#patientregistry — Public Fediverse posts

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.

Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.

Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.

Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.

Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.

Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

From OMF (Open Medicine Foundation):

"Do you want to support patient communities and promote scientific research?

Join Open Medicine Foundation’s 'Study ME'! This patient registry connects you with researchers conducting ME/CFS, Long COVID, Fibromyalgia, and other post-infection illness research."

Registry link:

https://www.omf.ngo/studyME/

#MEcfs #LongCovid #Fibromyalgia #NEISvoid #Research #PatientRegistry

From Open Medicine Foundation:

"Are you interested in advancing research for ME/CFS, Long Covid, Fibromyalgia, and other post-infection illnesses?

Join OMF's #StudyME, a participant registry that connects you with researchers conducting studies in these areas!"

https://www.omf.ngo/studyME/

#MEcfs #LongCovid #Fibromyalgia #Research #PatientRegistry #OMF

From Open Medicine Foundation:

"Are you interested in advancing research for ME/CFS, Long Covid, Fibromyalgia, and other post-infection illnesses?

Join OMF's #StudyME, a participant registry that connects you with researchers conducting studies in these areas!"

https://www.omf.ngo/studyME/

#MEcfs #LongCovid #Fibromyalgia #Research #PatientRegistry #OMF

From Open Medicine Foundation:

"Are you interested in advancing research for ME/CFS, Long Covid, Fibromyalgia, and other post-infection illnesses?

Join OMF's #StudyME, a participant registry that connects you with researchers conducting studies in these areas!"

https://www.omf.ngo/studyME/

#MEcfs #LongCovid #Fibromyalgia #Research #PatientRegistry #OMF

From Open Medicine Foundation:

"Are you interested in advancing research for ME/CFS, Long Covid, Fibromyalgia, and other post-infection illnesses?

Join OMF's #StudyME, a participant registry that connects you with researchers conducting studies in these areas!"

https://www.omf.ngo/studyME/

#MEcfs #LongCovid #Fibromyalgia #Research #PatientRegistry #OMF

From Open Medicine Foundation:

"Are you interested in advancing research for ME/CFS, Long Covid, Fibromyalgia, and other post-infection illnesses?

Join OMF's #StudyME, a participant registry that connects you with researchers conducting studies in these areas!"

https://www.omf.ngo/studyME/

#MEcfs #LongCovid #Fibromyalgia #Research #PatientRegistry #OMF

Real-World Data Shown to Match Eye Disease Trial Results

#Research findings show data in patients' electronic #health records can be collected and analyzed to replicate results from late-stage clinical trials of an #eye disease #biologic drug.

https://sciencebusiness.technewslit.com/?p=44351

#News #Science #Business #MacularDegeneration #WetAMD #ClinicalTrials #RealWorldEvidence #Algorithms #Analytics #PatientRegistry #Ophthalmology #ElectronicHealthRecords