#risdiplam — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #risdiplam, aggregated by home.social.
-
#risdiplam a medicine to treat spinal muscular atrophy (#SMA) cost 72Lakh Indian #Rupee per patient per year (ie. USD85K). Less than 0.1% of Indian households have an annual income of this number. Dr. Melissa Barber of Yale University, reveals the manufacturing cost of this medicine to be less than 3000 INR (ie. USD 35).
This is how private drug research and companies make profit and clearly shows why drug research and production should be in public sphere.
#DrugResearch #DrugPolicy #PublicHealth
timesofindia.indiatimes.com/home/sunday-times/all-that-matters/how-many-patients-must-die-to-pay-the-debt-to-drug-innovation-dr-melissa-barber/articleshow/115122367.cms -
#risdiplam a medicine to treat spinal muscular atrophy (#SMA) cost 72Lakh Indian #Rupee per patient per year (ie. USD85K). Less than 0.1% of Indian households have an annual income of this number. Dr. Melissa Barber of Yale University, reveals the manufacturing cost of this medicine to be less than 3000 INR (ie. USD 35).
This is how private drug research and companies make profit and clearly shows why drug research and production should be in public sphere.
#DrugResearch #DrugPolicy #PublicHealth
timesofindia.indiatimes.com/home/sunday-times/all-that-matters/how-many-patients-must-die-to-pay-the-debt-to-drug-innovation-dr-melissa-barber/articleshow/115122367.cms -
Submission by Melissa Barber supporting the application to include #risdiplam, a treatment for #sma, on the @who essential medicines list. Melissa reviews the historical evolution of the criteria for inclusion and comments on manufacturing costs.
-
This is a "Statement in support of the proposal on the inclusion of #risdiplam in the @who Model List of Essential Medicines for the treatment of spinal muscular atrophy" by 21 #SMA patient organizations.
-
Roche has informed me that the patent landscape for #risdiplam is included in the pat-infomred public database.
-
Roche has informed me that the patent landscape for #risdiplam is included in the pat-infomred public database.
-
To appreciate why this is important, note that the retail US price for #risdiplam is more than $1,100 per day for the 5mg dose, and the API for the drug can be manufactured at scale for about 10 cents a day. #sma
-
To appreciate why this is important, note that the retail US price for #risdiplam is more than $1,100 per day for the 5mg dose, and the API for the drug can be manufactured at scale for about 10 cents a day. #sma
-
KEI is in discussions with generic drug manufacturers to supply affordable versions of #risdiplam for the treatment of #sma. Having more transparent global patent landscape data is important.
-
KEI is in discussions with generic drug manufacturers to supply affordable versions of #risdiplam for the treatment of #sma. Having more transparent global patent landscape data is important.
-
Ich überlege an einer Gründung einer kleinen Gruppe zum Austausch zwischen Nutzern von #Risdiplam, zum Beispiel über die Erfahrungen und Best-Practice bei der Lagerung und Transport etc. Wer hätte Interesse? #sma