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#potsawarenessday — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #potsawarenessday, aggregated by home.social.

  1. Broadwaybabyto @[email protected] ·

    It’s POTS Awareness Day. I forgot because (ironically) I’m dealing with monster coat hanger pain… something common in POTS.

    It’s a terrible headache that encompasses your neck and upper back - it basically forms the shape of a coat hanger!

    It took me years to realize the coat hanger pain was from my POTS. Years of suffering through debilitating headaches and back pain that painkillers couldn’t touch.

    I tried massage, heat, ice, stretches, laying in a dark room…
    Nothing worked.

    You know what DID work? IV saline. When I get IV fluids I can feel the pain start to melt away. Relief tends to start at the top of my head and slowly moves down to my shoulders and back - the pain is generally gone after 1-2L.

    It’s incredible just how much your body can be impacted by POTS. I’ve been dealing with this condition for years and I’m still learning new things every day.

    It’s also a common comorbid with Long Covid. If you’re new to POTS, think you might have POTS or just want to learn more - I wrote an intro guide linked below:

    disabledginger.com/p/living-li

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #DysautonomiaAwarenessMonth #POTSAwarenessDay

    #covidcautious #covidisnotover #cleanair #wearamask #disability #longcovid
  2. Dr Joe Pajak @[email protected] ·

    💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials. #PoTSAwarenessDay @DysSupport

    @ukpots

    #pots #dysautonomiaawarenessmonth #potsawarenessday
  3. Dr Joe Pajak @[email protected] ·

    💜Make a pledge to raise awareness of #PoTS throughout October #DysautonomiaAwarenessMonth
    1) Share or take action with @UKPoTs daily posts/ideas.
    2) Pledge an activity you enjoy and explain on your socials.
    💜More details: potsuk.org/wp-content/uploads/
    #PoTSAwarenessDay @DysSupport

    #pots #dysautonomiaawarenessmonth #potsawarenessday