#sicklecell — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #sicklecell, aggregated by home.social.
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#sickleCell #fuckZionists #fuckBillionaires #fuckTrump #fuckSCOTUS #fuckTrumpregime
Miracle Cure in Louisiana has huge implications.
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#OnThisDay Birth Anniversary of Blaise Pascal (1623) - French mathematician, physicist, inventor. He made important contributions to the study of fluids, and clarified the concepts of pressure and vacuum.
Today is World #SickleCell Day.
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#GeneEditing Therapy Shows Success Against Severe #SickleCell Disease https://newsroom.clevelandclinic.org/2026/04/01/gene-editing-therapy-shows-success-against-severe-sickle-cell-disease
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BLOOD DONOR APPEAL: O negative, B negative & black heritage donors needed in #Birmingham
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Many pregnant & breastfeeding women cannot be sure that their needed medications are safe for them – inc. for diseases like #SickleCell - because of exclusion of these groups from clinical trials. 🔗 bit.ly/4e7Pql8
Equity and health: the inclusi... -
With high quality care, women with #SickleCell disease can have healthy pregnancies and births. They need: 👨🏿⚕️ Access to skilled health workers 🩺 Additional health checks 🤰🏾 Individualized & respectful care 🔬 Research for safe treatments in pregnancy bit.ly/446z3AV
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#SickleCell disease poses life-threatening risks for women & babies. In fact, it leads to a 11X higher risk of maternal death, increased rates of stillbirth, and preterm births. WHO’s new guideline aims to improve pregnancy outcomes for those affected. 🔗 bit.ly/446z3AV
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#SickleCell disease is a group of inherited blood disorders characterized by abnormally shaped red blood cells. These cells can block blood flow, causing - severe anaemia - episodes of severe pain - recurrent infections - emergencies like strokes, sepsis or organ failures bsky.app/profile/who....
RE: https://bsky.app/profile/did:plc:univ47kzorwxjih3lqzrnwmv/post/3lrxexijxos2t -
Today is #SickleCell Awareness Day 🩸 40% more people are living with sickle cell disease today than in 2000. It is a growing health challenge, affecting around 7.7 million people in the world today. Read WHO’s new recommendations on care during pregnancy: bit.ly/446z3AV
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#OnThisDay Birth Anniversary of Blaise Pascal (1623) - French mathematician, physicist, inventor. He made important contributions to the study of fluids, and clarified the concepts of pressure and vacuum.
Today is World #SickleCell Day.
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New York patient receives breakthrough cure for sickle cell disease, 'I’m not in pain anymore’
#genetherapy #health #healthnews #healthcare #LongIsland #Medical #Medicine #NewYork #news #SickleCell
https://theaegisalliance.com/2025/03/14/new-york-patient-receives-breakthrough-cure-for-sickle-cell-disease/?fsp_sid=1170 -
We can cure a genetic disease, not only in mice but in people! New #crispr based #sicklecell therapy fixes stem cells of patients. Now let's make it cheaper. https://www.theguardian.com/society/2025/jan/31/groundbreaking-potential-cure-for-sickle-cell-in-england-approved-for-nhs-use
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"she still struggles with chronic pain in her back and legs caused by decades of tissue and nerve damage from sickle-cell disease."
#sicklecell
#medsky #blacksky #science #complex -
'Last December, the Food and Drug Administration gave approvalto two companies, Bluebird Bio of Somerville, Mass., and Vertex Pharmaceuticals of Boston, to sell the first gene therapies approved for sickle cell disease. After nine months, Kendric remains the first Bluebird patient to progress this far, with at least a few others advancing toward his pace.'
#SickleCell #GeneTherapy
https://www.nytimes.com/2024/09/16/health/sickle-cell-gene-therapy-kendric-cromer.html -
A fantastic story from C&EN about Indian gene therapies for #sicklecell.
In the US, we often think of sickle cell affecting African Americans, but there's a huge crisis in #India, where it's estimated over 1 million(!) people have #SCD.
https://cen.acs.org/pharmaceuticals/gene-therapy/Sickle-cell-disease-India-quest/102/i24
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NEW: #Vertex Pharmaceuticals is suing the gov over blocking access to #fertility preservation services for people getting #Casgevy, the first #CRISPR treatment, which treats #sicklecell & #betathalassemia
Currently, Vertex offering to help patients access these services illegal under anti-kickback laws
via @STAT
https://www.statnews.com/2024/07/15/vertex-casgevy-sickle-cell-infertility-hhs-lawsuit-fertility-preservation/ -
#OnThisDay Birth Anniversary of Blaise Pascal (1623) - French mathematician, physicist, inventor. He made important contributions to the study of fluids, and clarified the concepts of pressure and vacuum.
Today is World #SickleCell Day.
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@jperkel @Nature @heidiledford I did not know about this: "Most of the people with sickle-cell disease in India — a country with one of the highest rates of the condition — live in impoverished communities. "
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@STAT is investigating the denial of reproductive autonomy for people with sickle cell disease.
Their latest article explores "how doctors are pressuring sickle cell patients into unwanted sterilizations."
#SickleCell #Disease #ReproductiveRights #Health #Medicine #Discrimination #BlackMastodon
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First Patient Begins Newly Approved #SickleCell #GeneTherapy https://www.nytimes.com/2024/05/06/health/sickle-cell-cure-first.html
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CRISPR advances Sickle Cell disease treatment - The innovative gene-editing technique, CRISPR, has made a remarkable leap from lab... - https://readwrite.com/crispr-advances-sickle-cell-disease-treatment/ #gene-editingtechniques #medicalbreakthrough #healthcare #sicklecell #startups #news
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Today, two posts in one go, both on #sicklecell disease and #geneediting'; one provides background info, the other homes in on the issue of 'identity' https://blogs.nottingham.ac.uk/makingsciencepublic/2024/01/12/sickle-cell-disease-and-gene-editing/ and https://blogs.nottingham.ac.uk/makingsciencepublic/2024/01/12/sickle-cell-disease-and-identity/
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These #gene therapies are billed as "one time" therapies, basically miracle cures:
Almost 90% of the Zynteglo trial patients were transfusion-independent afterward, for at least 9 years.
The new #sicklecell treatments are similar. https://www.statnews.com/2023/12/08/fda-approves-casgevy-crispr-based-medicine-for-treatment-of-sickle-cell-disease/
#health #healthcare #medicine #scd #crispr #betathalassemia #transplant
