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#t1diabetes — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #t1diabetes, aggregated by home.social.

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  1. Jacksonville family transforms son's Type 1 diabetes diagnosis into advocacy through Pablo's Pack T1D and Breakthrough T1D Walk, supporting research and community. #T1Diabetes #Advocacy

  2. Looks like soon insulin pumps in #Poland may actually be at least partially reimbursed for adults? ‼️

    #diabetes #t1diabetes #healthcare

    social.hackerspace.pl/@viq/116

  3. Libre CGM says 16 and rising... Just about to do a correction dose when I think "that seems off"... Finger prick test says 10.0! Glad I checked!

    #t1diabetes

  4. Sigh, second in a row #Dexcom #CGM sensor dead at 8.5 days instead of the official 10.5 days, and I'm out, currently waiting for delivery and I thought I still had a couple of days for that...
    #diabetes #t1diabetes #LifeWithDiabetes

  5. I can now say that both #xdrip and #AndroidAPS work perfectly well on #GrapheneOS, even with battery saver turned on.

    #t1d #t1diabetes #WeAreNotWaiting

  6. #Dexcom hat einen Brief geschickt, dass der #G6 #DexcomG6 Blutzuckersensor nur noch 2026 geliefert wird und ich dann zum #G7 #DexcomG7 wechseln soll.

    Funktioniert #Nightscout #Drip+ und/oder #AAPS schon mit dem G7?

    #T1D #T1Diabetes #Diabetes

  7. Anyone tried using #xdrip and/or #AndroidAPS and/or official #Dexcom apps on #GrapheneOS and can comment whether they work or not?

    #AskFedi #t1d #t1diabetes #WeAreNotWaiting

  8. Well, I'm glad I waited with upgrading phone to Android 15 until weekend, because now it's a dance and seeing what options to adjust, if any, to make xdrip actually keep getting the data from my #CGM sensor 💀

    #diabetes #LifeWithDiabetes #t1diabetes

  9. Hey people #SelfHosting your #NightScout instance! What do you use, how do you like it? Do you do backups of it?
    I'm talking to someone with a kid with #type1diabetes and they're interested in hosting their own, but they don't have that much experience wrangling computers to do their bidding. I have some ideas, but I'd like to first see what people do use.

    #t1diabetes #WeAreNotWaiting

  10. Hey people #SelfHosting your #NightScout instance! What do you use, how do you like it? Do you do backups of it?
    I'm talking to someone with a kid with #type1diabetes and they're interested in hosting their own, but they don't have that much experience wrangling computers to do their bidding. I have some ideas, but I'd like to first see what people do use.

    #t1diabetes #WeAreNotWaiting

  11. Exciting news! Dana-i insulin pumps are now possible to get in #Poland!
    They're among the best supported by #AndroidAPS. They're still Fucking Expensive (~16k PLN, about two average monthly salaries before taxes, you pay full price), but they're here!

    #WeAreNotWaiting #diabetes #t1d #t1diabetes

  12. I'm using the "opportunity" of a failed pump to remind myself what life on injections is like (for one, it's *much* easier logistically when e.g. travelling, camping). And the thing that's currently weirdest for me is not having to dance around the connected pump when dressing or undressing.
    #LifeWithDiabetes #t1d #t1diabetes #diabetes

  13. Are Medtronic CGM sensors programmed to die unpredictably early and always when I should be sleeping or am sleeping, and can't put in another till the next day? Usually the evening cause I gotta like work during the day. It's so much fun being forced back to blood tests on a device that is renown for being prone to hypoglycaemic events.

    #cgm #insulinpumps #T1diabetes #Medtronic #T1D #bloodtests #medicaltechnology #frustration

  14. Just had my scheduled meeting with a specialist Diabetes Dietician. Whilst trying to clarify some of the finer points about my understanding of glucose metabolism I mentioned that you don't need insulin for skeletal muscles to use glucose, and she stopped me and said I was definitely wrong and without insulin the muscles would be "screaming out for glucose"... and I wasn't going to argue with her in the room but now neither am I going to trust anything else she has to say. #diabetes #t1diabetes

  15. Looking for a user-friendly, simple, and easy way to track day-to-day diabetes-related events like your glucose measurements, insulin intakes, and gain insights into all of these?

    Look no further than this little indie app, specifically crafted to help you log & track all of these aspects of living with diabetes. Currently available on the AppStore:

    Glu Sight — apple.co/3Aho6BB

    @glusightapp #Diabetes #DiabetesManagement #t2diabetes #t1diabetes #DiabetesSupport #Health

  16. A century ago, #T1Diabetes sufferers didn't survive to adulthood. Today, #StemCell therapy promises to put the disease into remission.

    Two-and-a-half months after a half-hour treatment, a 25yo woman from Tianjin, #China, began to produce her own #insulin, can now eat sugar, and could well make a complete recovery. thenewdaily.com.au/life/2024/1 #science #biology #health #medicine #diabetes

  17. This is getting ridiculous. I just had a site get fully blocked after 1d12h (so in fact around 1d). Also finding out in the middle of the night is just great.
    #t1d #t1diabetes #diabeteslife

  18. Ah, yes, when in one position in bed you snore, so you get poked for that, but in all the others you put pressure on your #CGM sensor, so you get woken up every half an hour by an alert about hypoglycemia.
    #t1diabetes #LifeWithDiabetes

  19. Handwerkfestijn 2024
    Bezoek het Handwerkfestijn als je van handwerken houdt op vrijdag 28 en zaterdag 29 juni 2024 van 10 tot 17 uur.
    Locatie: Harco Hoveniers, Hogebrinkerweg 50, 3871 KN Hoevelaken
    De opbrengst is voor onderzoek naar diabetes type 1.

    diabeatit.nl/project/handwerkf

    #handwerken #t1diabetes #T1D #fundraising

  20. CW: mh -

    I'm paralysed trying to finally eat breakfast, because to dose #insulin properly I need to know whether I'll manage to drag myself out after or not.
    #JustDiabetesThings #diabetes #t1diabetes

  21. Just had a weird stress dream where my Libra Link software unexpectedly updated itself, connected with Facebook, and I started seeing the lines of other members of a Facebook diabetes support group when I went to check my blood sugar, like they had gamified it into some kind of weird competition.

    Abbott Pharmaceutical: if you are getting any ideas in this direction: no no no no no no.

    #diabetes #t1diabetes

  22. Mein erneuten "schlechtWetter" Tag habe ich genutzt ein neuen Antrag auf Schwerbehinderung zu stellen, mal sehen, vielleicht sind sie heute gnädiger als letztes Mal.

    Hoffentlich Falle ich nicht wieder der Einstellung: Erstmal ablehnen, mal sehen ob er sich wehrt.. zum Opfer.

    #t1diabetes
    #justnotsad

  23. OK Mastodon, anyone successfully using a deGooglefied phone with a #CGM app? i wear a #DexcomG6 using and a #TandemDiabetes #tSlim2 using the #tConnect app, all on #iOS. i’m maybe 2 years out on a new phone, and would very much like to get away from Apple and Google, but i’m worried these apps might not work on #GrapheneOS or #eOS. they exist for #Android, but seem pretty persnickety about versions. boosts welcome, especially if you know any #T1D / #T1diabetes nerds. ✌️

  24. So, this is potentially huge for diabetics in the UK.

    Only looks to be targeting about 25% of people so far, but when they all (hopefully) become much better controlled and healthier, we can get it rolled out to even more people!

    I have hopes for me personally, of course, maybe smooth out the mountain range my sugar levels normally are.

    bbc.co.uk/news/health-64211479

    #type1diabetes #type1diabetic #t1d #t1diabetes #nhs

  25. I have successfully brought my sky-high blood sugar back down to a stable landing (no hypo! whoo!) so now this diabetic and her insulin pump can now trundle off to bed. I'm wishing calm and sleep and energizing rest for you all, friends. (And no pump/CGM alarms, for my #t1Diabetes #DeadPancreasSociety clan.) #JoinIn

  26. CW: Type 1 diabetes

    Turns out if your insulin pump expires overnight and you don't get up to put on a new one, you get a very clear reminder how how much you rely upon an artificial pancreas!
    I went from 6.1 mmol/L on a gradual rise to 8.6 mmol/L.

    #diabetes #T1D #T1Diabetes #Type1diabetes #AAPS #insulinPump #insulin

  27. Here’s a Fun #Diabetes Fact for the day: turns out that not being EXPLICITLY ALLERGIC to your #insulin leads to much better blood sugar. Whodathunk. #t1d #t1diabetes

  28. Very #isleofwight toot and health related… where can I buy and drop off a big sharps bin? I’ve moved to stainless steel cannulas and need a sharps skip to keep up. The joys of #t1diabetes is never ending.

  29. Guess it's time for a proper #introduction, eh? Never feel more boring than when I try to do these! I'm an #eventplanner by day, & have #t1diabetes & associated #chronicillness stuff. Lover of all things #knitting & #yarn; also #sewing #embroidery #textile & #folkmusic #tradmusic. Owned by a series of stumpy-legged #rescue #dogs. Married. #socialjustice #inclusivity matter. #ontario #canada

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