#patientvoice — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #patientvoice, aggregated by home.social.
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Welcome to the #Fediverse Michele @mmanion & @PCDFoundation- we are very glad you are here! #RareDisease #PrimaryCiliaryDyskinesia #ciliopathies #PatientAdvocacyGroups #PatientVoice
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@thelizarmy patient-investigator extraordinaire publishes her #POV on awake #craniotomy for her #BrainTumor, provider-#patient #communication, #SharedDecisionMaking in #NEJM — check it out!
NEJM (paywall): https://www.nejm.org/doi/full/10.1056/NEJMp2210418
Birdsite: https://twitter.com/thelizarmy/status/1599873193439039488
#PatientEngagement #PatientEmpowerment #MedEd #MedMastodon #mediverse #PatientVoice
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@thelizarmy patient-investigator extraordinaire publishes her #POV on awake #craniotomy for her #BrainTumor, provider-#patient #communication, #SharedDecisionMaking in #NEJM — check it out!
NEJM (paywall): https://www.nejm.org/doi/full/10.1056/NEJMp2210418
Birdsite: https://twitter.com/thelizarmy/status/1599873193439039488
#PatientEngagement #PatientEmpowerment #MedEd #MedMastodon #mediverse #PatientVoice
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@thelizarmy patient-investigator extraordinaire publishes her #POV on awake #craniotomy for her #BrainTumor, provider-#patient #communication, #SharedDecisionMaking in #NEJM — check it out!
NEJM (paywall): https://www.nejm.org/doi/full/10.1056/NEJMp2210418
Birdsite: https://twitter.com/thelizarmy/status/1599873193439039488
#PatientEngagement #PatientEmpowerment #MedEd #MedMastodon #mediverse #PatientVoice
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@thelizarmy patient-investigator extraordinaire publishes her #POV on awake #craniotomy for her #BrainTumor, provider-#patient #communication, #SharedDecisionMaking in #NEJM — check it out!
NEJM (paywall): https://www.nejm.org/doi/full/10.1056/NEJMp2210418
Birdsite: https://twitter.com/thelizarmy/status/1599873193439039488
#PatientEngagement #PatientEmpowerment #MedEd #MedMastodon #mediverse #PatientVoice
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With Twitter's uncertainty & my awesome academic colleagues & #EDI champions #MastadonMigration, I am acutely aware that our #RareDisease community has not made the jump. If we are here and they are there, how do we stay connected?
I see @UsherSyndromeIreland has joined the party on here now: welcome! How do we get more #PatientAdvocacyGroups to do the same and avoid fragementation.
Ideas? #PatientVoice #ciliopathies