#risdiplam — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #risdiplam, aggregated by home.social.
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Disease characteristics and treatment status of genetically confirmed spinal muscular atrophy patients: a cross-sectional survey in China | BMC Neurology
Spinal deformities are prevalent in 84.0% of SMA patients, and 82.1% experience joint def…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Genetics #Disease-modifyingtherapies #Neurochemistry #Neurology #Neurosurgery #Nusinersen #Risdiplam #Science #spinalmuscularatrophy #Treatmentsatisfaction
https://www.newsbeep.com/us/205027/ -
Disease characteristics and treatment status of genetically confirmed spinal muscular atrophy patients: a cross-sectional survey in China | BMC Neurology
Spinal deformities are prevalent in 84.0% of SMA patients, and 82.1% experience joint def…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Genetics #Disease-modifyingtherapies #Neurochemistry #Neurology #Neurosurgery #Nusinersen #Risdiplam #Science #spinalmuscularatrophy #Treatmentsatisfaction
https://www.newsbeep.com/us/205027/ -
#risdiplam a medicine to treat spinal muscular atrophy (#SMA) cost 72Lakh Indian #Rupee per patient per year (ie. USD85K). Less than 0.1% of Indian households have an annual income of this number. Dr. Melissa Barber of Yale University, reveals the manufacturing cost of this medicine to be less than 3000 INR (ie. USD 35).
This is how private drug research and companies make profit and clearly shows why drug research and production should be in public sphere.
#DrugResearch #DrugPolicy #PublicHealth
timesofindia.indiatimes.com/home/sunday-times/all-that-matters/how-many-patients-must-die-to-pay-the-debt-to-drug-innovation-dr-melissa-barber/articleshow/115122367.cms