#rareconditions — Public Fediverse posts

Incyte (INCY) Wins EU Backing For Opzelura As Pipeline Data Builds Across Four Drugs

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#Europe #EU #atopicdermatitis #EuropeanCommission #EuropeanUnion #globalcommunity #Incyte #individualinvestors #myeloproliferativeneoplasms #Opzelura #rareconditions #rarediseases #regulatoryupdates #treatmentguidelines
https://www.europesays.com/europe/80625/

Has anyone with #PKU heard of Kevin Alexander's podcast "Never Give Up: A Rare Disease Podcast"?

I briefly met him at the ESPKU, and he was absolutely lovely, just making my way through his podcast now!

https://open.spotify.com/show/5jW0TZlMvtnyK6ivW5kFDE?si=433bcf6eb27144e5

#pku #phenylketonuria #geneticdisorder #Podcast #RareDisease #RareConditions

Has anyone with #PKU heard of Kevin Alexander's podcast "Never Give Up: A Rare Disease Podcast"?

I briefly met him at the ESPKU, and he was absolutely lovely, just making my way through his podcast now!

https://open.spotify.com/show/5jW0TZlMvtnyK6ivW5kFDE?si=433bcf6eb27144e5

#pku #phenylketonuria #geneticdisorder #Podcast #RareDisease #RareConditions

Has anyone with #PKU heard of Kevin Alexander's podcast "Never Give Up: A Rare Disease Podcast"?

I briefly met him at the ESPKU, and he was absolutely lovely, just making my way through his podcast now!

https://open.spotify.com/show/5jW0TZlMvtnyK6ivW5kFDE?si=433bcf6eb27144e5

#pku #phenylketonuria #geneticdisorder #Podcast #RareDisease #RareConditions

Are you interested in reading more about the #experiences of people living with #RareConditions?

Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Are you interested in reading more about the #experiences of people living with #RareConditions?

Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe