#primaryimmunodeficiency — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #primaryimmunodeficiency, aggregated by home.social.
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European Commission grants marketing authorization to Pharming’s Joenja® (leniolisib) – the first approved treatment for APDS in the European Union
Pharming Group N.V. Joenja® (leniolisib) is first approved treatment…
#Europe #EU #(leniolisib) #APDS #EURONEXTAmsterdam #European #EuropeanCommission #EuropeanUnion #immunedysregulation #Leiden #pediatricpatients #PharmingGroup #phosphoinositide3-kinase #primaryimmunodeficiency #TheNetherlands #UnitedKingdom
https://www.europesays.com/europe/50621/ -
Norgine announces European Commission Marketing Authorisation for XOLREMDI® (mavorixafor), the first authorised treatment for patients with WHIM syndrome in the European Union
Approval follows a posi…
#Europe #EU #EuropeanCommission #(Mavorixafor) #CXCR4receptor #EuropeanMedicinesAgency #exceptionalcircumstances #hypogammaglobulinemia #marketingauthorisation #Norgine #Patients #pharmaceuticalcompany #primaryimmunodeficiency #WHIMsyndrome #whitebloodcells
https://www.europesays.com/europe/26264/ -
"Here, we describe a patient with selective IgA2 deficiency (CD068) with concomitant small intestinal Crohn’s disease (CD) and duodenal and ileal inflammation. To our knowledge, this is the first case of IgA2deficiency with a potential link to inflammatory bowel disease (IBD). This report might provide insights into potential IgA2-specific functions."
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So, a proper introduction seems important to me. I'm from rural Pennsylvania, now living in Illinois. My health started failing in 2017ish. Ever since, it's been a full time job to keep up with my many symptoms. Dx #hEDS in 2021, then #Primaryimmunodeficiency in 2022. I'm #ActuallyAutistic and am lousy at making and keeping friends. Still trying to avoid getting Covid makes that harder, when the majority of the world has seemingly moved on. I just want to find some kindness and solidarity here!
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I'm a women's fiction author who is obsessed with music, democracy, and my family. Mostly posting about the first two, but I occasionally go off the proverbial rails. I also post about #primaryimmunodeficiency, a condition I have, to raise awareness since a lot of people don't know they have this, too.
I swear sometimes. You can take the girl outta Jersey but... you know the rest.
#Vote today if you're in the US and haven't done so already! Stay safe. xx