#patientinvolvement — Public Fediverse posts

🎉 We achieved a huge project milestone in January with our first patient visit in our clinical study!!

Read more in our press release: https://ihi-project-comfort.com/project-comfort-announces-first-patient-in-fpi-in-multicentre-clinical-trial-for-new-blood-micro-sampling-technology/

@IHIEurope

#PCmS #patientcentricbloodmicrosampling #patientengagement #patientinvolvement

🎉 We achieved a huge project milestone in January with our first patient visit in our clinical study!!

Read more in our press release: https://ihi-project-comfort.com/project-comfort-announces-first-patient-in-fpi-in-multicentre-clinical-trial-for-new-blood-micro-sampling-technology/

@IHIEurope

#PCmS #patientcentricbloodmicrosampling #patientengagement #patientinvolvement

Both projects reflect our commitment to ensuring the people whose data drives genomic research help shape both governance and communication.

#Genomics #PatientInvolvement #DataGovernance #GHGA #PublicEngagement

In 2024, we:

🌍 Reached thousands globally with patient-centric research
🔬 Led innovation in remote sampling for decentralized trials
🤝 Joined the Shared Commitment to Public Involvement
🏆 Won awards for Top Patient Experience & Medical Device Design

Our annual report is out—let’s innovate together !https://medipace.com/celebrating-success-medipaces-impact-in-patient-focussed-healthcare/

#MediPaCe #PatientEngagement #PatientInvolvement #PatientCentricHealthcare #PatientResearch #HealthcareInnovation #Collaboration

🌟 Introducing Project-COMFORT: Making lower volume, lower burden, lower pain blood collection an option for all.🌟

After two years of dedicated preparation, Project-COMFORT (Patient-Centric BlOod SaMpling FOr ImpRoved HealThcare) is officially launched! 🚀

📄 Read the full press release from here our LinkedIn page: https://www.linkedin.com/posts/project-comfort_project-comfort-launches-press-release-activity-7275464903358853121-NL1J?utm_source=share&utm_medium=member_desktop

#ProjectCOMFORT #BloodMicrosampling
#IHI #PatientInvolvement #PatientEngagement #HealthcareInnovation
@IHIEurope Health Initiative (IHI)

Exiting News!

In October, we’re launching PiCC United (Patient Involvement and Collaboration Community), a global community aimed at enhancing healthcare partnerships. Whether you identify as a patient, care partner, family member, or advocate, stay tuned for details on a community with a difference.

PiCC United will simplify how you get involved helping you to feel in control.

Follow us for updates

#PiCCUnited #PatientInvolvement #PatientEngagement #PatientLed #Community

RT @ValeStrammi: .@mayacmat delivers a keynote speech at #EPF20 and a mention to #HTA, #patientinvolvement and our joint effort in building the patient community capacity through #EUCAPA could not be missed. https://t.co/v5IWCcSEdK

🐦🔗: https://n.respublicae.eu/EU_Health/status/1651860659833917440

MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here:

https://medipace.com/2023/03/07/international-womens-day-2023/

#PatientEngagement #patientInvolvement #patient #equity #Equalhealthcare

Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.

https://www.internationalwomensday.com/

#patient #patientInvolvement #internationalwomensday #IWD #equity

“#PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.

🔗 https://www.eurordis.org/patient-engagement-in-medicines-development/

#RareDiseaseDay #SharingResources
#SharingIsCaring

➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/

#RareDiseaseDay #PatientInvolvement #MediPaCe

With #HealthEquity, #Diversity and #Inclusion being top of agenda in healthcare discussions, #Equity for people living with #RareDisease is #EquitableAccess to diagnosis, treatment, health, social care and opportunity.
#DidYouKnow?

#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

#DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

Support #RareDiseaseDay and join the discussion to raise awareness!

#PatientEngagement #PatientInvolvement #MediPaCe

Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

Support #RareDiseaseDay and join the discussion to raise awareness!

#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Are you interested in reading more about the #experiences of people living with #RareConditions?

Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Why Advocacy Matters: Chris’ story

A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.

What’s your experience as a family member of someone living with a rare condition?

https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

https://medipace.com/2023/02/22/rare-disease-day-2023/

#RareDisease #PatientInvolvement #MediPaCe

World Cancer Day: The rural-urban divide

Around the globe there are challenges accessing cancer care due to the distances people have to travel and the modes of travel available to them.

Here's a useful website showing such disparities in the US:
http://bit.ly/3HvlZLb

#patient #patientInvolvement #cancer

The next World Cancer Day Toot looks at poverty & socioeconomic status.

'Children's cancer' write about the prevalence of the condition across the African-American and Hispanic young populations:
http://bit.ly/408dAoc

And this paper explores the reasons behind late diagnosis of cancer in Tanzania:
http://bit.ly/3H3zKiE

#patient #patientInvolvement #cancer

Hi #Mastodon, we're MediPaCe. A values-driven patient engagement & patient research company.

We've joined mastodon.world because the supportive environment is perfect for patients, healthcare, regulators & companies to share their thoughts and ideas as equals. Routine recognition of patient voices in health & medicines development can only advance if we all talk together.

We would love to create a network with people interested in the area.
#introduction #patientInvolvement #patient

First post on here. Feels pretty much like I'm shouting into an empty room...

For anyone who sees this, I'm interested in:

#patientsafety
#systemsthinking
#safetyscience
#humanfactors
#patientinvolvement

Hope to engage in some calm, and interesting discussion!

First post on here. Feels pretty much like I'm shouting into an empty room...

For anyone who sees this, I'm interested in:

#patientsafety
#systemsthinking
#safetyscience
#humanfactors
#patientinvolvement

Hope to engage in some calm, and interesting discussion!