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#stroke-survivor — Public Fediverse posts

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  1. #Today #3Things

    1. Complete flat-out exhaustion. No single reason. Just creeps up on me sometimes. I've learnt the hard way to give in and rest. #StrokeSurvivor

    2. #FathersDay unless you had my father in which case fuck Father's Day. #CPTSD

    3. Had a call scheduled with a close friend who's in Europe. Sadly she had a work emergency (she's the disability rights commissioner for an EU member state and is on call 24/7) so we'll try again next weekend.

  2. #Today #3Things

    1. Complete flat-out exhaustion. No single reason. Just creeps up on me sometimes. I've learnt the hard way to give in and rest. #StrokeSurvivor

    2. #FathersDay unless you had my father in which case fuck Father's Day. #CPTSD

    3. Had a call scheduled with a close friend who's in Europe. Sadly she had a work emergency (she's the disability rights commissioner for an EU member state and is on call 24/7) so we'll try again next weekend.

  3. Had a small stroke scare this afternoon. I got these weird spasms in my left arm much like I did when I had a sizable stroke in November 2024.

    Then realized I had pretty much just pinched a nerve from lying awkwardly on my left side all morning. Nevertheless, I made sure to take my blood pressure drugz and popped a few low-dose aspirin just in case. Checked my BP and it was absolutely normal.

    #StrokeSurvivor

  4. Had a small stroke scare this afternoon. I got these weird spasms in my left arm much like I did when I had a sizable stroke in November 2024.

    Then realized I had pretty much just pinched a nerve from lying awkwardly on my left side all morning. Nevertheless, I made sure to take my blood pressure drugz and popped a few low-dose aspirin just in case. Checked my BP and it was absolutely normal.

    #StrokeSurvivor

  5. Had a small stroke scare this afternoon. I got these weird spasms in my left arm much like I did when I had a sizable stroke in November 2024.

    Then realized I had pretty much just pinched a nerve from lying awkwardly on my left side all morning. Nevertheless, I made sure to take my blood pressure drugz and popped a few low-dose aspirin just in case. Checked my BP and it was absolutely normal.

    #StrokeSurvivor

  6. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  7. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  8. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  9. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  10. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  11. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  12. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  13. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  14. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  15. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  16. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  17. One moment I was at work, the next I was in panic with stroke-like symptoms. A blue-light run to QA Hospital changed everything. Life can flip in a heartbeat. Check out my journey with STOP, POLICE! Join the list: tinyurl.com/n48yufdb #strokesurvivor #braininjury

  18. I've been quiet but working hard. I'm now taking bigger steps when walking and can even take a few steps without the cane; and I'm now able to write very slowly, use a fork or spoon, and floss my teeth. Long way to go still, but some small victories. It's been almost 5 months. #strokesurvivor

  19. I've been quiet but working hard. I'm now taking bigger steps when walking and can even take a few steps without the cane; and I'm now able to write very slowly, use a fork or spoon, and floss my teeth. Long way to go still, but some small victories. It's been almost 5 months. #strokesurvivor

  20. I've been quiet but working hard. I'm now taking bigger steps when walking and can even take a few steps without the cane; and I'm now able to write very slowly, use a fork or spoon, and floss my teeth. Long way to go still, but some small victories. It's been almost 5 months. #strokesurvivor

  21. We were on our way to the village parks department fitness when we caught the beginning of TED Radio Hour episode, “Future You.”

    We worked out a little and swam, being kind to our future selves by committing to exercise.

    I worked my left leg hard!
    #StrokeSurvivor

    one.npr.org/i/1182387784:nx-s1

  22. We were on our way to the village parks department fitness when we caught the beginning of TED Radio Hour episode, “Future You.”

    We worked out a little and swam, being kind to our future selves by committing to exercise.

    I worked my left leg hard!
    #StrokeSurvivor

    one.npr.org/i/1182387784:nx-s1

  23. We were on our way to the village parks department fitness when we caught the beginning of TED Radio Hour episode, “Future You.”

    We worked out a little and swam, being kind to our future selves by committing to exercise.

    I worked my left leg hard!
    #StrokeSurvivor

    one.npr.org/i/1182387784:nx-s1

  24. We were on our way to the village parks department fitness when we caught the beginning of TED Radio Hour episode, “Future You.”

    We worked out a little and swam, being kind to our future selves by committing to exercise.

    I worked my left leg hard!
    #StrokeSurvivor

    one.npr.org/i/1182387784:nx-s1

  25. We were on our way to the village parks department fitness when we caught the beginning of TED Radio Hour episode, “Future You.”

    We worked out a little and swam, being kind to our future selves by committing to exercise.

    I worked my left leg hard!
    #StrokeSurvivor

    one.npr.org/i/1182387784:nx-s1

  26. One last thing: retail therapy.

    I was going to NOT get sucked into Amazon’s Prime Days, but stuff I’ve been watching for months on sale.

    Have all this free time for sewing but carpal tunnel tinglies triggered by handling fabric. Will try it with quilting gloves next.

    #Quilting
    #StrokeSurvivor

  27. One last thing: retail therapy.

    I was going to NOT get sucked into Amazon’s Prime Days, but stuff I’ve been watching for months on sale.

    Have all this free time for sewing but carpal tunnel tinglies triggered by handling fabric. Will try it with quilting gloves next.

    #Quilting
    #StrokeSurvivor

  28. One last thing: retail therapy.

    I was going to NOT get sucked into Amazon’s Prime Days, but stuff I’ve been watching for months on sale.

    Have all this free time for sewing but carpal tunnel tinglies triggered by handling fabric. Will try it with quilting gloves next.

    #Quilting
    #StrokeSurvivor

  29. One last thing: retail therapy.

    I was going to NOT get sucked into Amazon’s Prime Days, but stuff I’ve been watching for months on sale.

    Have all this free time for sewing but carpal tunnel tinglies triggered by handling fabric. Will try it with quilting gloves next.

    #Quilting
    #StrokeSurvivor

  30. One last thing: retail therapy.

    I was going to NOT get sucked into Amazon’s Prime Days, but stuff I’ve been watching for months on sale.

    Have all this free time for sewing but carpal tunnel tinglies triggered by handling fabric. Will try it with quilting gloves next.

    #Quilting
    #StrokeSurvivor

  31. I chucked a full laundry bag from 2nd floor to first floor, and from there to foyer (double railings on both sets of steps):

    When I got home from inpatient rehab hospital, I slept on the family room couch for weeks (off foyer) because I wanted a second railing to 2nd floor

    #StrokeSurvivor

  32. Another achievement unlocked: got my “lightweight” AFO orthosis to fit a pair of slip-on Merrill walking shoes with good tread. Going for a walk this afternoon to break them in and get used to them, avoiding blisters and abrasions.

    I

    #StrokeSurvivor

  33. I chucked a full laundry bag from 2nd floor to first floor, and from there to foyer (double railings on both sets of steps):

    When I got home from inpatient rehab hospital, I slept on the family room couch for weeks (off foyer) because I wanted a second railing to 2nd floor

    #StrokeSurvivor

  34. Another achievement unlocked: got my “lightweight” AFO orthosis to fit a pair of slip-on Merrill walking shoes with good tread. Going for a walk this afternoon to break them in and get used to them, avoiding blisters and abrasions.

    I

    #StrokeSurvivor

  35. Another achievement unlocked: got my “lightweight” AFO orthosis to fit a pair of slip-on Merrill walking shoes with good tread. Going for a walk this afternoon to break them in and get used to them, avoiding blisters and abrasions.

    I

    #StrokeSurvivor

  36. I chucked a full laundry bag from 2nd floor to first floor, and from there to foyer (double railings on both sets of steps):

    When I got home from inpatient rehab hospital, I slept on the family room couch for weeks (off foyer) because I wanted a second railing to 2nd floor

    #StrokeSurvivor

  37. I chucked a full laundry bag from 2nd floor to first floor, and from there to foyer (double railings on both sets of steps):

    When I got home from inpatient rehab hospital, I slept on the family room couch for weeks (off foyer) because I wanted a second railing to 2nd floor

    #StrokeSurvivor

  38. Another achievement unlocked: got my “lightweight” AFO orthosis to fit a pair of slip-on Merrill walking shoes with good tread. Going for a walk this afternoon to break them in and get used to them, avoiding blisters and abrasions.

    I

    #StrokeSurvivor

  39. I chucked a full laundry bag from 2nd floor to first floor, and from there to foyer (double railings on both sets of steps):

    When I got home from inpatient rehab hospital, I slept on the family room couch for weeks (off foyer) because I wanted a second railing to 2nd floor

    #StrokeSurvivor

  40. Another achievement unlocked: got my “lightweight” AFO orthosis to fit a pair of slip-on Merrill walking shoes with good tread. Going for a walk this afternoon to break them in and get used to them, avoiding blisters and abrasions.

    I

    #StrokeSurvivor

  41. Achievement unlocked: went downstairs to start a load of laundry, had been avoiding as there’s one handrail. Finally felt confident descending with cane braced to the right, rail gripped with (weaker) left hand.

    Trained at PT months ago but chickened out before.

    #StrokeSurvivor

  42. Achievement unlocked: went downstairs to start a load of laundry, had been avoiding as there’s one handrail. Finally felt confident descending with cane braced to the right, rail gripped with (weaker) left hand.

    Trained at PT months ago but chickened out before.

    #StrokeSurvivor

  43. Achievement unlocked: went downstairs to start a load of laundry, had been avoiding as there’s one handrail. Finally felt confident descending with cane braced to the right, rail gripped with (weaker) left hand.

    Trained at PT months ago but chickened out before.

    #StrokeSurvivor

  44. Achievement unlocked: went downstairs to start a load of laundry, had been avoiding as there’s one handrail. Finally felt confident descending with cane braced to the right, rail gripped with (weaker) left hand.

    Trained at PT months ago but chickened out before.

    #StrokeSurvivor

  45. Achievement unlocked: went downstairs to start a load of laundry, had been avoiding as there’s one handrail. Finally felt confident descending with cane braced to the right, rail gripped with (weaker) left hand.

    Trained at PT months ago but chickened out before.

    #StrokeSurvivor

  46. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  47. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  48. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  49. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  50. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  51. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  52. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  53. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  54. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.

  55. Ordered 2 different flexible AFO braces from Amazon. My custom brace is heavy, too bulky for most shoes except New Balance (boo). I was desperate to wear my Cadense shoes, and will need to wear winter boots too.

    Sat on front porch for the unboxing.

    #StrokeSurvivor

    See alt text for comparison.