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#pulmonaryarterialhypertension — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pulmonaryarterialhypertension, aggregated by home.social.

  1. Ugh..! That’ll teach me to think I can stop putting k-tape on my oxygen’s that I’ve been using to prevent cheek blisters caused by pressure sores 😢

    I can’t believe how much my cheeks hurt right now, as well as how itchy & swollen everything is on top of it 🥺

    So much owieness… everything touching my face hurts, even my glasses 😣

    I wish there was a for users 😓


  2. Ugh..! That’ll teach me to think I can stop putting k-tape on my oxygen’s #NasalCannula that I’ve been using to prevent cheek blisters caused by pressure sores 😢

    I can’t believe how much my cheeks hurt right now, as well as how itchy & swollen everything is on top of it 🥺

    So much owieness… everything touching my face hurts, even my glasses 😣

    I wish there was a #BetterSolution for #SupplementalOxygen users 😓

    #Scleroderma
    #InterstitialLungDisease #PulmonaryArterialHypertension

  3. Ugh..! That’ll teach me to think I can stop putting k-tape on my oxygen’s #NasalCannula that I’ve been using to prevent cheek blisters caused by pressure sores 😢

    I can’t believe how much my cheeks hurt right now, as well as how itchy & swollen everything is on top of it 🥺

    So much owieness… everything touching my face hurts, even my glasses 😣

    I wish there was a #BetterSolution for #SupplementalOxygen users 😓

    #Scleroderma
    #InterstitialLungDisease #PulmonaryArterialHypertension

  4. I did my lung exercises AND my stupid boring leg exercises for the first time since I got out of the hospital.

    I have a hard time walking from the bedroom to the kitchen. Scary. If I remember right, I was this bad before I started physical therapy but improved quickly. Fingers crossed that happens again. I don’t want to go to a nursing home yet.

    #ChronicIllness #PulmonaryHypertension #PAH #PulmonaryArterialHypertension

  5. No. Pump. Alarms. Last. Night.

    I don’t know why I need to put in a 100% charged battery every night before bed (these batteries are supposed to be good for 72+ hours) but that’s the solution. And it’s easy!

    It has been a full week, so I’m calling it SOLVED! And the problem is not me! Happy dance!

    #Remunity #PulmonaryHypertension #PulmonaryArterialHypertension #Remodulin #PAH

  6. Just published this review on #PulmonaryArterialHypertension clinical trials in the Lancet.

    We discuss progress to date, current challenges, and need for innovations in trial design and outcome definitions.
    #PAH #RCTs

    Link to free article for the next 50 days
    👇
    authors.elsevier.com/a/1g8Y1V-