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#patientinvolvement — Public Fediverse posts

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  1. Both projects reflect our commitment to ensuring the people whose data drives genomic research help shape both governance and communication.

    #Genomics #PatientInvolvement #DataGovernance #GHGA #PublicEngagement

  2. Both projects reflect our commitment to ensuring the people whose data drives genomic research help shape both governance and communication.

    #Genomics #PatientInvolvement #DataGovernance #GHGA #PublicEngagement

  3. Both projects reflect our commitment to ensuring the people whose data drives genomic research help shape both governance and communication.

    #Genomics #PatientInvolvement #DataGovernance #GHGA #PublicEngagement

  4. Both projects reflect our commitment to ensuring the people whose data drives genomic research help shape both governance and communication.

    #Genomics #PatientInvolvement #DataGovernance #GHGA #PublicEngagement

  5. In 2024, we:

    🌍 Reached thousands globally with patient-centric research
    🔬 Led innovation in remote sampling for decentralized trials
    🤝 Joined the Shared Commitment to Public Involvement
    🏆 Won awards for Top Patient Experience & Medical Device Design

    Our annual report is out—let’s innovate together !medipace.com/celebrating-succe

    #MediPaCe #PatientEngagement #PatientInvolvement #PatientCentricHealthcare #PatientResearch #HealthcareInnovation #Collaboration

  6. In 2024, we:

    🌍 Reached thousands globally with patient-centric research
    🔬 Led innovation in remote sampling for decentralized trials
    🤝 Joined the Shared Commitment to Public Involvement
    🏆 Won awards for Top Patient Experience & Medical Device Design

    Our annual report is out—let’s innovate together !medipace.com/celebrating-succe

    #MediPaCe #PatientEngagement #PatientInvolvement #PatientCentricHealthcare #PatientResearch #HealthcareInnovation #Collaboration

  7. 🌟 Introducing Project-COMFORT: Making lower volume, lower burden, lower pain blood collection an option for all.🌟

    After two years of dedicated preparation, Project-COMFORT (Patient-Centric BlOod SaMpling FOr ImpRoved HealThcare) is officially launched! 🚀

    📄 Read the full press release from here our LinkedIn page: linkedin.com/posts/project-com


    #ProjectCOMFORT #BloodMicrosampling
    #IHI #PatientInvolvement #PatientEngagement #HealthcareInnovation
    @IHIEurope Health Initiative (IHI)

  8. 🌟 Introducing Project-COMFORT: Making lower volume, lower burden, lower pain blood collection an option for all.🌟

    After two years of dedicated preparation, Project-COMFORT (Patient-Centric BlOod SaMpling FOr ImpRoved HealThcare) is officially launched! 🚀

    📄 Read the full press release from here our LinkedIn page: linkedin.com/posts/project-com


    #ProjectCOMFORT #BloodMicrosampling
    #IHI #PatientInvolvement #PatientEngagement #HealthcareInnovation
    @IHIEurope Health Initiative (IHI)

  9. 🌟 Introducing Project-COMFORT: Making lower volume, lower burden, lower pain blood collection an option for all.🌟

    After two years of dedicated preparation, Project-COMFORT (Patient-Centric BlOod SaMpling FOr ImpRoved HealThcare) is officially launched! 🚀

    📄 Read the full press release from here our LinkedIn page: linkedin.com/posts/project-com


    #ProjectCOMFORT #BloodMicrosampling
    #IHI #PatientInvolvement #PatientEngagement #HealthcareInnovation
    @IHIEurope Health Initiative (IHI)

  10. 🌟 Introducing Project-COMFORT: Making lower volume, lower burden, lower pain blood collection an option for all.🌟

    After two years of dedicated preparation, Project-COMFORT (Patient-Centric BlOod SaMpling FOr ImpRoved HealThcare) is officially launched! 🚀

    📄 Read the full press release from here our LinkedIn page: linkedin.com/posts/project-com


    #ProjectCOMFORT #BloodMicrosampling
    #IHI #PatientInvolvement #PatientEngagement #HealthcareInnovation
    @IHIEurope Health Initiative (IHI)

  11. Exiting News!

    In October, we’re launching PiCC United (Patient Involvement and Collaboration Community), a global community aimed at enhancing healthcare partnerships. Whether you identify as a patient, care partner, family member, or advocate, stay tuned for details on a community with a difference.

    PiCC United will simplify how you get involved helping you to feel in control.

    Follow us for updates

    #PiCCUnited #PatientInvolvement #PatientEngagement #PatientLed #Community

  12. Exiting News!

    In October, we’re launching PiCC United (Patient Involvement and Collaboration Community), a global community aimed at enhancing healthcare partnerships. Whether you identify as a patient, care partner, family member, or advocate, stay tuned for details on a community with a difference.

    PiCC United will simplify how you get involved helping you to feel in control.

    Follow us for updates

    #PiCCUnited #PatientInvolvement #PatientEngagement #PatientLed #Community

  13. RT @ValeStrammi: .@mayacmat delivers a keynote speech at #EPF20 and a mention to #HTA, #patientinvolvement and our joint effort in building the patient community capacity through #EUCAPA could not be missed. t.co/v5IWCcSEdK

    🐦🔗: n.respublicae.eu/EU_Health/sta

  14. RT @ValeStrammi: .@mayacmat delivers a keynote speech at #EPF20 and a mention to #HTA, #patientinvolvement and our joint effort in building the patient community capacity through #EUCAPA could not be missed. t.co/v5IWCcSEdK

    🐦🔗: n.respublicae.eu/EU_Health/sta

  15. MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here:

    medipace.com/2023/03/07/intern

    #PatientEngagement #patientInvolvement #patient #equity #Equalhealthcare

  16. MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here:

    medipace.com/2023/03/07/intern

    #PatientEngagement #patientInvolvement #patient #equity #Equalhealthcare

  17. Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.

    internationalwomensday.com/

    #patient #patientInvolvement #internationalwomensday #IWD #equity

  18. Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.

    internationalwomensday.com/

    #patient #patientInvolvement #internationalwomensday #IWD #equity

  19. Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.

    internationalwomensday.com/

    #patient #patientInvolvement #internationalwomensday #IWD #equity

  20. Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.

    internationalwomensday.com/

    #patient #patientInvolvement #internationalwomensday #IWD #equity

  21. #PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.

    🔗 eurordis.org/patient-engagemen

    #RareDiseaseDay #SharingResources
    #SharingIsCaring

    ➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: medipace.com/2023/02/24/patien

    #RareDiseaseDay #PatientInvolvement #MediPaCe

  22. #PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.

    🔗 eurordis.org/patient-engagemen

    #RareDiseaseDay #SharingResources
    #SharingIsCaring

    ➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: medipace.com/2023/02/24/patien

    #RareDiseaseDay #PatientInvolvement #MediPaCe

  23. #DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #PatientEngagement #PatientInvolvement #MediPaCe

  24. #DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #PatientEngagement #PatientInvolvement #MediPaCe

  25. #DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #PatientEngagement #PatientInvolvement #MediPaCe

  26. #DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #PatientEngagement #PatientInvolvement #MediPaCe

  27. Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

  28. Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

  29. Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

  30. Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

    Support #RareDiseaseDay and join the discussion to raise awareness!

    #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

  31. Why Advocacy Matters: Chris’ story

    A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.

    What’s your experience as a family member of someone living with a rare condition?

    mdgroup.com/blog/why-patient-a

    #FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

  32. Why Advocacy Matters: Chris’ story

    A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.

    What’s your experience as a family member of someone living with a rare condition?

    mdgroup.com/blog/why-patient-a

    #FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

  33. Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

    ➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

    medipace.com/2023/02/22/rare-d

    #RareDisease #PatientInvolvement #MediPaCe

  34. Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

    ➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

    medipace.com/2023/02/22/rare-d

    #RareDisease #PatientInvolvement #MediPaCe

  35. Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

    ➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

    medipace.com/2023/02/22/rare-d

    #RareDisease #PatientInvolvement #MediPaCe

  36. Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

    ➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

    medipace.com/2023/02/22/rare-d

    #RareDisease #PatientInvolvement #MediPaCe

  37. World Cancer Day: The rural-urban divide

    Around the globe there are challenges accessing cancer care due to the distances people have to travel and the modes of travel available to them.

    Here's a useful website showing such disparities in the US:
    bit.ly/3HvlZLb

    #patient #patientInvolvement #cancer

  38. World Cancer Day: The rural-urban divide

    Around the globe there are challenges accessing cancer care due to the distances people have to travel and the modes of travel available to them.

    Here's a useful website showing such disparities in the US:
    bit.ly/3HvlZLb

    #patient #patientInvolvement #cancer

  39. The next World Cancer Day Toot looks at poverty & socioeconomic status.

    'Children's cancer' write about the prevalence of the condition across the African-American and Hispanic young populations:
    bit.ly/408dAoc

    And this paper explores the reasons behind late diagnosis of cancer in Tanzania:
    bit.ly/3H3zKiE

    #patient #patientInvolvement #cancer

  40. The next World Cancer Day Toot looks at poverty & socioeconomic status.

    'Children's cancer' write about the prevalence of the condition across the African-American and Hispanic young populations:
    bit.ly/408dAoc

    And this paper explores the reasons behind late diagnosis of cancer in Tanzania:
    bit.ly/3H3zKiE

    #patient #patientInvolvement #cancer

  41. ⌚ We have updated the timeline for our 💡 “Digital Health Idea Competition – Developing innovative concepts together with patients” allowing teams more time to generate ideas and concepts.

    #digitalhealth #openinnovation #patientinvolvement t.co/AokTZpRMfg

    twitter.com/LBI_DHP/status/160

  42. ⌚ We have updated the timeline for our 💡 “Digital Health Idea Competition – Developing innovative concepts together with patients” allowing teams more time to generate ideas and concepts.

    #digitalhealth #openinnovation #patientinvolvement t.co/AokTZpRMfg

    twitter.com/LBI_DHP/status/160

  43. Hi #Mastodon, we're MediPaCe. A values-driven patient engagement & patient research company.

    We've joined mastodon.world because the supportive environment is perfect for patients, healthcare, regulators & companies to share their thoughts and ideas as equals. Routine recognition of patient voices in health & medicines development can only advance if we all talk together.

    We would love to create a network with people interested in the area.
    #introduction #patientInvolvement #patient

  44. Hi #Mastodon, we're MediPaCe. A values-driven patient engagement & patient research company.

    We've joined mastodon.world because the supportive environment is perfect for patients, healthcare, regulators & companies to share their thoughts and ideas as equals. Routine recognition of patient voices in health & medicines development can only advance if we all talk together.

    We would love to create a network with people interested in the area.
    #introduction #patientInvolvement #patient

  45. Hi #Mastodon, we're MediPaCe. A values-driven patient engagement & patient research company.

    We've joined mastodon.world because the supportive environment is perfect for patients, healthcare, regulators & companies to share their thoughts and ideas as equals. Routine recognition of patient voices in health & medicines development can only advance if we all talk together.

    We would love to create a network with people interested in the area.
    #introduction #patientInvolvement #patient

  46. Calling for #PatientEngagement community to connect through Mastodon and drive positive change!

    Hi Mastodon folks! I'm Chi, passionate about patient engagement & involvement as I do believe it's a must to improve health outcomes for all. Would love to create a network of like-minded people and groups!

    In addition, I might post about my dog, DIY, knitting, cooking, nature and things and happenings around me.

    #introduction #PatientInvolvement

  47. First post on here. Feels pretty much like I'm shouting into an empty room...

    For anyone who sees this, I'm interested in:





    Hope to engage in some calm, and interesting discussion!

  48. First post on here. Feels pretty much like I'm shouting into an empty room...

    For anyone who sees this, I'm interested in:

    #patientsafety
    #systemsthinking
    #safetyscience
    #humanfactors
    #patientinvolvement

    Hope to engage in some calm, and interesting discussion!

  49. First post on here. Feels pretty much like I'm shouting into an empty room...

    For anyone who sees this, I'm interested in:

    #patientsafety
    #systemsthinking
    #safetyscience
    #humanfactors
    #patientinvolvement

    Hope to engage in some calm, and interesting discussion!

  50. First post on here. Feels pretty much like I'm shouting into an empty room...

    For anyone who sees this, I'm interested in:

    #patientsafety
    #systemsthinking
    #safetyscience
    #humanfactors
    #patientinvolvement

    Hope to engage in some calm, and interesting discussion!

  51. First post on here. Feels pretty much like I'm shouting into an empty room...

    For anyone who sees this, I'm interested in:

    #patientsafety
    #systemsthinking
    #safetyscience
    #humanfactors
    #patientinvolvement

    Hope to engage in some calm, and interesting discussion!