#strokesurvivor — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #strokesurvivor, aggregated by home.social.
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One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: https://tinyurl.com/n48yufdb #strokesurvivor #braininjury
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One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: https://tinyurl.com/n48yufdb #strokesurvivor #braininjury
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We were on our way to the village parks department fitness when we caught the beginning of TED Radio Hour episode, “Future You.”
We worked out a little and swam, being kind to our future selves by committing to exercise.
I worked my left leg hard!
#StrokeSurvivor -
One last thing: retail therapy.
I was going to NOT get sucked into Amazon’s Prime Days, but stuff I’ve been watching for months on sale.
Have all this free time for sewing but carpal tunnel tinglies triggered by handling fabric. Will try it with quilting gloves next.
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I chucked a full laundry bag from 2nd floor to first floor, and from there to foyer (double railings on both sets of steps):
When I got home from inpatient rehab hospital, I slept on the family room couch for weeks (off foyer) because I wanted a second railing to 2nd floor
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Another achievement unlocked: got my “lightweight” AFO orthosis to fit a pair of slip-on Merrill walking shoes with good tread. Going for a walk this afternoon to break them in and get used to them, avoiding blisters and abrasions.
I
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Achievement unlocked: went downstairs to start a load of laundry, had been avoiding as there’s one handrail. Finally felt confident descending with cane braced to the right, rail gripped with (weaker) left hand.
Trained at PT months ago but chickened out before.
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Tim Curry Opens Up About His Life-Changing Stroke — And His Incredible Spirit Will Inspire You ❤️🩹 #TimCurry #RockyHorror #Inspiration #Legend #StrokeSurvivor #ActorLife #FrankNFurter #YouTube https://www.youtube.com/watch?v=SoDsCW2xtn8
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Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.
Sat on front porch for the unboxing.
See alt text for comparison.
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Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.
Sat on front porch for the unboxing.
See alt text for comparison.
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On the days I don’t have physical therapy, I’m supposed to do my strength/balance exercises at home.
On those days, I’m a little like Cheffy. It’s hard to be motivated.
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Health update: per the EMG yesterday, turns out the burning, tingling sensation in my hands is carpal tunnel, probably due to incorrectly adjusted Walker, cane and rollator height. Too much weight thru the wrists!
REALLY annoyed, could have been prevented!corrected in JUNE. #StrokeSurvivor
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Yesterday in exciting #StrokeSurvivor news, I ran thru the sprinklers at day rehab.
Was practicing walking on uneven lawn with cane and physio when the sprinklers came on. I quickly led us to safety, drawing on a childhood gauging the spray of Rain-Birds and such.
We both got hit. 😹🌧️🌧️🌧️🌦️
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Next challenge: tackle the basement stairs, which has one handrail on the left (weak) side. The laundry room and my training bike “Veda” is down there.
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On way to day rehab; one more week of OT/PT almost done and dusted. And I get a solo ride on the township bus, always a marker of a good day.
Talked to my orthotic guy yesterday, can get my brace cut back to save weight/be flexible later when PT plays it.
#StrokeSurvivor -
Off I go on the township bus to day rehab. I am still improving so they want me to keep coming until I plateau.
Now climbing the bus steps instead of taking the lift. The driver helps get the walker up.
Cane practice at rehab today.
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Crap, it’s raining. I use a walker currently, so getting down the driveway to the township shuttle bus will be interesting.
Hoping by winter that I’m walking better.
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Miss Catty Lavelle was super lovey-dovey-dovey last night; I slept upstairs and she went into a head-bonky ecstatic cuddlefest. I had debated whether to stay downstairs or make the effort, so I guess that was my reward.
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Today in #StrokeSurvivor news…
I made it to the friggin second floor so I can take a shower and sleep in my own friggin bed for the first time since 11MAY25.
The steps were easier than I thought, the transitions at the top of the first flight of 4 and second flight of 10 steps were a little dicey
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Mischief managed: a girlfriend picked me up for lunch, dropped me off at #DayRehab - and we’ll set up a standing date for doing exercises at home via phone. We did that during COVID when I could walk 3-6 miles for an easy workout.
Now, I can do a few hundred yards max.
#StrokeSurvivor -
My occupational therapy task for today: assemble this tub/shower transfer bench so I can take a shower safely.
My occupational therapist recommended this one, was bored so I put it together. No tools, seems very solid. #strokesurvivor
Drive Medical 12011KD-1 Tub... https://www.amazon.com/dp/B002VWK0T6?ref=ppx_pop_mob_ap_share
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One day closer to going home from rehab.
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Yep, more #StrokeSurvivor info. You definitely want to #BEFAST
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Bringing big Borg energy to my #StrokeSurvivor journey today; Got my ankle/foot brace today. In a routine assessment this morning, was asked birthdate, location, and “who is the President of the United States?”
“That is a loaded question, I’d rather not say. But as you can see, I’m a #Resistor “
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Bringing big Borg energy to my #StrokeSurvivor journey today; Got my ankle/foot brace today. In a routine assessment this morning, was asked birthdate, location, and “who is the President of the United States?”
“That is a loaded question, I’d rather not say. But as you can see, I’m a #Resistor “
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Bringing big Borg energy to my #StrokeSurvivor journey today; Got my ankle/foot brace today. In a routine assessment this morning, was asked birthdate, location, and “who is the President of the United States?”
“That is a loaded question, I’d rather not say. But as you can see, I’m a #Resistor “
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Bringing big Borg energy to my #StrokeSurvivor journey today; Got my ankle/foot brace today. In a routine assessment this morning, was asked birthdate, location, and “who is the President of the United States?”
“That is a loaded question, I’d rather not say. But as you can see, I’m a #Resistor “
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Bringing big Borg energy to my #StrokeSurvivor journey today; Got my ankle/foot brace today. In a routine assessment this morning, was asked birthdate, location, and “who is the President of the United States?”
“That is a loaded question, I’d rather not say. But as you can see, I’m a #Resistor “
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What’s this? Another prompt I want to actually take somewhat seriously?
Who are your favorite people to be around?
People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.
I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.
I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.
-Allēna
#charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning
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What’s this? Another prompt I want to actually take somewhat seriously?
Who are your favorite people to be around?
People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.
I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.
I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.
-Allēna
#charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning
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HE’S JUST LIKE ME FOR REAL 🤣🤣🤣
One of my crushes sent me this and it basically hit me in the damn soul and I started crying laughing and had to share it here.
If I don’t know you or trust you, I would rather do ANYTHING ELSE than acknowledge that you’ve just flirted with me, but believe me, I know, and believe me, I’m Fucking Panicking. Often for YEARS. OOOPS 🤣
I do really like this guy, though…
-Lazarus
#ActuallyAutistic #alexithymia #MadMastodon #MadStudies #mentalhealth #neurodivergence #quoiromantic #quoisexual #strokeSurvivor #whatAreFeelings
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My Brainhole… Visualized
A bit of context: my friend mk (it/its) posted an incredible thought piece on its Substack on feral anarchy, what it means, etc., and I found it very inspiring. I, too, am quite feral, a synesthete, have zero sense of linear time, and have built my very neuroqueer life from a place of loosely organized chaos. So I decided to make art that aimed to describe my experience a bit. Therefore… Have this!
Many of the words in this art piece are from my poetry, hehe.
I highly recommend reading mk’s work if you do not and following/subscribing! It’s doing great things.
-Lazarus ✨
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#actuallyAuDHD #ActuallyAutistic #collaboration #CripplePunk #DigitalArt #ferality #inspiration #myArt #neuroqueer #nonlinearTime #strokeSurvivor #synesthesia #visualArt
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Looking for any other stroke or CVA survivors who run (or try to run). Hoping to start a community of us or join one already going #CVA #strokesurvivor #Ischemic #CVI #disabledrunner #running
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Looking for any other stroke or CVA survivors who run (or try to run). Hoping to start a community of us or join one already going #CVA #strokesurvivor #Ischemic #CVI #disabledrunner #running
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Looking for any other stroke or CVA survivors who run (or try to run). Hoping to start a community of us or join one already going #CVA #strokesurvivor #Ischemic #CVI #disabledrunner #running
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✅Stroke signs and symptoms in English and Spanish.
⏰Every 40 sec, someone in the United States has a stroke. Every 3.5 minutes, someone dies of stroke.
🔊By learning and sharing the F.A.S.T. warning signs, you just might save a life from stroke.
#health #strokeawareness #preventivecare #ems #communityhealth #publichealth #latinos #strokesurvivor #stroke
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🚨Save A Life From Stroke👇🏾
🗣️Stroke signs and symptoms in English and Spanish
⏰Every 40 sec, someone in the United States has a stroke. Every 3.5 minutes, someone dies of stroke.
👉🏽By learning and sharing the F.A.S.T. warning signs, you just might save a life from stroke.
#strokeawareness #Strokesurvivor #preventivecare #stroke #health #firstresponders #ems #latinos
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Mom has learned how to send me photos from her phone 😊 This is from my 48th birthday last month. With my #Dad before heading out with a friend.
#family #FatherAndDaughter #ILoveMyDad #CaregiverLife #FamilyPhoto #StrokeSurvivor #TBISurvivor #AsianMastodon #Teochew #Chinese
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#Dad enjoying a sweet bun 🥰
For folks who donated to help my family - this is the man who has benefited from your kindness & donations. Our family is very grateful for the caring strangers who help our family out. Thanks, again ❤🙌❤#family #MyFather #TBISurvivor #StrokeSurvivor #CaregiverLife #CaregivingIsAnHonour
