#pacetrial — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pacetrial, aggregated by home.social.
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David Tuller has done so much good work to educate people about ME/CFS - please consider donating to support him!
(only if you are able, of course)Read more here:
https://crowdfund.berkeley.edu/project/49720
You can read his "Trial by Error" posts (which go all the way back to his criticism of the PACE Trial) on the virology blog here:
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Claims Built on Fraudulent Trials Should Be Ignored
By David Tuller, DrPH When researchers cite fraudulent studies in support of their claims, it is best not to take anything they write at face value. That is certainly the case with a recent paper titled “Persistent physical symptoms not explained by structural abnormalities or disease processes: a primary care approach to promote recovery,” published earlier this month in the Scandinavian Journal of Primary Health Care. (I use “fraudulent” here not in the legal sense but in the sense of “deceptive” or “deceitful.”) As evidence of something or other, the paper’s references include both the fraudulent PACE trial, whose reported findings have been discredited and rejected by leading medical authorities, and a fraudulent pediatric trial of the Lightning Process, in which the investigators violated core methodological principles of scientific research. (The Lightning Process, a woo-woo “brain retraining” program, was created by osteopath and former spiritual healer Phil Parker, who once claimed to be able to diagnose people’s ailments by stepping into their bodies for a look-see.) The Scandinavian Journal of Primary Health Care has emerged as something of a house organ for members of the biopsychosocial ideological brigades, including prominent non-Nordic fellow travelers like Professor Paul Garner and Professor Trudie Chalder. (The former is the corresponding author of this paper; the latter is one of multiple co-authors.) Both were also co-authors of a similarly misguided document published by the same journal In 2023–a manifesto from the self-styled Oslo Chronic Fatigue Consortium called “Chronic fatigue syndromes: real illnesses that people can recover from.” The new paper’s goal is to offer primary care physicians a short summary of “contemporary theories of PPS” along with purported “evidence-informed pathways” for treating patients. The research involved a “narrative literature review and consensus development with experienced practitioners.” In other words, the paper presents the beliefs, opinions and …https://trialbyerror.org/2026/04/01/claims-built-on-fraudulent-trials-should-be-ignored/
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Today is 7th anniversary of publication of this rejoinder.
Free here: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-019-0296-x
The more important paper is initial paper which included re-analyses of £5m #PACETrial results. Free here: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3
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It's 8th anniversary of this paper.
A lot of it was only possible due to Alem's heroic FOI victory, which the #PACETrial team fought so hard to stop. That surely wasn't because the real results weren't as flattering as they had presented them?
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3
#MECFS #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs -
Today is 9-year anniversary of this rejoinder, where we defend our recovery reanalysis paper which found no difference in rates of recovery from #CFS with graded exercise therapy or CBT vs specialist medical care-alone group in £5m #PACEtrial
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It's 9-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.
https://journals.sagepub.com/doi/full/10.1177/1359105317697323
#MEcfs #CFS #MyalgicE #CBT #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs -
More quotes:
"ME/CFS has been psychologised by a framework known as the biopsychosocial model
...But the PACE study has since been conclusively debunked."
David Tuller has written at length on virology.ws about the many problems with the PACE trial:
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9-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves.
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
https://tandfonline.com/doi/full/10.1080/21641846.2017.1259724
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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Today is 6th anniversary of publication of this rejoinder.
Free here: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-019-0296-xThe more important paper is initial paper which included re-analyses of £5m #PACETrial results.
Free here: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3That is the last of the anniversaries of my paper publications for a while
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME -
It's the 7th anniversary of this paper.
A lot of it was only possible due to Alem's heroic FOI victory, which the #PACETrial team fought so hard to stop.That surely wasn't because the real results weren't as flattering as they had presented them?
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME -
Today is 8-year anniversary of this rejoinder, where we defend our recovery reanalysis paper which found no difference in rates of recovery from #CFS with graded exercise therapy or CBT vs specialist medical care-alone group in £5m #PACEtrial
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME -
It's 8-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.
https://journals.sagepub.com/doi/full/10.1177/1359105317697323
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CBT -
For examples of scientific harm done to ME/CFS patients see this video by @brokenbattery
It lists many issues, including the CDC renaming the illness in 1988 and the PACE trial, a flawed research study that has not yet been retracted:
https://www.youtube.com/watch?v=RiwX9Y0NbiQ
"George Monbiot describes the treatment of Myalgic Encephalomyelitis as 'the greatest medical scandal of the 21st century' …'"
Transcript:
https://medium.com/@abrokenbattery/me-cfs-scandal-explainer-eb4c1bfb7464#0cda
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When PACE-Gate Meets Sample Size Calculations - Nuno Sepulveda
https://link.springer.com/chapter/10.1007/978-3-031-68949-9_12
Image is from latest Science for ME weekly update
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8-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves.
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
https://tandfonline.com/doi/full/10.1080/21641846.2017.1259724
#MEcfs #CFS
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome -
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One of the slides from David Tuller's recent talks in Ireland.The PACE Trial was a UK taxpayer-funded £5 million trial of graded exercise therapy, CBT, etc. for CFS
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One of the slides from David Tuller's recent talks in Ireland.The PACE Trial was a UK taxpayer-funded £5 million trial of graded exercise therapy, CBT, etc. for CFS
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One of the slides from David Tuller's recent talks in Ireland showing the #PACETrial ridiculous recovery criterion. "Distribution of SF-36 physical function scores from British community participants aged 18–59 without long-term illness or disability" -
Gods imagine if the standard of evidence demanded by the #CassReview (randomised control trial) was also demanded in research on #mecfs before we implement treatment guidelines that kill people. (Yes I'm still mad about the #PACEtrial. And yes, obviously the Cass review is bullshit. It's almost like the state will use any means necessary to kill marginalised people.)
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The PACE trial: This $8 Million Medical Trial Is A Joke
https://youtu.be/bzh8pT-g9v0?si=lKaPgE89O297zJad
YouTuber and behavioural scientist Pete Judo presents the infamous #PACEtrial which he describes as "what is possibly the worst medical trial in modern history. (contd)”
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID1/
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Today is 5th anniversary of publication of this rejoinder which can be read for free here https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-019-0296-x
The more important paper is initial paper which included re-analyses of £5m #PACETrial results which can be read for free here https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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It's the 6th anniversary of this paper.
A lot of it was only possible due to Alem's heroic FOI victory, which the #PACETrial team fought so hard to stop. That surely wasn't because the real results weren't as flattering as they had presented them?
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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Today is 7-year anniversary of this rejoinder, where we defend our recovery reanalysis paper which found no difference in rates of recovery from #CFS with graded exercise therapy or CBT vs specialist medical care-alone group in £5m #PACEtrial
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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It's the 7-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.
https://journals.sagepub.com/doi/full/10.1177/1359105317697323
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This is why I didn't go to my siblings 3 weddings incl. one that was just 2km from me.
I was too busy running the @IrishMECFSAssociation alongside trying to critique BPS output like the #PACEtrial
I haven't improved since then, just not working quite so hard.
#SevereME @mecfs #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyalgicE
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7-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
https://tandfonline.com/doi/full/10.1080/21641846.2017.1259724
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CBT #GET #PwME
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Frontiers in #ChronicFatigueSyndrome research: An analysis of the top 100 most influential articles in the field
Unfortunately Lancet #PACEtrial paper is #2 but I think our reanalysis of the trial's results is better
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps
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"... Sir Simon Wessely, one of the most powerful figures in the British medical establishment.
"A man whose bad science, ego and ideology have for decades set back research into myalgic encephalomyelitis/chronic fatigue syndrome and treatments for the disease. ...
"Countless people were harmed... by following these junk cures."
https://donotpanic.substack.com/p/how-junk-science-set-a-countrys-health
#MECFS #BadScience #PACETrial #NHS #DWP #benefits #PEM #CBT #GET #LongCovid #SimonWessely #MichaelSharpe #ManselAylward
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"Chronic fatigue syndromes: real illnesses that people can recover from"
Some wishful thinking from the biopsychosocial school
Free fulltext:
https://www.tandfonline.com/doi/epdf/10.1080/02813432.2023.2235609What was supposed to be the definitive trial, the £5M #PACEtrial, found no increased recovery rates with CBT or GET using the protocol recovery criteria:
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE