#profoundautism — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #profoundautism, aggregated by home.social.
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A consensus research definition for profound autism: "adaptive functioning well below age level, requiring adult supervision to ensure physical and mental health, safety and well-being, being at least 8 years old, diagnosed with ASD, and having severely impaired cognitive abilities (reflected by IQ score below 50) and/or not verbally communicating other than single words or fixed phrases used predominantly to have their basic needs met."
https://link.springer.com/article/10.1186/s13229-026-00727-y
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Well - despite my skepticism re: Kennedy's IACC, I am actually really glad to read this!
I really agree about “problems with praxis” not reflecting intellectual ability. People (clinicians and the rest of us) often conflate co-occurring challenges (like problems with praxis) with intellectual ability which is so unfair (not to mention inaccurate.)
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“[…] Dear Dame #UtaFrith, and all other like-minded people, that’s how big it is. This is a genie that you will not be able to stuff back in the bottle. It seems sometimes that you have all the power. You don’t.”
– Heta Pukki, President of the European Council of Autistic PeopleClick: https://eucap.eu/the-meaning-of-the-spectrum/
#EUCAP #autism #autismspectrum #ActuallyAutistic #neurodivergent #neurodiversity #neurodivergence #neurodiverse #ProfoundAutism
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An Interview with Elaine Hall – Founder of “The Miracle Project” and the Mother of a Non-Speaking Spectrum Adult – On the Concept of “Profound Autism”
https://autismspectrumnews.org/an-interview-with-elaine-hall-founder-of-the-miracle-project-and-the-mother-of-a-non-speaking-spectrum-adult-on-the-concept-of-profound-autism/
#behaviorascommunication #WebsiteExclusive #Neurodiversity #neurodiversity #profoundautism #interview #parenting #Advocacy #advocacy #language -
Let’s NOT Divide the Autism Spectrum: My View From the Trenches on “Profound Autism”
https://autismspectrumnews.org/lets-not-divide-the-autism-spectrum-my-view-from-the-trenches-on-profound-autism/
#Opinion-Editorial #WebsiteExclusive #neurodiversity #profoundautism #supportgroups #nonspeaking #stereotypes #language #fathers #opinion #labels -
Opinion: It’s Time to Embrace “Profound Autism”
https://autismspectrumnews.org/opinion-its-time-to-embrace-profound-autism/
#Opinion-Editorial #WebsiteExclusive #profoundautism #terminology #language #research #opinion #family -
It’s time to embrace ‘profound autism’
https://www.spectrumnews.org/opinion/viewpoint/its-time-to-embrace-profound-autism/
#adultswithautism #profoundautism #Viewpoint #community #diagnosis #autism -
Autistic groups worldwide pressure The Lancet on future research
https://au-ti.com/2022/02/14/autistic-groups-worldwide-pressure-the-lancet-on-future-research/
#AutisticSelfAdvocacyNetwork #ProfoundAutism #UnitedKingdom #DamianMilton #UnitedStates #HetaPukki #TheLancet #Advocacy #EUCAP #ASAN