#poic — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #poic, aggregated by home.social.
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#Maladie pseudo-obstruction intestinale chronique -> aucun traitement curatif.
https://mastodon.social/@cobrate/116279720971715843
Symptômes : occlusions intestinales chroniques.
Sans greffe -> nécessite 3h de soins + 15h de perfusion /jour + déplacement quotidien avec tuyaux/poche de stomie sur le ventre.
-> maladie rare = recherches #science non rentable = abandon des malades.
#livre POIC : Mon combat pour une vie (presque) normale d'Anne-Marie Gustavon-Claverie
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Pour ceux qui peuvent : https://www.sudouest.fr/gironde/saint-selve/je-suis-en-bonus-de-vie-atteinte-d-une-maladie-rare-elle-vit-sans-intestins-et-espere-une-greffe-aux-etats-unis-25256861.php
-> maladie rare = recherches #science non rentable = abandon des malades.
Un hôpital américain a accepté de la rencontrer le 17 décembre 2025 en vue d’une possible greffe intestinale.
https://www.labrede-montesquieu.fr/actualites/face-a-la-maladie-la-brede-se-mobilise/
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@temporal I'm not familiar with the specific tools.
#Zettelkasten (or various other notetaking systems such as #POIC) rely fundamentally on capture, storage, organisation, search, and cross referencing. Different systems support these capabilities in different degrees and ways. Frictions especially are significant.
Paper-based systems are especially good at capture, less so for search/access and cross-referencing.
Any digital system treads a delicate line between complexity, friction, sustainability / obsolescence, usability and other factors. Less is frequently more.
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@feonixrift Pinging @kensanata and @alcinnz as well, who at least occasionally play in this space (search, content organisation, #zettelkasten, #POIC, #orgmode, #vimwiki, etc).