#sjogrens — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #sjogrens, aggregated by home.social.
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Sjogren’s Disease: Recognising Early Signs and Recommended Tests for Women
📰 Original title: My dry eyes and gut symptoms were signs of a little-known disease that mainly strikes women
🤖 IA: It's clickbait ⚠️
👥 Users: It's clickbait ⚠️View full AI summary: https://en.killbait.com/sjogren-s-disease-recognising-early-signs-and-recommended-tests-for-women.html?utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait_uk.mastodon_world
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"What in the devil is going on," I ask myself as I stumble for the couch, holding my throbbing hands upright like oversized lobster-claw oven mitts.
"I've done next to nothing today and I'm completely exhausted-- oh," I check my phone, "It's Barry-effing-metric again."
I'm a weather witch in the worst way.
#chronicillness #sjogrens #autonomicdysfunction #weatherwitch #weather
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"What in the devil is going on," I ask myself as I stumble for the couch, holding my throbbing hands upright like oversized lobster-claw oven mitts.
"I've done next to nothing today and I'm completely exhausted-- oh," I check my phone, "It's Barry-effing-metric again."
I'm a weather witch in the worst way.
#chronicillness #sjogrens #autonomicdysfunction #weatherwitch #weather
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"What in the devil is going on," I ask myself as I stumble for the couch, holding my throbbing hands upright like oversized lobster-claw oven mitts.
"I've done next to nothing today and I'm completely exhausted-- oh," I check my phone, "It's Barry-effing-metric again."
I'm a weather witch in the worst way.
#chronicillness #sjogrens #autonomicdysfunction #weatherwitch #weather
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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Infección de muela se viene otra vez.
#fuckSjögren #Sjögren #Sjögrens #Autoinmune #Autoimmune -
Infección de muela se viene otra vez.
#fuckSjögren #Sjögren #Sjögrens #Autoinmune #Autoimmune -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.
#hiking #maine #photography #knitting #rheumatoidarthritis #greenwitch #pagan #autoimmunewarrior #sjogrensdisease #sjogrens #introduction
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My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.
#hiking #maine #photography #knitting #rheumatoidarthritis #greenwitch #pagan #autoimmunewarrior #sjogrensdisease #sjogrens #introduction
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My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.
#hiking #maine #photography #knitting #rheumatoidarthritis #greenwitch #pagan #autoimmunewarrior #sjogrensdisease #sjogrens #introduction
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My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.
#hiking #maine #photography #knitting #rheumatoidarthritis #greenwitch #pagan #autoimmunewarrior #sjogrensdisease #sjogrens #introduction
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Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease -
Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease -
No one asked te: self-portrait. I look like this. Maybe a little exaggeration but still valid. I have Sjögrens Syndrone so all the parts of your body starts drying out, from the inside even. There are 2 other related conditions others have heard of. Fibromyalgia and Lupus. I hear I’m lucky it is Sjögrens. All these are auto-immune conditions. #Sjögrens #AutoImmune #Bark #Peel #Paper #Tree
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No one asked te: self-portrait. I look like this. Maybe a little exaggeration but still valid. I have Sjögrens Syndrone so all the parts of your body starts drying out, from the inside even. There are 2 other related conditions others have heard of. Fibromyalgia and Lupus. I hear I’m lucky it is Sjögrens. All these are auto-immune conditions. #Sjögrens #AutoImmune #Bark #Peel #Paper #Tree
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No one asked te: self-portrait. I look like this. Maybe a little exaggeration but still valid. I have Sjögrens Syndrone so all the parts of your body starts drying out, from the inside even. There are 2 other related conditions others have heard of. Fibromyalgia and Lupus. I hear I’m lucky it is Sjögrens. All these are auto-immune conditions. #Sjögrens #AutoImmune #Bark #Peel #Paper #Tree
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No one asked te: self-portrait. I look like this. Maybe a little exaggeration but still valid. I have Sjögrens Syndrone so all the parts of your body starts drying out, from the inside even. There are 2 other related conditions others have heard of. Fibromyalgia and Lupus. I hear I’m lucky it is Sjögrens. All these are auto-immune conditions. #Sjögrens #AutoImmune #Bark #Peel #Paper #Tree
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(MA, USA)
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletterResearch subjects sought with Sjogren’s Syndrome, ME/CFS, or be otherwise healthy.
#MEcfs #CFS #PwME #Sjogrens #SjogrensSyndrome @Sjogrens @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome -
(MA, USA)
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletterResearch subjects sought with Sjogren’s Syndrome, ME/CFS, or be otherwise healthy.
#MEcfs #CFS #PwME #Sjogrens #SjogrensSyndrome @Sjogrens @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome -
(MA, USA)
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletterResearch subjects sought with Sjogren’s Syndrome, ME/CFS, or be otherwise healthy.
#MEcfs #CFS #PwME #Sjogrens #SjogrensSyndrome @Sjogrens @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome -
(MA, USA)
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletterResearch subjects sought with Sjogren’s Syndrome, ME/CFS, or be otherwise healthy.
#MEcfs #CFS #PwME #Sjogrens #SjogrensSyndrome @Sjogrens @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome -
🇪🇦 Día tras día
🇬🇧 Day after day
#caturday #CatsOfMastodon #calico #CalicoCat #Lupus #POTS #LES #SLE #EncefalomielitisMialgica #fibromialgia #Sjögren #Sjögrens #fibromyalgia #Autoinmune #Autoimmune
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From the MassME newsletter
ME/CFS & Sjogren’s Syndrome Research Study at Tufts University Study.
Healthy controls also sought.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SS #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome
@mecfs -
From the MassME newsletter
ME/CFS & Sjogren’s Syndrome Research Study at Tufts University Study.
Healthy controls also sought.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SS #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome
@mecfs -
From the MassME newsletter
ME/CFS & Sjogren’s Syndrome Research Study at Tufts University Study.
Healthy controls also sought.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SS #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome
@mecfs -
From the MassME newsletter
ME/CFS & Sjogren’s Syndrome Research Study at Tufts University Study.
Healthy controls also sought.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SS #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome
@mecfs -
Podría ser "artículo de opinión" si no fuese un #blog.
Es algo que hemos debatido #pacientes y médicos, sobretodo en los últimos años.
Personalmente y la @/aesjogren (Asociación Española de Sjögren) apoyamos enfermedad de Sjogren.🆕 #307 #Sjögren, ¿Síndrome o enfermedad? https://domandoallobo.blogspot.com/2024/04/307-sjogren-sindrome-o-enfermedad.html
#EstoEsElSjögren #ThisIsSjögren #Autoinmunes #cronicos #Autoimmune #Sjögrens #Mastoblogs #Mastobloguers #Mastobloggers -
Podría ser "artículo de opinión" si no fuese un #blog.
Es algo que hemos debatido #pacientes y médicos, sobretodo en los últimos años.
Personalmente y la @/aesjogren (Asociación Española de Sjögren) apoyamos enfermedad de Sjogren.🆕 #307 #Sjögren, ¿Síndrome o enfermedad? https://domandoallobo.blogspot.com/2024/04/307-sjogren-sindrome-o-enfermedad.html
#EstoEsElSjögren #ThisIsSjögren #Autoinmunes #cronicos #Autoimmune #Sjögrens #Mastoblogs #Mastobloguers #Mastobloggers -
Podría ser "artículo de opinión" si no fuese un #blog.
Es algo que hemos debatido #pacientes y médicos, sobretodo en los últimos años.
Personalmente y la @/aesjogren (Asociación Española de Sjögren) apoyamos enfermedad de Sjogren.🆕 #307 #Sjögren, ¿Síndrome o enfermedad? https://domandoallobo.blogspot.com/2024/04/307-sjogren-sindrome-o-enfermedad.html
#EstoEsElSjögren #ThisIsSjögren #Autoinmunes #cronicos #Autoimmune #Sjögrens #Mastoblogs #Mastobloguers #Mastobloggers -
Podría ser "artículo de opinión" si no fuese un #blog.
Es algo que hemos debatido #pacientes y médicos, sobretodo en los últimos años.
Personalmente y la @/aesjogren (Asociación Española de Sjögren) apoyamos enfermedad de Sjogren.🆕 #307 #Sjögren, ¿Síndrome o enfermedad? https://domandoallobo.blogspot.com/2024/04/307-sjogren-sindrome-o-enfermedad.html
#EstoEsElSjögren #ThisIsSjögren #Autoinmunes #cronicos #Autoimmune #Sjögrens #Mastoblogs #Mastobloguers #Mastobloggers -
#Abril, mes de la concienciación sobre el síndrome de #Sjögren.
A pesar de llamarlo "síndrome" es una enfermedad autoinmune sistémica similar al #Lupus pero con sus propias características y esperando un tratamiento propio.Os dejo una pestaña con algunos de los posts que he escrito en el #blog:
https://domandoallobo.blogspot.com/p/lupus-y-sjogren.htmlY la web de la asociación española de Sjögren:
https://aesjogren.org/
#EstoEsElSjögren #ThisIsSjögrens #Sjögrens #Autoinmunes #Autoimmune #Cronicos #mastoblogs #mastobloguers -
#Abril, mes de la concienciación sobre el síndrome de #Sjögren.
A pesar de llamarlo "síndrome" es una enfermedad autoinmune sistémica similar al #Lupus pero con sus propias características y esperando un tratamiento propio.Os dejo una pestaña con algunos de los posts que he escrito en el #blog:
https://domandoallobo.blogspot.com/p/lupus-y-sjogren.htmlY la web de la asociación española de Sjögren:
https://aesjogren.org/
#EstoEsElSjögren #ThisIsSjögrens #Sjögrens #Autoinmunes #Autoimmune #Cronicos #mastoblogs #mastobloguers -
#Abril, mes de la concienciación sobre el síndrome de #Sjögren.
A pesar de llamarlo "síndrome" es una enfermedad autoinmune sistémica similar al #Lupus pero con sus propias características y esperando un tratamiento propio.Os dejo una pestaña con algunos de los posts que he escrito en el #blog:
https://domandoallobo.blogspot.com/p/lupus-y-sjogren.htmlY la web de la asociación española de Sjögren:
https://aesjogren.org/
#EstoEsElSjögren #ThisIsSjögrens #Sjögrens #Autoinmunes #Autoimmune #Cronicos #mastoblogs #mastobloguers -
#Abril, mes de la concienciación sobre el síndrome de #Sjögren.
A pesar de llamarlo "síndrome" es una enfermedad autoinmune sistémica similar al #Lupus pero con sus propias características y esperando un tratamiento propio.Os dejo una pestaña con algunos de los posts que he escrito en el #blog:
https://domandoallobo.blogspot.com/p/lupus-y-sjogren.htmlY la web de la asociación española de Sjögren:
https://aesjogren.org/
#EstoEsElSjögren #ThisIsSjögrens #Sjögrens #Autoinmunes #Autoimmune #Cronicos #mastoblogs #mastobloguers -
Espero terminar hoy el último post del año desde octubre. Si no, será el primero del año 🙃
#blog #mastoblog #Mastoblogger #EncefalomielitisMiálgica #lupus #fibromialgia #Sjögren #Sjögrens #discapacidad #disca #dependencia #cronicos #autoinmunes #salud #pacientes #Navidad #nochebuena #nochevieja #añonuevo #reyesmagos -
Espero terminar hoy el último post del año desde octubre. Si no, será el primero del año 🙃
#blog #mastoblog #Mastoblogger #EncefalomielitisMiálgica #lupus #fibromialgia #Sjögren #Sjögrens #discapacidad #disca #dependencia #cronicos #autoinmunes #salud #pacientes #Navidad #nochebuena #nochevieja #añonuevo #reyesmagos -
14 years ago, I was diagnosed with #Sjögrens Syndrome. After about 4 years on methotrexate and Plaquenil, I had to go off the first due to protracted and severe side effects. 6 years later, I reached my lifetime toxicity limit and had to stop the Plaquenil forever. Today they diagnosed me with severe peripheral and CNS, motor and sensory #neuropathy. They're also saying there's nothing much they can do, as I am also allergic to gabapentin. Anyone have this? Any insights from those who do?
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14 years ago, I was diagnosed with #Sjögrens Syndrome. After about 4 years on methotrexate and Plaquenil, I had to go off the first due to protracted and severe side effects. 6 years later, I reached my lifetime toxicity limit and had to stop the Plaquenil forever. Today they diagnosed me with severe peripheral and CNS, motor and sensory #neuropathy. They're also saying there's nothing much they can do, as I am also allergic to gabapentin. Anyone have this? Any insights from those who do?
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14 years ago, I was diagnosed with #Sjögrens Syndrome. After about 4 years on methotrexate and Plaquenil, I had to go off the first due to protracted and severe side effects. 6 years later, I reached my lifetime toxicity limit and had to stop the Plaquenil forever. Today they diagnosed me with severe peripheral and CNS, motor and sensory #neuropathy. They're also saying there's nothing much they can do, as I am also allergic to gabapentin. Anyone have this? Any insights from those who do?
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Desde el domingo con brote de #EncefalomielitisMiálgica y crisis de dolor neuropático. Al menos hoy duele menos al teclear.
A #MyalgicEncephalomyelitis crash (flare) and neuropathic pain crisis since Sunday. Typing hurts less but still.
#Dolor #DolorNeuropatico #DolorCronico #EMsfc #fibromialgia#Sjögen #Lupus #LES #NeuralgiaDelTrigemino #NdT #Migraña #Pain #ChronicPain #neuropathicPain #ME #MEcfs #fibromyalgia #Sjögrens #SLE #TrigeminalNervePain #TNP #Migraine
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Desde el domingo con brote de #EncefalomielitisMiálgica y crisis de dolor neuropático. Al menos hoy duele menos al teclear.
A #MyalgicEncephalomyelitis crash (flare) and neuropathic pain crisis since Sunday. Typing hurts less but still.
#Dolor #DolorNeuropatico #DolorCronico #EMsfc #fibromialgia#Sjögen #Lupus #LES #NeuralgiaDelTrigemino #NdT #Migraña #Pain #ChronicPain #neuropathicPain #ME #MEcfs #fibromyalgia #Sjögrens #SLE #TrigeminalNervePain #TNP #Migraine
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Desde el domingo con brote de #EncefalomielitisMiálgica y crisis de dolor neuropático. Al menos hoy duele menos al teclear.
A #MyalgicEncephalomyelitis crash (flare) and neuropathic pain crisis since Sunday. Typing hurts less but still.
#Dolor #DolorNeuropatico #DolorCronico #EMsfc #fibromialgia #Sjögen #Lupus #LES #NeuralgiaDelTrigemino #NdT #Migraña #Pain #ChronicPain #neuropathicPain #ME #MEcfs #fibromyalgia #Sjögrens #SLE #TrigeminalNervePain #TNP #Migraine
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And ordered @Starbucksofficial for prob way too much money. Bc when I feel like this, anything goes. Thankful that I’m privileged enough to take a (paid) sick day at work and pay too much for someone to deliver me coffee. It’s not lost on me that not everyone has that luxury. #sjogrens #chronicillness #chronicfatigue #myalgicencephalomyelitis
