#rarediseaseday2024 — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #rarediseaseday2024, aggregated by home.social.
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Casey posted this on FB yesterday for #RareDiseaseDay - I got on Pete's account and screenshotted it.
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Casey posted this on FB yesterday for #RareDiseaseDay - I got on Pete's account and screenshotted it.
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Casey posted this on FB yesterday for #RareDiseaseDay - I got on Pete's account and screenshotted it.
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It's Rare Disease Day again, and time to reshare my experiences with a 1 in a million (literally!) progressive neurological disease, cerebral vasculitis. I've written a lot about it before, but I think my "Implications of living with a rare disease" blog post is a good one, which also addresses the experiences of other people living with other rare diseases. https://vivsacademicblog.wordpress.com/2016/02/29/implications-of-living-with-a-rare-disease/ #RareDiseaseDay #RareDiseaseDay2024 #Vasculitis #Neuro #NHS