#sjogrensdisease — Public Fediverse posts

Today I learned high blood pressure is a condition associated with Sjogren's disease. We're now up to nearly 80% of my conditions that can all be lumped into the Sjogren's disease umbrella. So nice to not have a laundry list of things wrong with me.

Just wish it hadn't taken 30 years to get the correct diagnosis. My health profile could have made more sense so much sooner!

#TIL #SjogrensDisease #Sjogrens #HighBloodPressure

I'm excited about today. I'm now seeing several specialties with National Jewish Health in Denver, Colorado, USA thanks to my amazing rheumatologist moving there soon. They specialize in just a few specific conditions.

I happened to browse through their list of covered conditions, and found that they have a world-class sleep medicine practice as part of their focus on lung care. And in *this* practice, they have a program designed for circadian rhythm disorders. As you may know, I have ISWRD (irregular sleep wake rhythm disorder), and this keeps me from treating my severe obstructive and central sleep apnea, due to not being compliant with the minimum number of hours on the device that can help.

Well, I had given up on this line of inquiry until now, when I decided to give *one more chance* to solve the ISWRD and thus maybe get back to solving the sleep apnea that has deep negative life impacts.

One complication I am aware of is that my Sjogren's disease has a high occurrence of sleep disturbances, so I need to temper my expectations. But fingers crossed this practice helps in a way other pulmonologists and sleep medicine doctors have been unable to do.

#ISWRD #IrregularSleepWakeRhythmDisorder #Pulmonology #SleepMedicine #NationalJewishHealth #SjogrensDisease

I'm excited about today. I'm now seeing several specialties with National Jewish Health in Denver, Colorado, USA thanks to my amazing rheumatologist moving there soon. They specialize in just a few specific conditions.

I happened to browse through their list of covered conditions, and found that they have a world-class sleep medicine practice as part of their focus on lung care. And in *this* practice, they have a program designed for circadian rhythm disorders. As you may know, I have ISWRD (irregular sleep wake rhythm disorder), and this keeps me from treating my severe obstructive and central sleep apnea, due to not being compliant with the minimum number of hours on the device that can help.

Well, I had given up on this line of inquiry until now, when I decided to give *one more chance* to solve the ISWRD and thus maybe get back to solving the sleep apnea that has deep negative life impacts.

One complication I am aware of is that my Sjogren's disease has a high occurrence of sleep disturbances, so I need to temper my expectations. But fingers crossed this practice helps in a way other pulmonologists and sleep medicine doctors have been unable to do.

#ISWRD #IrregularSleepWakeRhythmDisorder #Pulmonology #SleepMedicine #NationalJewishHealth #SjogrensDisease

I'm excited about today. I'm now seeing several specialties with National Jewish Health in Denver, Colorado, USA thanks to my amazing rheumatologist moving there soon. They specialize in just a few specific conditions.

I happened to browse through their list of covered conditions, and found that they have a world-class sleep medicine practice as part of their focus on lung care. And in *this* practice, they have a program designed for circadian rhythm disorders. As you may know, I have ISWRD (irregular sleep wake rhythm disorder), and this keeps me from treating my severe obstructive and central sleep apnea, due to not being compliant with the minimum number of hours on the device that can help.

Well, I had given up on this line of inquiry until now, when I decided to give *one more chance* to solve the ISWRD and thus maybe get back to solving the sleep apnea that has deep negative life impacts.

One complication I am aware of is that my Sjogren's disease has a high occurrence of sleep disturbances, so I need to temper my expectations. But fingers crossed this practice helps in a way other pulmonologists and sleep medicine doctors have been unable to do.

#ISWRD #IrregularSleepWakeRhythmDisorder #Pulmonology #SleepMedicine #NationalJewishHealth #SjogrensDisease

I'm excited about today. I'm now seeing several specialties with National Jewish Health in Denver, Colorado, USA thanks to my amazing rheumatologist moving there soon. They specialize in just a few specific conditions.

I happened to browse through their list of covered conditions, and found that they have a world-class sleep medicine practice as part of their focus on lung care. And in *this* practice, they have a program designed for circadian rhythm disorders. As you may know, I have ISWRD (irregular sleep wake rhythm disorder), and this keeps me from treating my severe obstructive and central sleep apnea, due to not being compliant with the minimum number of hours on the device that can help.

Well, I had given up on this line of inquiry until now, when I decided to give *one more chance* to solve the ISWRD and thus maybe get back to solving the sleep apnea that has deep negative life impacts.

One complication I am aware of is that my Sjogren's disease has a high occurrence of sleep disturbances, so I need to temper my expectations. But fingers crossed this practice helps in a way other pulmonologists and sleep medicine doctors have been unable to do.

#ISWRD #IrregularSleepWakeRhythmDisorder #Pulmonology #SleepMedicine #NationalJewishHealth #SjogrensDisease

I'm excited about today. I'm now seeing several specialties with National Jewish Health in Denver, Colorado, USA thanks to my amazing rheumatologist moving there soon. They specialize in just a few specific conditions.

I happened to browse through their list of covered conditions, and found that they have a world-class sleep medicine practice as part of their focus on lung care. And in *this* practice, they have a program designed for circadian rhythm disorders. As you may know, I have ISWRD (irregular sleep wake rhythm disorder), and this keeps me from treating my severe obstructive and central sleep apnea, due to not being compliant with the minimum number of hours on the device that can help.

Well, I had given up on this line of inquiry until now, when I decided to give *one more chance* to solve the ISWRD and thus maybe get back to solving the sleep apnea that has deep negative life impacts.

One complication I am aware of is that my Sjogren's disease has a high occurrence of sleep disturbances, so I need to temper my expectations. But fingers crossed this practice helps in a way other pulmonologists and sleep medicine doctors have been unable to do.

#ISWRD #IrregularSleepWakeRhythmDisorder #Pulmonology #SleepMedicine #NationalJewishHealth #SjogrensDisease

My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.

#hiking #maine #photography #knitting #rheumatoidarthritis #greenwitch #pagan #autoimmunewarrior #sjogrensdisease #sjogrens #introduction

Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease

Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease

Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease

#Massachusetts

From the MassME newsletter

ME/CFS & Sjogren’s Syndrome Research Study at Tufts University Study.

Healthy controls also sought.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SS #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome
@mecfs