#shareddecisionmaking — Public Fediverse posts

#Lupus and LupusNephritis (LN) can be diagnosed TOGETHER for as many as 30% of lupus patients. As many as 60% of Lupus #SLE patients will see kidney impact.

YOU deserve better!

Ask your provider for treatments leading to #lupusremission as outlined by the American College of Rheumatology. #shareddecisionmaking.

Df. "clinical #equipoise describes a situation of evidentiary uncertainty among experts"

Opel et al. argue such equipoise is neither necessary nor sufficient for #SharedDecisionMaking.

Rather SDM is most useful where tradeoffs between options are KNOWN.

https://doi.org/10.1007/s11606-025-09410-z

#medicine #decisionScience #bioethics #epistemology #philosophyOfScience #socialPsychology #edu #SciComm

Df. "clinical #equipoise describes a situation of evidentiary uncertainty among experts"

Opel et al. argue such equipoise is neither necessary nor sufficient for #SharedDecisionMaking.

Rather SDM is most useful where tradeoffs between options are KNOWN.

https://doi.org/10.1007/s11606-025-09410-z

#medicine #decisionScience #bioethics #epistemology #philosophyOfScience #socialPsychology #edu #SciComm

Kann #SharedDecisionMaking dazu beitragen, dass Frauen sich bei der Entscheidung, ob sie an einer #Brustkrebsfrüherkennungsuntersuchung teilnehmen sollen, zufriedener, sicherer und sachkundiger fühlen? #CochraneReview: https://buff.ly/3zicBZA

@bicmay
#relativerisk may be great for getting publicity for trials but it sucks for advising patients for #shareddecisionmaking in #primarycare

I skimmed the paper and couldn't find absolute risk for mortaility with and without #paxlovid , nevermind #nnt

#covid

@bicmay
#relativerisk may be great for getting publicity for trials but it sucks for advising patients for #shareddecisionmaking in #primarycare

I skimmed the paper and couldn't find absolute risk for mortaility with and without #paxlovid , nevermind #nnt

#covid

Read our latest paper about shared decision making at hospital #shareddecisionmaking #medications #patientempowerment https://www.tandfonline.com/doi/epdf/10.1080/17482631.2023.2250084?needAccess=true&role=button

Epistemic justice and shared decision making

#SharedDecisionMaking

https://twitter.com/glynelwyn/status/1631636673783103489

Lesestoff fürs Wochenende: Was hilft dir bei der gemeinsamen Entscheidungsfindung neben dem Gespräch mit Arzt oder Ärztin? #shareddecisionmaking #sdm #shareddecisions

Wo Entscheidungshilfen zu finden sind
https://www.riffreporter.de/de/artikel/unterstuetzung-fuer-gute-gesundheitsentscheidungen (€)

Was Decision Coaches bringen https://www.riffreporter.de/de/artikel/gesundheit-entscheidungen-decision-coaches (€)

Should cost be a factor in patient-facing decision support tools? #sdm #SharedDecisionMaking

https://pubmed.ncbi.nlm.nih.gov/36643615/

Passing on a vacancy from an awesome colleague in Barcelona, no less:

"Come work with us in Barcelona! Postdoctoral role in a 5-year EU project on treatment #shareddecisionmaking in oncology in #IRSJD with the wonderful PRISMA group! Great chance to contribute to an important topic for patient care in #oncology and learn from fantastic partners!"

https://hospitalsantjoandedeu.talentclue.com/en/node/94092936/12623479

Also see LinkedIn: https://www.linkedin.com/posts/alexadima1_postdoctoral-researcher-on-treatment-decision-making-activity-7025193252777566208-HtyN/?utm_source=share&utm_medium=member_android

Passing on a vacancy from an awesome colleague in Barcelona, no less:

"Come work with us in Barcelona! Postdoctoral role in a 5-year EU project on treatment #shareddecisionmaking in oncology in #IRSJD with the wonderful PRISMA group! Great chance to contribute to an important topic for patient care in #oncology and learn from fantastic partners!"

https://hospitalsantjoandedeu.talentclue.com/en/node/94092936/12623479

Also see LinkedIn: https://www.linkedin.com/posts/alexadima1_postdoctoral-researcher-on-treatment-decision-making-activity-7025193252777566208-HtyN/?utm_source=share&utm_medium=member_android

Putting the cost of healthcare on the agenda - supporting care comparisions using cost data in patient decision aids ...

@mcpoliti @marla #SharedDecisionMaking #health

https://journals.sagepub.com/doi/10.1177/23814683221148651

Facing surgery on your chest? Perhaps #lungcancer ... take a look at this paper about the relevance of #SharedDecisionMaking #cancer

https://www.jtcvs.org/article/S0022-5223(22)01276-4/fulltext

Where wider (societal) interests and other issues limit the use of shared decision making ...

https://ebm.bmj.com/content/early/2022/12/15/bmjebm-2022-112089.full

#ebm #SharedDecisionMaking #ethics #healthcare

The limits of shared decision making ...

https://ebm.bmj.com/content/early/2022/12/15/bmjebm-2022-112089.full

#SharedDecisionMaking #patient #ebm #ethics #Healthcare

Thanks to my wonderful co-authors for working on this over a few years ...

The limits of shared decision making ...

https://ebm.bmj.com/content/early/2022/12/15/bmjebm-2022-112089.full

#SharedDecisionMaking #patient #ebm #ethics #Healthcare

Thanks to my wonderful co-authors for working on this over a few years ...

@thelizarmy patient-investigator extraordinaire publishes her #POV on awake #craniotomy for her #BrainTumor, provider-#patient #communication, #SharedDecisionMaking in #NEJM — check it out!

NEJM (paywall): https://www.nejm.org/doi/full/10.1056/NEJMp2210418

Birdsite: https://twitter.com/thelizarmy/status/1599873193439039488

#PatientEngagement #PatientEmpowerment #MedEd #MedMastodon #mediverse #PatientVoice

Bessere Gesundheitsentscheidungen: Leichter gesagt als getan. Deshalb wurde das Konzept von Decision Coaches entwickelt: Menschen, die dir helfen, Pro und Contra abzuwägen, ohne dich zu beeinflussen. #healthliteracy #gesundheitskompetenz #shareddecisionmaking #shareddm

Die Gesundheitswissenschaftlerin Anne Rahn, Professorin in Lübeck, hat uns erklärt, wie das funktioniert und was es wirklich bringt.

https://www.riffreporter.de/de/wissen/gesundheit-entscheidungen-decision-coaches

".. patients need to be made aware of the availability of decision coaching and have the opportunity to ask questions about decision coaching, so that they are likely to value and engage with a decision coach."

https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-022-02007-0

#HealthCoaching #SharedDecisionMaking

May 2020 from #AlisonTurnbull #HopkinsPCCM so I know why I missed it, but...

"Physician Self-assessment of #SharedDecisionMaking in Simulated Intensive Care Unit Family Meetings"

"33 participants (43%) reported that they offered care focused on comfort, but blinded colleagues rated only 1 (4%) as explaining this option in a clear manner"

https://pubmed.ncbi.nlm.nih.gov/32427323/

#argh #ICU #EOL #palliativecare

May 2020 from #AlisonTurnbull #HopkinsPCCM so I know why I missed it, but...

"Physician Self-assessment of #SharedDecisionMaking in Simulated Intensive Care Unit Family Meetings"

"33 participants (43%) reported that they offered care focused on comfort, but blinded colleagues rated only 1 (4%) as explaining this option in a clear manner"

https://pubmed.ncbi.nlm.nih.gov/32427323/

#argh #ICU #EOL #palliativecare

A talk at the University of Lausanne, 13 December 2022 .

Public Health or Personal Choice: The Limits of Shared Decision Making #SharedDecisionMaking

En santé publique, la liberté individuelle et la promotion de l'intérêt commun peuvent s’opposer. Glyn Elwyn, internationalement reconnu pour ses travaux sur la prise de décision partagée, discutera de cette tension en présentant de nouvelles données issues d'un essai visant à accroître la confiance dans la vaccination contre le COVID-19.

Sicherlich habt ihr gemerkt, dass wir umgezogen sind: Wir wohnen jetzt auf einer kleinen, aber feinen Instanz zusammen mit anderen Kolleg:innen von @riffreporter Unsere Themen bleiben aber die gleichen: Gute Gesundheitsinformationen, informierte Entscheidungen #Gesundheitskompetenz #HealthLiteracy #shareddecisionmaking #sharedDM

Delighted that this paper is now accepted by Evidence-Based Medicine Journal. More as soon as it goes online.

The limits of shared decision-making: Where wider interests override individual preferences

Glyn Elwyn, Amy Price, Juan VA Franco, Pål Gulbrandsen

#SharedDecisionMaking

#AI and #ML meets #SharedDecisionMaking re antibiotics. Can an algorithm cope with morals and/or personal preferences?

https://www.nature.com/articles/s42256-022-00558-5

#SharedDecisionMaking in psychiatry ...

Feasible and welcomed by patients - A qualitative study

https://www.tandfonline.com/doi/full/10.1080/17538068.2019.1612212?src=

Mastadonians: For those of you that are interested in finding researchers and clinicians interested in #SharedDecisionMaking - take a look at this relatively new Society

https://www.isdmsociety.org/

14 people now on #SharedDecisionMaking list ;)

I need to follow you to be able to add you to the list ;) so waiting on some acceptances ...

7 now on Shared Decision Making List - feel free to seek out others who you might feel will benefit. This is like a group within the Home (you will see all posts that this smaller group sends out and not all will be SDM of course. Use #SharedDecisionMaking if you are being specific to that area.

I'm creating a Mastodon List for Shared Decision Making #SharedDecisionMaking - please let me know if you want to be added and in which case I will need to follow you (a requirement for listing) 😎

I'm creating a Mastodon List for Shared Decision Making #SharedDecisionMaking - please let me know if you want to be added and in which case I will need to follow you (a requirement for listing) 😎

Introduction: in a previous life a doctor in primary care in Cardiff. Now work on #SharedDecisionMaking (supporting healthcare decisions when reasonable options exist). A way to help is to offer accessible information about tradeoffs. This is where IT and visualization help. This needs help from thinkers, designers, clinicians - anyone that can help democratize healthcare delivery. I make hay for the horses.
#design #visualization #sharedDM #coproduction

Introduction: in a previous life a doctor in primary care in Cardiff. Now work on #SharedDecisionMaking (supporting healthcare decisions when reasonable options exist). A way to help is to offer accessible information about tradeoffs. This is where IT and visualization help. This needs help from thinkers, designers, clinicians - anyone that can help democratize healthcare delivery. I make hay for the horses.
#design #visualization #sharedDM #coproduction

Doing an #Introduction to complete my #TwitterMigration. Hi, Research Scientist here, interested in #digitalhealth and #HCI, currently deep-diving into developing tools for #shareddecisionmaking #online for #EndofLifeCare

Doing an #Introduction to complete my #TwitterMigration. Hi, Research Scientist here, interested in #digitalhealth and #HCI, currently deep-diving into developing tools for #shareddecisionmaking #online for #EndofLifeCare