home.social

#selfadvocacy — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #selfadvocacy, aggregated by home.social.

fetched live
  1. Pills may be an important part of treatment, but they’re rarely the whole answer. Ask questions, understand your options, and pair care with rest, support, and sustainable habits when appropriate.

    #InformedCare #Wellbeing #SelfAdvocacy #ThinkandGrowEducation #RayBehan #UNTHINKABLE

  2. #disability #selfadvocacy

    I’ve learnt there’s quite an art to having the ‘so, what do you do?’ convo with strangers. Recently I’ve used ‘I’m not required to work, so that means I am fortunate in being able to pick and choose meaningful projects’. It’s empowering.

    Yesterday I had the question where I wasn’t familiar enough to use that. I said ‘I volunteer’. He replied ‘nothing wrong with that!’. I’m thinking he did in fact think there was at least a little something wrong with it 🙄

  3. ...arguing with my gp over email, about what their problem is, and Wether they actually understand #icd11 codes, as opposed to just...

    Systematically ignoring any and all mention of it, is more fun than it has any right being.

    #icd-11 #mentalhealth #selfadvocacy

  4. Overcoming Adversity: Lessons from The Unapologetic Boss Lady

    "The Unapologetic Boss Lady - In Her Own Words" is a heartfelt reflection of resilience, perseverance, and personal growth by an author who shares her life experiences. Through compelling narratives, she encourages readers to embrace their ambitions and learn from challenges, highlighting the importance of self-belief and the journey toward success.

    sarahwenno.wordpress.com/2026/

  5. Mystery solved.

    Been hurting so much that I could barely #sleep the last two nights. Doing my exercises today like a good soldier, hey, guess what, the two new exercises assigned by the substitute physical therapist last week put pressure right on the #SciaticNerve & surrounding muscle/structures, just what we're trying to heal.

    Making a command decision: ❌❌
    There will be a conversation this week.

    I will work. I will stretch. I will strengthen. I will not pound on the thing suffering from years of irritation.

    #PhysicalTherapy #SelfAdvocacy

  6. You have to learn how to be your own advocate... your voice matters. With regards to your mental health, physical health, recovery—all of it. #RecoveryJourney

    Simple, raw truth that keeps resonating. What part of this hits home for you today? #SelfAdvocacy

  7. “You're never without choices.” Ellen Lubensky on asking questions in medical care—mental or physical. Don’t settle if one provider isn’t right; options exist. The vulnerable honesty about questions she didn’t ask turns into hopeful advocacy. Loop this before appointments for that grounding reminder. #MentalWellness #SelfAdvocacy

  8. When you live with a mental illness, some people will only ever see your diagnosis. If a doctor dismisses your physical symptoms as "just depression," push back. You are the leading expert on your own body. Demand the care you deserve! 🩺 #MedicalGaslighting #SelfAdvocacy #ChronicIllness

    SPEAKINGBIPOLAR.COM/CLUB

  9. TBH I’ve been doing this neurodivergent self-advocacy for 4 years now and I still feel lonely. Maybe I should run my neurodivergent social connection more frequently starting next month if all goes well? #neurodivergent #abbotsfoed #autistic #selfadvocacy #lonely

  10. Become Your Own Advocate: Essential Skills for Students #SelfAdvocacy… ift.tt/b3yYRJj

  11. Tonight @ 8 PM EST PCB Peer Engagement Presents

    Pam Metz will be discussing

    Self Advocacy: How to be positive, constructive & not lead with anger and negativity

    Join us for a thoughtful conversation about advocating with confidence, respect & a solution focused mindset.

    Sponsored by PCB

    Listen on ACB Media 6
    Say to your Amazon device, “ask ACB Media to play 6.”
    Join in Clubhouse

    #PCBPeerEngagement #PennsylvaniaCouncilOfTheBlind #SelfAdvocacy #BlindCommunity #LowVision #AccessibilityMatters

  12. There is no Disability Act in The Yukon

    There is no Disability Act in the Yukon.There is no territorial legislation protecting the rights of disabled people and their families, and the federal Accessible Canada Act explicitly names the Yukon Government in Section 8 as an exemption. There is no territorial legislation protecting the rights of disabled people and their families, and the federal Accessible Canada Act explicitly names the Yukon Government in Section 8 as an exemption. So when a motion came forward in the Yukon […]

    willowanneblog.wordpress.com/2

  13. 2/2

    🧠 Anxiety Management: Breathing exercises, grounding techniques

    📝 Know Your Rights: Quick-reference cards

    Rehearse. Practice. Speak up. We coach you through it !

    Build confidence !

    **User Guide**: 3mpwrapp.pages.dev/user-guide/

    **Beta Guide**: 3mpwrapp.pages.dev/beta-guide/

    Beta Testers Sign up: forms.gle/BrnXRmVv2jn4jiBs8

    #SelfAdvocacy #DisabilityRights #InjuredWorkers #3mpwrapp

  14. When Change Brings Clarity
    I struggled with post-pregnancy breast changes—but those same changes made a lump easier to see years later. Self-awareness leads to early action. Know your body. #BreastHealth #EarlyDetection #SelfAdvocacy #WomensHealth #HealthAwareness

  15. Early Detection Is Key
    Understanding breast density and doing regular self-exams can help you catch small changes fast. Mammograms aren’t always easy—but awareness and action save lives. #BreastCancerAwareness #EarlyDetection #SelfAdvocacy #WomensHealth #PreventiveHealth

  16. When Pain Becomes Routine
    Living at a constant “5” makes emergencies harder to see. A neglected splinter for 3 months became infected—all because pain felt normal. Don’t dismiss your symptoms. #ChronicPain #HealthAwareness #InvisibleIllness #SelfAdvocacy #CareForYourself

  17. This is such a lovely idea. Both my kids would really appreciate this service!

    Source: ohai.social/@dramypsyd/1146306

    #SelfAdvocacy
    #Autism
    #ASD

  18. It was the last time I was insured and SOMEONE could afford my care - but it was debt and care for my physical health was and ongoing point of contempt between my Mom and my father

    She felt I deserved care
    He felt I was too expensive to keep alive

    This is a tiny piece of my trauma aroung #SelfAdvocacy

  19. Nothing about us without us! Seriously, neurotypical adults have talked about autism and didn't include autistics in the conversation.
    Here's Mrs. Eddant, a happy self-advocate! #originalcharacter #autistic #oc #neurodivergent #selfadvocacy #actuallyautistic #autismacceptance #auctober #auctober2025

  20. When your boss won’t validate your work, you still have options.
    Define success on your terms. Track the wins. Grow for you.
    Your value isn’t waiting on their approval. It’s waiting on your evidence.
    #Leadership #CareerGrowth #WorkplaceCulture #EmotionalIntelligence #SelfAdvocacy

    leadboldly1.blog/2025/10/03/ho

  21. So apparently I should advocate for myself to get an earlier gynae appointment and not just wait for 2 weeks (now 6 days since scan showed 11cm cyst so another 8 days wait) but I don’t know how to do that! What do I say? ‘I’m advocating for myself now get me an appointment today please’ or what???!

    #cancer #ovariancancer #selfadvocacy

  22. Your feelings are valid, and you know yourself better than anyone else. 💙
    When you’re struggling, trust your instincts about what feels right, whether that’s talking to a friend, seeking professional support, or taking time for self-care.
    You’re the expert on your own experience. And sometimes the bravest thing is reaching out when you’re ready, in whatever way feels safe for you.

    @consciousliving

    #MentalHealthMatters #SelfAdvocacy #YouMatter #TMGcommunity #VeroWellness

  23. If your kid has AuDHD, you should sit down with them and have "the talk" about how it's okay to protest, negotiate, and self-advocate when you think you're being treated unfairly. Just like you have "the talk" about sex.

    No one else is going to teach them that, and I can almost guarantee you've conditioned them (by accident[?]) to shut their mouth tight and take the L whenever they feel unfairly treated.

    #parenting #AuDHD #autism #adhd #selfadvocacy #classicalconditioning #operandconditioning

  24. 'The Effect of Choice Making Opportunities and Supporting Positive Behavior Strategies in Self-Advocacy among Students with Intellectual Disabilities' - a new article from the Journal of #EducationalSciences (JES) on #ScienceOpen:

    📚 scienceopen.com/document?vid=5

    #SelfAdvocacy #IntellectualDisabilities #EducationalResearch #SpecialEducation

  25. Feeling like the therapy is helping--last session, I called it 10 minutes early because it felt like we'd come to a good stopping point and I really needed lunch.

    That's progress! I spoke up and advocated for my needs! I was rewarded with sushi!
    #therapymoment #selfadvocacy

  26. ♾ Ce week-end, c'était NeuroShaker à Vernon (27) : deux jours de conférences et d'échanges sur l'inclusion professionnelle et scolaire des personnes neurodivergentes.

    Merci à Autypik et With EIM pour la co-organisation, la Manufacture des Capucins deviendra une école pour neurodivergents selon un modèle d'enseignement non vertical basé sur la collaboration.

    🌧 Le temps était mitigé, mais les personnes présentes rayonnaient ☀️ ! De belles rencontres avec des comptes Instagram engagés et des structures amies, des retrouvailles, des échanges enrichissants avec les premiers concerné·e·s…

    #selfadvocacy #autorepresentation #tdah #autisme #actuallyAutisticFR

  27. An #OnlineAutscape2025 “More Autistic Joy” highlight:

    On the 8th of February at 20:00 GMT/UTC, Emily Slater, Lyric Schranz and Tokyo Attard from Malta will be presenting “Empowering Autistic Youth – Introducing the ACTIVATE Project”.

    This autistic-led, autistic-run event is on from the 7th to the 9th.
    Registration: autscape.org/2025/registration
    Schedule (still in flux): autscape.org/2025/programme/sc

    Please boost for visibility. Thanks :)

    #Autscape #autism #autistic #ActuallyAutistic #Empowerment #Advocacy #SelfAdvocacy #ACTIVATE

  28. 🎄🌲Joyeuses fêtes a tous et toutes.

    Les permanences hebdomadaires reprendront le 6 janvier.

    Nous restons mobilisés en 2025 pour que tous les autistes aident le droit de vivre chez eux et choisir leur vie ! N’hésitez pas à faire un don et communiquer autour de vous #selfadvocacy #autodetermination cle-autistes.s2.yapla.com/fr/c

  29. I saw my GP on the 4th to organise new scripts.

    Yet, despite numerous requests from my GP, the clinic, and myself for the authority to prescribe to be handed over and assurances that I'd at least receive an e-script...

    ... what a lovely festy period it'll be.

    #AuDHD + #cPTSD + #RSD kills #SelfAdvocacy

    abc.net.au/news/health/2024-12

  30. 🧵 1/5 School sent an email today about an incident. My son refused to leave a situation where another peer (a friend) was escalated and hitting themselves. My son was reprimanded and will have consequences tomorrow at school.

    At first I thought he’d been triggered and became escalated himself. But why punish him for that? Was it “unsafe?”

    #ActuallyAutistic #ADHD #AuDHD #ParentingWhileAutistic #AutisticParentng #SelfAdvocacy #PerspectiveTaking #Empathy @actuallyautistic

  31. 📚🤖Serie de webinaires en anglais par @EUCAP_autism sur l’intelligence artificielle et les droits autistes.

    Ce projet européen a pour but de former les auto-représentants autistes sur les enjeux de l’IA #selfadvocacy

    IA & vie autonome le 21 novembre
    ➡️ eucap.eu/aira/

  32. 3) Get ready to advocate for yourself, research from reputable sources and do not wait for information to be provided to you.

    #SelfAdvocacy #cancer #ProstateCancer

  33. CW: Spoonie, heat stress, follow-up

    Heat Stress follow-up

    "You may have seen my previous post about “Heat stress as a spoonie.” Apparently, the recent changes I demanded to the implantable loop recorder (ILR) that I received back on 30-April, have already had an impact."

    Continues at the link:

    janetannelogan.com/2024/07/15/

    #Afib #ParoxysmalAtrialTachycardia #SelfAdvocacy #Spoonie

    @spoonies

  34. CW: Surgery, ADHD diagnosis

    Yesterday, I had my first consultation for facial feminization surgery (FFS). I felt a mix of fear and excitement—scared about potential complications and the permanent changes ahead, yet thrilled to finally see a version of myself that closely resembles how I envision my true appearance.

    Navigating all the terms and procedures that the doctor mentioned will be a deep dive for me. My plan is to have the surgery next year once I work out the insurance details and save up. For anyone considering FFS, I highly recommend booking consultations early because the waiting lists can be long, even for an initial appointment.

    Today, I visited a new primary care provider after a disappointing experience with my former doctor regarding gender-affirming care. This new provider was warm and diligent, carefully reviewing my medical history. Halfway through, she asked a series of questions that I soon recognized as an ADHD assessment. After answering honestly, I was officially diagnosed with ADHD. I'd suspected it for a while, and having that confirmation feels like one less thing to wonder about.

    If you're struggling with finding supportive healthcare, don't settle for the opinion of a single provider. Advocate for yourself—you deserve it.

    #TransHealthcare #ADHDAwareness #SelfAdvocacy

  35. Turned out that yesterday's Showdown at PT Corral was no battle at all! Therapist agreed with no hesitation to proceed less aggressively to try to keep me from the level of misery I've been in - all I had to do was inform her of my experience.

    WTG, #HealthcareProfessional!

    #RotatorCuff #PhysicalTherapy #SelfAdvocacy

  36. The only regret I would have is inaction, knowing my capacity is important, knowing my strengths, weaknesses, boundaries and when I just need to be there until someone with more capacity can help

    #SelfAdvocacy is the most difficult and heart wrenching thing for me to endure

    A year of asking for help has been devastating to my #TraumaResponses but I push on

    I want to bring love and peace
    💚🐇

    So I live on

    ko-fi.com/sabilewsounds

    #YourStoryIsntOver
    #;
    #YouAreNotAlone
    #OneDayAtATime

  37. I love this piece from Marianne van Dijk's newsletter about Request Blind Spots. It's not just hard to ask for help, sometimes we don't even realise we can.

    #psychology #disability #nonviolentcommunication #nvc #askingforhelp #selfcare #selfadvocacy #chronicillness

  38. Okay well #SelfAdvocacy is tough for me right now - unexpectedly expected? It's weird I know but I don't know all at once!

    Last night on the #MondayMinglePodcast we talked about #PolyVagelTheory - I'm wondering if that's the cause of my detached awareness

    Anyway, I'm in a bind so #MutualAid would be much appreciated #Kofi support would be amazing

    ko-fi.com/sabilewsounds

    Help me and my family stay physically safe and fed

  39. Notre objectif est de faire entendre les voix des autistes et de les former à défendre leurs droits au niveau individuel et collectif. Nous partons donc de la base pour définir des priorités #selfadvocacy

  40. My doctor suggested switching medications, promising no adverse interactions with my current regimen. However, my research revealed a major warning against combining the new drug with one I was already taking. This underscores the importance of self-advocacy in healthcare, questioning treatments, and doing independent research to ensure safety. It's crucial to be an active participant in our own health decisions. #Healthcare #SelfAdvocacy #BeInformed

Share on Mastodon

Enter the server where you have an account.