#remunity — Public Fediverse posts

I don’t think I mentioned that my medication pump false alarms started up again, 2-3 every night. Lol. Gonna try a factory reset today. #Remunity #PAH #PulmonaryHypertension

No. Pump. Alarms. Last. Night.

I don’t know why I need to put in a 100% charged battery every night before bed (these batteries are supposed to be good for 72+ hours) but that’s the solution. And it’s easy!

It has been a full week, so I’m calling it SOLVED! And the problem is not me! Happy dance!

#Remunity #PulmonaryHypertension #PulmonaryArterialHypertension #Remodulin #PAH

Beep beep beep. But only once, and early (11pm) so I’d only been asleep for an hour and fell back to sleep easily #Remunity #PulmonaryHypertension

Beep beep beep. False medication pump alarm at 5am. Pump and remote wrapped in tinfoil to shield from stray RF and me sleeping in guest room because of Snoring Englishman.

So it’s me. Something about me. But only in the middle of the night. WHY WHY WHY.

#Remunity #PulmonaryHypertension

I ran errands and ate a simply enormous cheese blintz. The Beloved Englishman is digging up some RF shielding material from his workshop so I can sew a protective pouch for my medication pump. This will tell us once and for all if the problem is RF interference or not.

Hypothesis: the CPAP machine was part of the problem, but there is some other source of RF as well. But only in bedroom at night 🙄

#Remunity #PulmonaryHypertension

False medication pump alarm at 3:55am. Still awake from crushing anxiety and frustration. Back to the drawing board I guess #Remunity #PulmonaryHypertension

Good morning friends!

I think we’ve solved The Case of the Mysterious Nighttime Medication Pump False Alarms! It was Dave’s unused but plugged in CPAP machine phoning home with diagnostics at night.

We need a few more alarm-free nights to be certain, but all the clues add up perfectly. I’ll fill this post with hashtags for anyone else who has this problem and will also write a detailed blog post full of useful keywords.

#PulmonaryHypertension #PAH #Remunity #Remodulin #Alarms #CPAP

My medication pump did NOT wake me up last night 😳 (I’m awake much too early anyway because I woke up and started analyzing why it hadn’t. THANKS, BRAIN)

Also, I forgot to wear my Apple Watch last night.

Coincidence??? Time will tell. (See what I did there?)

#PAH #Remunity #Remodulin #PulmonaryHypertension

Good news, everyone! I ran an experiment to see if my pump would warn me if its medication cartridge was empty (despite the display telling me I had many hours of medication remaining) — and it does! So there’s one thing that it **obviously** should do that it **actually** does. I wish I wasn’t surprised 🙄

At least I know if it says I’m getting my meds, I truly am. #PAH #Remunity #Remodulin #PulmonaryHypertension

My pump woke me up twice but all before 2am so I was able to fall back asleep. I guess this is my life now.

From now on, you can assume I’m woken up several times in the middle of every night. I’ll stop reporting unless it’s egregious.

I will let you know if it DOESN’T wake me up. 🤣 #PAH #Remunity #Remodulin #PulmonaryHypertension

Guess who has been awake since 3:45am because of medication pump alarms.

Now they have me swapping out the internal, once-a-year batteries (which, luckily, they already shipped in case this happened again with my “new” equipment). #PAH #Remunity #Remodulin #PulmonaryHypertension