#sjogrens — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #sjogrens, aggregated by home.social.
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Today I learned high blood pressure is a condition associated with Sjogren's disease. We're now up to nearly 80% of my conditions that can all be lumped into the Sjogren's disease umbrella. So nice to not have a laundry list of things wrong with me.
Just wish it hadn't taken 30 years to get the correct diagnosis. My health profile could have made more sense so much sooner!
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
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"What in the devil is going on," I ask myself as I stumble for the couch, holding my throbbing hands upright like oversized lobster-claw oven mitts.
"I've done next to nothing today and I'm completely exhausted-- oh," I check my phone, "It's Barry-effing-metric again."
I'm a weather witch in the worst way.
#chronicillness #sjogrens #autonomicdysfunction #weatherwitch #weather
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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“Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2512587"Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."
#longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens
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Infección de muela se viene otra vez.
#fuckSjögren #Sjögren #Sjögrens #Autoinmune #Autoimmune -
Infección de muela se viene otra vez.
#fuckSjögren #Sjögren #Sjögrens #Autoinmune #Autoimmune -
Infección de muela se viene otra vez.
#fuckSjögren #Sjögren #Sjögrens #Autoinmune #Autoimmune -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
My name is Denise (or Den) and I'm in Maine in the US. I live with my husband and my cattle dog mix. I like to hike, take pictures, grow things, and knit things. Oh, and I love to bake, too. I also have 2 autoimmune diseases. I've been a practicing Pagan for 12 years now.
#hiking #maine #photography #knitting #rheumatoidarthritis #greenwitch #pagan #autoimmunewarrior #sjogrensdisease #sjogrens #introduction
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Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease -
Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease -
Entre ver la entrevista, leer y escribir en 𝕏 y las emociones positivas que también afectan, estoy hoy para el arrastre. Y mañana consulta en #hematología. Van a tener que tirarme dentro del taxi adaptado y pa´lante :sadness:
#PacientesCronicos #Autoinmunes #Lupus #LES #SLE #sjögren #sjogrens #sjogrensdisease -
🇪🇦 Día tras día
🇬🇧 Day after day
#caturday #CatsOfMastodon #calico #CalicoCat #Lupus #POTS #LES #SLE #EncefalomielitisMialgica #fibromialgia #Sjögren #Sjögrens #fibromyalgia #Autoinmune #Autoimmune
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Podría ser "artículo de opinión" si no fuese un #blog.
Es algo que hemos debatido #pacientes y médicos, sobretodo en los últimos años.
Personalmente y la @/aesjogren (Asociación Española de Sjögren) apoyamos enfermedad de Sjogren.🆕 #307 #Sjögren, ¿Síndrome o enfermedad? https://domandoallobo.blogspot.com/2024/04/307-sjogren-sindrome-o-enfermedad.html
#EstoEsElSjögren #ThisIsSjögren #Autoinmunes #cronicos #Autoimmune #Sjögrens #Mastoblogs #Mastobloguers #Mastobloggers -
#Abril, mes de la concienciación sobre el síndrome de #Sjögren.
A pesar de llamarlo "síndrome" es una enfermedad autoinmune sistémica similar al #Lupus pero con sus propias características y esperando un tratamiento propio.Os dejo una pestaña con algunos de los posts que he escrito en el #blog:
https://domandoallobo.blogspot.com/p/lupus-y-sjogren.htmlY la web de la asociación española de Sjögren:
https://aesjogren.org/
#EstoEsElSjögren #ThisIsSjögrens #Sjögrens #Autoinmunes #Autoimmune #Cronicos #mastoblogs #mastobloguers -
Desde el domingo con brote de #EncefalomielitisMiálgica y crisis de dolor neuropático. Al menos hoy duele menos al teclear.
A #MyalgicEncephalomyelitis crash (flare) and neuropathic pain crisis since Sunday. Typing hurts less but still.
#Dolor #DolorNeuropatico #DolorCronico #EMsfc #fibromialgia#Sjögen #Lupus #LES #NeuralgiaDelTrigemino #NdT #Migraña #Pain #ChronicPain #neuropathicPain #ME #MEcfs #fibromyalgia #Sjögrens #SLE #TrigeminalNervePain #TNP #Migraine
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El #23deJulio es el #DiaMundialSjögren y pasará bastante desapercibido con las #elecciones2023.
Como suelo hablar de #Sjögren todo el año, si queréis desconectar del #23J un rato tenéis posts, unos con humor y otros más serios pero siempre rigurosos.
Suelen gustar las experiencias personales pero es importante saber lo que es y lo que no es el Síndrome de Sjögren.
#autoinmunes #crónicos #discapacidad #disabled
#sjogrensyndrome #autoimmune #Sjögrens #WorldSjogrensDay ⏳https://domandoallobo.blogspot.com/p/lupus-y-sjogren.html -
Trigeminal nerve stimulation (vibration) in dry eye treatment
Cure Dry Eyes With A Toothbrush? - Neurostimulation Dry Eye Treatment Explained
https://youtu.be/6-eYSAk--EQ -
¿Quién me ha robado la #Navidad?
Spoiler: mis enfermedades. Principalmente la #EncefalomielitisMialgica.
#Lupus #Sjogrens #POTS #fibromialgia #migrañas #Autoinmunes...Leer mi blog desde el principio es ver cómo han envolucionado mi cuerpo y mi existencia a través de los años.
¿Cuántas veces se puede morir y renacer en una misma vida?#5 🐺 https://domandoallobo.blogspot.com/2015/01/5-quien-me-ha-robado-la-navidad.html #blog #christmas
(🎬 The Grinch, 2018) -
@bennessb maybe I don't know your faces but I know #NEISvoid 😊 My nickname is 'Taming the wolf' (Lupus). I'll write my diseases in Spanish, sorry 🙏 #Lupus Sistémico, #EncefalomielitisMialgica, #fibromialgia, #Sjögrens, #POTS, #raynauds, #migrañas,... and +. Disable, homebound, bedbound. #brainfog makes difficult to continue with my blog and team projects but trying my best. Likes: awareness, built support communities. Dislikes: rude people, just complaning (take action). Big hugs
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12 de diciembre, #diamundialdisfagia.
Es un trastorno de la deglución (problemas para tragar líquidos, alimentos... incluso saliva). Según su origen, gravedad... necesita distinta intervención multidisciplinar.
Tengo síndrome de #Sjögren y he tenido temporadas muy malas. Ahora sé manejarla mejor. Ésta es mi experiencia.#79 Comulgar con ruedas de molino... al tomar pastillas
🐺 https://domandoallobo.blogspot.com/2015/06/79-comulgar-con-ruedas-de-molino-al.html #blog
#Disfagia en #Sjögrens -
CW: Parental Health
My father has Diverticulitis, Sjogren's syndrome, and Myasthenia gravis. His specialists have told him he could die from any one of these diseases at any time. #sjogrens #myastheniagravis #Diverticulitis #health #olderparents