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#spondylitis — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #spondylitis, aggregated by home.social.

  1. @the I agree, it's like when I refer to myself as an invertebrate (as my spine has more damaged disks than intact & fully functional ones by a factor of at least 2 to 1) and yes I've been told to "stop that", when it's a pretty close to reality of a joke.

    I'm not harming anyone in this & it's tiresome to get others trying to micromanage my choice in terms used for my medical conditions.
    #ChronicLife #SpinalStenosis #DegenerativeDiskDisease #Spondylitis

  2. @the I agree, it's like when I refer to myself as an invertebrate (as my spine has more damaged disks than intact & fully functional ones by a factor of at least 2 to 1) and yes I've been told to "stop that", when it's a pretty close to reality of a joke.

    I'm not harming anyone in this & it's tiresome to get others trying to micromanage my choice in terms used for my medical conditions.
    #ChronicLife #SpinalStenosis #DegenerativeDiskDisease #Spondylitis

  3. @the I agree, it's like when I refer to myself as an invertebrate (as my spine has more damaged disks than intact & fully functional ones by a factor of at least 2 to 1) and yes I've been told to "stop that", when it's a pretty close to reality of a joke.

    I'm not harming anyone in this & it's tiresome to get others trying to micromanage my choice in terms used for my medical conditions.
    #ChronicLife #SpinalStenosis #DegenerativeDiskDisease #Spondylitis

  4. @the I agree, it's like when I refer to myself as an invertebrate (as my spine has more damaged disks than intact & fully functional ones by a factor of at least 2 to 1) and yes I've been told to "stop that", when it's a pretty close to reality of a joke.

    I'm not harming anyone in this & it's tiresome to get others trying to micromanage my choice in terms used for my medical conditions.
    #ChronicLife #SpinalStenosis #DegenerativeDiskDisease #Spondylitis

  5. @the I agree, it's like when I refer to myself as an invertebrate (as my spine has more damaged disks than intact & fully functional ones by a factor of at least 2 to 1) and yes I've been told to "stop that", when it's a pretty close to reality of a joke.

    I'm not harming anyone in this & it's tiresome to get others trying to micromanage my choice in terms used for my medical conditions.
    #ChronicLife #SpinalStenosis #DegenerativeDiskDisease #Spondylitis

  6. Ferocious Designs to take part in Banding Together 2025 on BlowUpRadio.com, Oct. 16-22

    For a fifth straight year, Ferocious Designs will participate in BlowUpRadio.com‘s Banding Together benefit for the Spondylitis Association of America. This year’s super-sized Banding Together webathon will be a week-long event featuring 90 live performances from October 16 through October 22.

    Brian Kelley of Ferocious Designs will present a live set on Sunday, October 19, at 3 p.m. ET. With a minimum $20 donation to the Spondylitis Association of America, listeners will receive a code to download the 233-song “Big Box of Music” compilation celebrating 25 years of BlowUpRadio.com and featuring “Looking for the Light” by Ferocious Designs.

    “I usually do stripped-down sets for Banding Together, but I’ve started playing to simple rhythm tracks the past couple of years so I decided to record new backing tracks to accompany me on piano and vocals,” said Kelley. “And, actually, for the second half of one song, I’ll be playing acoustic guitar live for the first time in my life so it could be an absolute train wreck — tune in to find out!

    “Oh, and while I encourage you to tune in to all of Banding Together, please tune in before my set to hear my longtime friend and collaborator Christian Beach, who goes on at 2:20 p.m. (ET) on October 19,” added Kelley.

    Visit BlowUpRadio.com for the full Banding Together 2025 performance schedule, details about the “Big Box of Music” download and the link to donate to the Spondylitis Association of America.

    https://youtu.be/EAXop6jKkVQ

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  7. Ferocious Designs to take part in Banding Together 2025 on BlowUpRadio.com, Oct. 16-22

    For a fifth straight year, Ferocious Designs will participate in BlowUpRadio.com‘s Banding Together benefit for the Spondylitis Association of America. This year’s super-sized Banding Together webathon will be a week-long event featuring 90 live performances from October 16 through October 22.

    Brian Kelley of Ferocious Designs will present a live set on Sunday, October 19, at 3 p.m. ET. With a minimum $20 donation to the Spondylitis Association of America, listeners will receive a code to download the 233-song “Big Box of Music” compilation celebrating 25 years of BlowUpRadio.com and featuring “Looking for the Light” by Ferocious Designs.

    “I usually do stripped-down sets for Banding Together, but I’ve started playing to simple rhythm tracks the past couple of years so I decided to record new backing tracks to accompany me on piano and vocals,” said Kelley. “And, actually, for the second half of one song, I’ll be playing acoustic guitar live for the first time in my life so it could be an absolute train wreck — tune in to find out!

    “Oh, and while I encourage you to tune in to all of Banding Together, please tune in before my set to hear my longtime friend and collaborator Christian Beach, who goes on at 2:20 p.m. (ET) on October 19,” added Kelley.

    Visit BlowUpRadio.com for the full Banding Together 2025 performance schedule, details about the “Big Box of Music” download and the link to donate to the Spondylitis Association of America.

    https://youtu.be/EAXop6jKkVQ

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  8. Ferocious Designs to take part in Banding Together 2025 on BlowUpRadio.com, Oct. 16-22

    For a fifth straight year, Ferocious Designs will participate in BlowUpRadio.com‘s Banding Together benefit for the Spondylitis Association of America. This year’s super-sized Banding Together webathon will be a week-long event featuring 90 live performances from October 16 through October 22.

    Brian Kelley of Ferocious Designs will present a live set on Sunday, October 19, at 3 p.m. ET. With a minimum $20 donation to the Spondylitis Association of America, listeners will receive a code to download the 233-song “Big Box of Music” compilation celebrating 25 years of BlowUpRadio.com and featuring “Looking for the Light” by Ferocious Designs.

    “I usually do stripped-down sets for Banding Together, but I’ve started playing to simple rhythm tracks the past couple of years so I decided to record new backing tracks to accompany me on piano and vocals,” said Kelley. “And, actually, for the second half of one song, I’ll be playing acoustic guitar live for the first time in my life so it could be an absolute train wreck — tune in to find out!

    “Oh, and while I encourage you to tune in to all of Banding Together, please tune in before my set to hear my longtime friend and collaborator Christian Beach, who goes on at 2:20 p.m. (ET) on October 19,” added Kelley.

    Visit BlowUpRadio.com for the full Banding Together 2025 performance schedule, details about the “Big Box of Music” download and the link to donate to the Spondylitis Association of America.

    https://youtu.be/EAXop6jKkVQ

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  9. Ferocious Designs to take part in Banding Together 2025 on BlowUpRadio.com, Oct. 16-22

    For a fifth straight year, Ferocious Designs will participate in BlowUpRadio.com‘s Banding Together benefit for the Spondylitis Association of America. This year’s super-sized Banding Together webathon will be a week-long event featuring 90 live performances from October 16 through October 22.

    Brian Kelley of Ferocious Designs will present a live set on Sunday, October 19, at 3 p.m. ET. With a minimum $20 donation to the Spondylitis Association of America, listeners will receive a code to download the 233-song “Big Box of Music” compilation celebrating 25 years of BlowUpRadio.com and featuring “Looking for the Light” by Ferocious Designs.

    “I usually do stripped-down sets for Banding Together, but I’ve started playing to simple rhythm tracks the past couple of years so I decided to record new backing tracks to accompany me on piano and vocals,” said Kelley. “And, actually, for the second half of one song, I’ll be playing acoustic guitar live for the first time in my life so it could be an absolute train wreck — tune in to find out!

    “Oh, and while I encourage you to tune in to all of Banding Together, please tune in before my set to hear my longtime friend and collaborator Christian Beach, who goes on at 2:20 p.m. (ET) on October 19,” added Kelley.

    Visit BlowUpRadio.com for the full Banding Together 2025 performance schedule, details about the “Big Box of Music” download and the link to donate to the Spondylitis Association of America.

    https://youtu.be/EAXop6jKkVQ

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  10. Symptom: Arthralgia and Arthritis

    I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

    Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

    • Health & Care Advocacy Designer
    • Mast Cell Artist Syndrome
    • Chronically ill-ustrating Health Advocacy
    • Plague Artist

    Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

    • Notorious Self-Diagnoser
    • Health Insurance Reform Enthusiast
    • Creatinine-level Checking Creative
    • Medical System Subverter
    • Bruh They’re a Totally Sick Designer
    • Mario’s Brother Appreciator

    https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

    #art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

  11. Symptom: Arthralgia and Arthritis

    Rejected (not great for professional use) options that I’ll share with you because I love you but don’t tell my PCP about any of these, k?

    • Notorious Self-Diagnoser
    • Health Insurance Reform Enthusiast
    • Creatinine-level Checking Creative
    • Medical System Subverter
    • Bruh They’re a Totally Sick Designer
    • Mario’s Brother Appreciator

    https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

    #art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

  12. Symptom: Arthralgia and Arthritis

    I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

    Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

    • Health & Care Advocacy Designer
    • Mast Cell Artist Syndrome
    • Chronically ill-ustrating Health Advocacy
    • Plague Artist

    Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

    • Notorious Self-Diagnoser
    • Health Insurance Reform Enthusiast
    • Creatinine-level Checking Creative
    • Medical System Subverter
    • Bruh They’re a Totally Sick Designer
    • Mario’s Brother Appreciator

    https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

    #art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

  13. Symptom: Arthralgia and Arthritis

    I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

    Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

    • Health & Care Advocacy Designer
    • Mast Cell Artist Syndrome
    • Chronically ill-ustrating Health Advocacy
    • Plague Artist

    Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

    • Notorious Self-Diagnoser
    • Health Insurance Reform Enthusiast
    • Creatinine-level Checking Creative
    • Medical System Subverter
    • Bruh They’re a Totally Sick Designer
    • Mario’s Brother Appreciator

    https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

    #art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

  14. Symptom: Arthralgia and Arthritis

    I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

    Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

    • Health & Care Advocacy Designer
    • Mast Cell Artist Syndrome
    • Chronically ill-ustrating Health Advocacy
    • Plague Artist

    Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

    • Notorious Self-Diagnoser
    • Health Insurance Reform Enthusiast
    • Creatinine-level Checking Creative
    • Medical System Subverter
    • Bruh They’re a Totally Sick Designer
    • Mario’s Brother Appreciator

    https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

    #art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

  15. Brian Kelley of Ferocious Designs in his home studio

    Here is my set list from today’s BlowUpRadio.com Banding Together performance:

    1. “Precious Jewel” – piano version of song that will be on my long-delayed power-pop EP
    2. “Eventually” – one of my earliest songs from late 1988/89; a reworked version will appear on the power-pop EP
    3. “Time Takes Over” – the first complete song I ever wrote back in October 1988, it is based on something said during a breakup of two former coworkers at a Pizza Hut in New Jersey.
    4. “Expectations” (Lo Moon cover) – Decided to try my hand at performing this piano-focused take on a track from Lo Moon’s second album, A Modern Life.
    5. “Beyond Forever” – a track from my Open Your Eyes EP released in early June 2024.

    https://ferociousdesigns.com/2024/10/19/banding-together-2024-set-list-ferocious-designs/

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  16. Brian Kelley of Ferocious Designs in his home studio

    Here is my set list from today’s BlowUpRadio.com Banding Together performance:

    1. “Precious Jewel” – piano version of song that will be on my long-delayed power-pop EP
    2. “Eventually” – one of my earliest songs from late 1988/89; a reworked version will appear on the power-pop EP
    3. “Time Takes Over” – the first complete song I ever wrote back in October 1988, it is based on something said during a breakup of two former coworkers at a Pizza Hut in New Jersey.
    4. “Expectations” (Lo Moon cover) – Decided to try my hand at performing this piano-focused take on a track from Lo Moon’s second album, A Modern Life.
    5. “Beyond Forever” – a track from my Open Your Eyes EP released in early June 2024.

    https://ferociousdesigns.com/2024/10/19/banding-together-2024-set-list-ferocious-designs/

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  17. Brian Kelley of Ferocious Designs in his home studio

    Here is my set list from today’s BlowUpRadio.com Banding Together performance:

    1. “Precious Jewel” – piano version of song that will be on my long-delayed power-pop EP
    2. “Eventually” – one of my earliest songs from late 1988/89; a reworked version will appear on the power-pop EP
    3. “Time Takes Over” – the first complete song I ever wrote back in October 1988, it is based on something said during a breakup of two former coworkers at a Pizza Hut in New Jersey.
    4. “Expectations” (Lo Moon cover) – Decided to try my hand at performing this piano-focused take on a track from Lo Moon’s second album, A Modern Life.
    5. “Beyond Forever” – a track from my Open Your Eyes EP released in early June 2024.

    https://ferociousdesigns.com/2024/10/19/banding-together-2024-set-list-ferocious-designs/

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis

  18. Brian Kelley of Ferocious Designs in his home studio

    Here is my set list from today’s BlowUpRadio.com Banding Together performance:

    1. “Precious Jewel” – piano version of song that will be on my long-delayed power-pop EP
    2. “Eventually” – one of my earliest songs from late 1988/89; a reworked version will appear on the power-pop EP
    3. “Time Takes Over” – the first complete song I ever wrote back in October 1988, it is based on something said during a breakup of two former coworkers at a Pizza Hut in New Jersey.
    4. “Expectations” (Lo Moon cover) – Decided to try my hand at performing this piano-focused take on a track from Lo Moon’s second album, A Modern Life.
    5. “Beyond Forever” – a track from my Open Your Eyes EP released in early June 2024.

    https://ferociousdesigns.com/2024/10/19/banding-together-2024-set-list-ferocious-designs/

    #BandingTogether #benefit #BlowUpRadio #indie #music #NJ #spondylitis