs patients mention how long it took for them to get diagnosed.

#TeachMETreatME is an #MEAction campaign to educate healthcare workers about #MyalgicEncephalomyelitis by hosting Teach ME events

https://www.youtube.com/watch?v=h_PlrK0Nprg

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@tomkindlon

Thanks for the link, Tom. We definitely need more doctor education!

Anyone reading this can share the Mayo ME/CFS CME (continuing medical education) with their doctor(s):

https://millionsmissing.meaction.net/treatme/

Half of Long Covid patients meet ME/CFS diagnosis.

The link above is for folks in the USA, but #MEAction also did outreach in May in some other countries:

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

@mecfs @longcovid

#MEcfs #LongCovid #PwME #PwLC #TeachMETreatME

MEAction #TeachMETreatME: Celebrating An Impactful Campaign

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

"Over the past several months, clinicians and medical students across the U.S. have attended presentations, roundtables and conferences to learn about ME/CFS – and how to take the Mayo Clinic Proceedings Continuing Medical Education course on ME/CFS."

#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

1/

Here's the schedule for future "Teach ME, Treat ME" events:

https://meaction.controlshift.app/calendars/millionsmissing-2024

2/2

@mecfs

#MEcfs #PwME #LongCovid #PostCovid #MedEd #MedMastodon #MillionsMissing #TeachMETreatME

From #MEAction

"#TeachMETreatME: Celebrating An Impactful Campaign"

https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

"We are THRILLED to share the rolling successes of our 'Teach ME Treat ME' campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months!"

Article has lots more details along with reports of other Millions Missing events! 😁

1/2

@mecfs

#MEcfs #PwME #LongCovid #PostCovid #MedEd #MedMastodon #MillionsMissing

Sharing information about the Mayo ME/CFS document (Diagnosis and Management of ME/CFS) - and the associated CME (Continuing Medical Education) - is a great way to immediately improve patient care for people with ME/CFS.

Remember, roughly half of Long Covid patients meet the ME/CFS diagnostic criteria.

Need help crafting an email to send to your doctor? Here's a template:

https://docs.google.com/document/d/15jJZ3-eHQq0pVsshfK-E0so2ucvrBWAzK8en82Xfnfo/edit

5/n

@mecfs

#MedEd #MedMastodon #TeachMETreatME #MEcfs #LongCovid #WorldMEDay #MEAwarenessDay

This year #MEAction is focusing on educating medical professionals with a "Teach ME, Treat ME" campaign.

And you can help! 😁

Just share this link to the Mayo ME/CFS CME (Continuing Medical Education) with your doctor:

https://millionsmissing.meaction.net/treatme/

You can also print the document (8 pages) to bring to your next appointment. I've given it to several doctors - and so has my husband, who does not have ME/CFS!

4/n

@mecfs

#MedEd #MedMastodon #TeachMETreatME #MEcfs #WorldMEDay #MEAwarenessDay

Hannover
Nicht die Ärzte kämpfen hier, dass wir wieder gesund werden. Hier seht ihr sehr kranke Menschen. Ein paar von uns gehen über ihre Belastungsgrenzen und kämpfen so für die vielen Betroffenen - auch für uns, die nicht mehr aus dem Haus oder sogar aus dem Bett kommen 🙏
#LiegendDemofürMECFS
#LiegendDemoChallengeforME
#MECFSAwarenessDay
#globalvoiceforME
#pwME
#MECFS
#MillionsMissing
#netzwerkMECFS
#LostVoices
#WorldMEDay
#TeachMEtreatME

I've joined the "Teach ME, Treat ME" campaign from #MEAction

We're asking for ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) to be taught in medical schools and via continuing education (CME)

⭐️ And you can help! ⭐️

Please share this CME with your healthcare providers:

https://millionsmissing.meaction.net/treatme/

Need help crafting an email? Here's a template:

https://docs.google.com/document/d/15jJZ3-eHQq0pVsshfK-E0so2ucvrBWAzK8en82Xfnfo/edit

Thanks ❤️

@mecfs

#MEcfs #PwME #MedEd #LongCovid #TeachMETreatME #MillionsMissing

May 3rd presentation by Todd Davenport (about 1 1/2 hours) on MECFS & Long Covid:

"Post-Exertional Neuroimmune Exhaustion as a Bioenergetic Condition"

https://www.youtube.com/watch?v=vuoVAP1CC1Y&t=720s

(link skips part of intro)

I've not been able to watch this myself yet but wanted to pass it on.

@mecfs
@longcovid

#MECFS #LongCovid #TeachMETreatME #MedEd

This short video (about a minute) from #MEAction asks people with ME/CFS, "How long did it take you go get diagnosed?"

(ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome)

https://www.youtube.com/watch?v=tnzz2QwwaMs

I'm "lucky" because it only took me 5 years to get a diagnosis vs. an average of over 8 years (from the 417 responses they got).

What's your answer? 🤔

1/2

@mecfs

#MEcfs #PwME #TeachMETreatME #MedEd #MedMastodon

I gave this paper to my new primary care doctor recently (old doctor retired) During my medical history he said, "You must be a severe case."

I said, "I'm moderate. Severe cases are bedbound."

Like most doctors he didn't realize how disabling ME/CFS can be.

Doctors need accurate information! And roughly half of Long Covid cases meet the ME/CFS diagnosis so it's even more important now.

Please join the #TeachMeTreatMe campaign ❤️

https://www.meaction.net/2024/05/07/millionsmissing-week-is-here-teachmetreatme-in-action/

3/n

@mecfs

#MEcfs #LongCovid #PwME

One idea is to send a message to your doctor to tell them about the Mayo Clinic CME

#MEAction has a template for what to say:

https://docs.google.com/document/d/15jJZ3-eHQq0pVsshfK-E0so2ucvrBWAzK8en82Xfnfo/edit

You can also print the Mayo Proceedings document (8 pages) and bring it to your next doctor appointment. I gave a copy to my cardiologist. I *know* he read it because he referred to it in my chart notes! 😁

Link to Mayo doc and CME:

https://millionsmissing.meaction.net/treatme/

2/n

@mecfs

#MedEd #MedMastodon #MEcfs #LongCovid #MillionsMissing #TeachMETreatME

Only a few days left until May 12, World ME Day!

My advocacy actions may be small, but I'm trying to help spread the word! 😊

If you want to join in the MEAction group has a list of suggestions in this "Show Up From Home" toolkit (Google doc):

https://docs.google.com/document/d/163DeV93SRYNm7Aq2zC_uoaU7NIJmmydaJIi4BQDQDew/edit#heading=h.vyt35j7pvgd3

1/n

@mecfs

#MEcfs #LongCovid #MyalgicEncephalomyelitis #MillionsMissing #MEAwareness #WorldMEDay #TeachMETreatME

If you can, tell your doctor(s) about the Mayo CME (continuing medical education) for ME/CFS. There's an email template available that has a link to the CME:

https://docs.google.com/document/d/15jJZ3-eHQq0pVsshfK-E0so2ucvrBWAzK8en82Xfnfo/edit

I sent this info to my doctor using the messaging system (MyChart) that our clinic uses for communication.

2/3

@mecfs @longcovid

#MEcfs #LongCovid #TeachMETreatME #MedEd #MedMastodon

From #MEAction:

"We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME)."

https://www.meaction.net/2024/05/07/millionsmissing-week-is-here-teachmetreatme-in-action/

See link for upcoming events.

1/3

@mecfs
@longcovid

#MEcfs #LongCovid #TeachMETreatME #MedEd #MedMastodon

It's May! That means it's ME Awareness month, with World ME Day on May 12th!

I'm going to try to post about ME Awareness events over the next few weeks.

This year #MEAction has a campaign called "Teach ME, Treat ME" which will

"… educate hospital systems and medical schools about ME/CFS by encouraging medical schools to Teach ME, and major hospitals to Treat ME"

Here's the event schedule:

https://meaction.controlshift.app/calendars/millionsmissing-2024

@mecfs
#MEcfs #PwME #MedMastodon #MedEd #MillionsMissing #TeachMETreatME

From #MEAction:

"… we are asking the community to submit a quick video recording sharing how long it took to receive a ME diagnosis, to be featured during the campaign week.

This recording will highlight why there is a need for more medical providers to be educated about ME…"

Full email includes script suggestions & other details:

https://mailchi.mp/meaction/lights-camera-action-new-video-project-to-support-teachmetreatme

Video submission deadline is Tuesday, April 30, 11 AM Pacific

@mecfs

#MEcfs #PwME #LongCovid #MillionsMissing #MedEd #TeachMETreatME

The "Show Up From Home" toolkit rates the "Teach ME Treat ME" advocacy tasks by energy required, from lowest to highest.

I want to acknowledge that folks with severe ME may be unable to do even the low energy activities since they are in survival mode 😔

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #MyaglicEncephalomyelitis #MedEd #MedMastodon #Advocacy #TeachMeTreatME

#MEAction email:

"Teach ME Treat ME will be here in the next few weeks! While many of you are preparing to host medical education events, we know that thousands of you will be participating from home!

We are beyond excited to share the Show Up From Home Toolkit! This toolkit lays out an array of ways you can take action from home based on your energy level."

https://mailchi.mp/meaction/millionsmissing-2024-show-up-from-home-toolkit

@mecfs

#MEcfs #PwME #LongCovid #MillionsMissing #MedEd #MedMastodon #Advocacy #TeachMeTreatME

Email from #MEAction:

"We are less than a month away from launching #MillionsMissing 2024, and we are thrilled at the success we’re already seeing with the campaign!

We know the impact of #TeachMETreatME will be HUGE with thousands more clinicians across the country being educated on how to diagnose and treat the ME. Some of these clinicians will become the specialists we so desperately need."

Full email -

https://mailchi.mp/meaction/teachmetreatme-payoff-will-be-huge

@mecfs

#MEcfs #LongCovid #MedEd #MedMastodon #PatientLed

Jaime Seltzer posted a thread about #TeachMeTreatME on Bluesky:

"The Teach ME Treat ME campaign is turning out to be an incredibly successful campaign for Millions Missing this year! Local and state groups are doing in-person medical education events; #MEAction is also engaging in longer-term partnerships to create products to transform ME/CFS care. (1/6)"

Full thread here:

https://bsky.app/profile/exceedhergrasp1.bsky.social/post/3kpfuknclok22

@mecfs

#MEcfs #MillionsMissing #MedEd #Advocacy #MEAction

Want to learn more about the "Teach M.E. Treat M.E." program? Maybe sign up to be a volunteer?

Here's an email from #MEAction with more details:

https://mailchi.mp/meaction/millionsmissing-2024-off-to-a-great-start

#MillionsMissing
#MEcfs
#PwME
#TeachMETreatME
#GlobalMEDay

#MEAction has new t-shirts for Millions Missing 2024 (May 12)

One design has the new "Teach M.E., Treat M.E." slogan (about educating doctors) while the other one says Millions Missing 2024.

https://mailchi.mp/meaction/millionsmissing-2024-new-t-shirts-available

Multiple styles and colors are available in both designs.

Order by April 1st to make sure there's plenty of time for it to be shipped before May 12.

#MillionsMissing #MEcfs #PwME #TeachMETreatME #GlobalMEDay