#parentcarer — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #parentcarer, aggregated by home.social.
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Morning. This week we've had some genuinely productive and important appointments about my daughter's health needs. It's been intense but is giving us a glimmer of hope for the future
#ParentCarer
#epilepsy
#OccupationalTherapy
#Paediatrics
#SEND
#disability
#drawing
#ArtOfMastodon -
I had a vile MH crisis back in 2021. I'm well on the road to recovery, but I still have many days where recovery feels like this
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CW: Ableist slurs
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CW: Ableist slurs
TW: ableist slurs
Been very moved by articles by fellow parent carers this morning re ableist slurs which moved me to want to draw about it.
This drawing isn't quite expressing what I mean, and is a bludgeon of a picture, but I wanted to get started as it's time to do better at this. And I direct that message very much at myself too
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@OT_Expert as a #ParentCarer I have experienced the negativity caused by a lack of understanding resulting in my lo getting undressed as fast as I dressed her; hiding my keys, phone, purse, shoes; hiding her shoes; getting out of the car before I could get in; stripping and throwing her uniform at me whilst I drove to school; running off down the street; refusing to get out of bed, eat, drink and more due to school(s) . Eventually I home educated.... some teachers do more harm than good. Thankfully ot saved us and provided video evidence of school vs home ed and the differences in my child :-)
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A bit niche, but I'm looking for people in the #RettSyndrome #SETD5Syndrome #Autism #LearningDisability #Epilepsy community. Our daughter has all of the above. Would love to meet fellow #ParentCarer #UnpaidCarer folks