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#potsawarenessday — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #potsawarenessday, aggregated by home.social.

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  1. It’s POTS Awareness Day. I forgot because (ironically) I’m dealing with monster coat hanger pain… something common in POTS.

    It’s a terrible headache that encompasses your neck and upper back - it basically forms the shape of a coat hanger!

    It took me years to realize the coat hanger pain was from my POTS. Years of suffering through debilitating headaches and back pain that painkillers couldn’t touch.

    I tried massage, heat, ice, stretches, laying in a dark room…
    Nothing worked.

    You know what DID work? IV saline. When I get IV fluids I can feel the pain start to melt away. Relief tends to start at the top of my head and slowly moves down to my shoulders and back - the pain is generally gone after 1-2L.

    It’s incredible just how much your body can be impacted by POTS. I’ve been dealing with this condition for years and I’m still learning new things every day.

    It’s also a common comorbid with Long Covid. If you’re new to POTS, think you might have POTS or just want to learn more - I wrote an intro guide linked below:

    disabledginger.com/p/living-li

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #DysautonomiaAwarenessMonth #POTSAwarenessDay

  2. It’s POTS Awareness Day. I forgot because (ironically) I’m dealing with monster coat hanger pain… something common in POTS.

    It’s a terrible headache that encompasses your neck and upper back - it basically forms the shape of a coat hanger!

    It took me years to realize the coat hanger pain was from my POTS. Years of suffering through debilitating headaches and back pain that painkillers couldn’t touch.

    I tried massage, heat, ice, stretches, laying in a dark room…
    Nothing worked.

    You know what DID work? IV saline. When I get IV fluids I can feel the pain start to melt away. Relief tends to start at the top of my head and slowly moves down to my shoulders and back - the pain is generally gone after 1-2L.

    It’s incredible just how much your body can be impacted by POTS. I’ve been dealing with this condition for years and I’m still learning new things every day.

    It’s also a common comorbid with Long Covid. If you’re new to POTS, think you might have POTS or just want to learn more - I wrote an intro guide linked below:

    disabledginger.com/p/living-li

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #DysautonomiaAwarenessMonth #POTSAwarenessDay

  3. It’s POTS Awareness Day. I forgot because (ironically) I’m dealing with monster coat hanger pain… something common in POTS.

    It’s a terrible headache that encompasses your neck and upper back - it basically forms the shape of a coat hanger!

    It took me years to realize the coat hanger pain was from my POTS. Years of suffering through debilitating headaches and back pain that painkillers couldn’t touch.

    I tried massage, heat, ice, stretches, laying in a dark room…
    Nothing worked.

    You know what DID work? IV saline. When I get IV fluids I can feel the pain start to melt away. Relief tends to start at the top of my head and slowly moves down to my shoulders and back - the pain is generally gone after 1-2L.

    It’s incredible just how much your body can be impacted by POTS. I’ve been dealing with this condition for years and I’m still learning new things every day.

    It’s also a common comorbid with Long Covid. If you’re new to POTS, think you might have POTS or just want to learn more - I wrote an intro guide linked below:

    disabledginger.com/p/living-li

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #DysautonomiaAwarenessMonth #POTSAwarenessDay

  4. It’s POTS Awareness Day. I forgot because (ironically) I’m dealing with monster coat hanger pain… something common in POTS.

    It’s a terrible headache that encompasses your neck and upper back - it basically forms the shape of a coat hanger!

    It took me years to realize the coat hanger pain was from my POTS. Years of suffering through debilitating headaches and back pain that painkillers couldn’t touch.

    I tried massage, heat, ice, stretches, laying in a dark room…
    Nothing worked.

    You know what DID work? IV saline. When I get IV fluids I can feel the pain start to melt away. Relief tends to start at the top of my head and slowly moves down to my shoulders and back - the pain is generally gone after 1-2L.

    It’s incredible just how much your body can be impacted by POTS. I’ve been dealing with this condition for years and I’m still learning new things every day.

    It’s also a common comorbid with Long Covid. If you’re new to POTS, think you might have POTS or just want to learn more - I wrote an intro guide linked below:

    disabledginger.com/p/living-li

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #DysautonomiaAwarenessMonth #POTSAwarenessDay

  5. It’s POTS Awareness Day. I forgot because (ironically) I’m dealing with monster coat hanger pain… something common in POTS.

    It’s a terrible headache that encompasses your neck and upper back - it basically forms the shape of a coat hanger!

    It took me years to realize the coat hanger pain was from my POTS. Years of suffering through debilitating headaches and back pain that painkillers couldn’t touch.

    I tried massage, heat, ice, stretches, laying in a dark room…
    Nothing worked.

    You know what DID work? IV saline. When I get IV fluids I can feel the pain start to melt away. Relief tends to start at the top of my head and slowly moves down to my shoulders and back - the pain is generally gone after 1-2L.

    It’s incredible just how much your body can be impacted by POTS. I’ve been dealing with this condition for years and I’m still learning new things every day.

    It’s also a common comorbid with Long Covid. If you’re new to POTS, think you might have POTS or just want to learn more - I wrote an intro guide linked below:

    disabledginger.com/p/living-li

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #DysautonomiaAwarenessMonth #POTSAwarenessDay

  6. To celebrate #POTSawarenessDay I stood up for slightly too long and now I'm dying 🫠

  7. To celebrate #POTSawarenessDay I stood up for slightly too long and now I'm dying 🫠

  8. To celebrate #POTSawarenessDay I stood up for slightly too long and now I'm dying 🫠

  9. To celebrate #POTSawarenessDay I stood up for slightly too long and now I'm dying 🫠

  10. To celebrate #POTSawarenessDay I stood up for slightly too long and now I'm dying 🫠

  11. Huh, apparently it's #POTSawarenessDay. Personally I would like to have a day or two unaware of the flipping bastard 😔

  12. Huh, apparently it's #POTSawarenessDay. Personally I would like to have a day or two unaware of the flipping bastard 😔

  13. Huh, apparently it's #POTSawarenessDay. Personally I would like to have a day or two unaware of the flipping bastard 😔

  14. Huh, apparently it's #POTSawarenessDay. Personally I would like to have a day or two unaware of the flipping bastard 😔

  15. Huh, apparently it's #POTSawarenessDay. Personally I would like to have a day or two unaware of the flipping bastard 😔

  16. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport

    @ukpots

  17. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport

    @ukpots

  18. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport

    @ukpots

  19. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport

    @ukpots

  20. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport

    @ukpots

  21. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials.
    💜More details: potsuk.org/wp-content/uploads/
    #PoTSAwarenessDay @DysSupport

  22. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials.
    💜More details: potsuk.org/wp-content/uploads/
    #PoTSAwarenessDay @DysSupport

  23. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials.
    💜More details: potsuk.org/wp-content/uploads/
    #PoTSAwarenessDay @DysSupport

  24. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials.
    💜More details: potsuk.org/wp-content/uploads/
    #PoTSAwarenessDay @DysSupport

  25. 💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials.
    💜More details: potsuk.org/wp-content/uploads/
    #PoTSAwarenessDay @DysSupport